Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son, Gluten And Possible Seizures


regmama

Recommended Posts

regmama Newbie

My husband was noticing that our son was having staring spells where he couldn't get our son's attention (our son is 1). When I was home on vacation they were happening almost every day. I think he had them before and I just thought he was being moody (he always seemed moody). My mom witnessed one of these spells and said that it looks like and absence seizure to her. Needless to say that night I didn't sleep much, just went about looking up absence seizure information on the internet until the weekend was over and we could call the doctor to set up an appointment. Doing this research I came across this site (as well as others) suggesting that some seizures can be a result of gluten sensitivity. So, the next day I thought it wouldn't hurt to try and take the gluten out of his diet (and mine since I still breastfeed him). Since doing that not only is he no longer a clingy moody child, but he has not had a staring spell (possible seizure) but he still sometimes blinks rapidly every once-in-a-while but without the staring that usually followed. We're taking him for an EEG next week, but I never would have connected gluten to any of his issues.

My mom even asked me what happened to him that he has such a different personality now. To me, I'm satisfied having him gluten-free without a diagnosis (why would I ever give him gluten just so that he can be tested and be a complete crab all the time not to mention him not wanting to eat). I should have thought something was up, he's the only child I know who won't eat a Cheerio, will lick the peanut butter off a piece of bread, suck the salt off of crackers then spit them out, pick the chocolate chips out of the cookies or pancakes, etc.

Have any of you gone through something similar without having an official test. Any regrets?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


Lisa Mentor

Hello and Welcome! I have witnessed an absence seizure in a little one in my life when she was around the same age as your son. It's pretty concerning.

You may be on to something. Some days she's calm and content, other days she's hyper. She's not always gluten free at my house, but I'm thinking that will change. ;)

You sound like a great mom. I wish you continued success.

rosetapper23 Explorer

At celiac conferences, mothers have often stated that their babies and toddlers with celiac disease were moody and clingy before going gluten free....and the staring "thing" has also been described. With celiac--and particularly in babies and children--the frontal lobes can be deprived of oxygen, causing neurological problems.

You're a bright mom to have caught this so early!

Lisa Mentor
  On 8/15/2012 at 10:28 PM, rosetapper23 said:

At celiac conferences, mothers have often stated that their babies and toddlers with celiac disease were moody and clingy before going gluten free....and the staring "thing" has also been described. With celiac--and particularly in babies and children--the frontal lobes can be deprived of oxygen, causing neurological problems.

You're a bright mom to have caught this so early!

Rose, I'd be interested to learning more about the Celiac connection. If you can find any research or lectures from the conferences, it would be great. Thanks

  • 2 weeks later...
Bluemoments9 Newbie

I don't have an answer for you but we have had similar issues here. My daughter is 15 mos old and for the last few months has also had absent seizure like behavior. She had an EEG done last week (we don't have results yet) and was supposed to have had her MRI Monday but she was sick so we have to reschedule. We have done testing for Celiac and while we don't have a Celiac diagnosis, she was DQ8 positive and she has shown improvement with being gluten free for the past 5 weeks. The episodes are really hard to catch but I haven't seen any since a week after eliminating gluten. I really believe there is a connection!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,750
    • Most Online (within 30 mins)
      7,748

    Donnalouise
    Newest Member
    Donnalouise
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Food for Life



  • Upcoming Events

  • Posts

    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
    • knitty kitty
      @Zuma888,  I'm so happy you're feeling better!   Thanks for letting us know of your improvement!
    • RMJ
      HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further.  It is not just one gene that is either this or that.
    • trents
      Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range. I'm also guessing that "permissive" is equivalent to "possessing the possibility" to develop active celiac disease and does not address the issue of hetero vs. homozygus per se. But the fact that 2.01,2.01 is a couplet may indicated homozygousity? All wild guesses.
    • Kirita
      I received the results that my child has the genes for celiac disease (she is still undergoing testing and it has been complicated). Can someone explain if this is homozygous HLA DQ 2.5 or not? The interpretation just says permissive for celiac disease. Thank you! DQ Alpha 1  05:01, 5 DQ Beta 1 02:01, 02:01 DQ serologic equivalent 2,2     
×
×
  • Create New...