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Dealing With Changing Sensitivites?

Ms.frustrated

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Ms.frustrated Newbie
Ms.frustrated
Posted

I've been eating gluten-free for alomost 3 months. All week I have been watching closly what I've been eating as last weekend I had a terrible time with what I think must have been CC somewhere. Just started feeling well again last night. Today I've been very careful as I have a ball game tonight and am needed to play. I just shared a small bowl of grapes with my daughter and instanly I've had two painful trips to the bathroom. Last time I had grapes, yesterday, I was totally fine, and was happy to find a fruit that didn't upset my stomach. Now what do I do? How often are food sensitivities going to change. How do I know what is safe and not, especially when dealing with fresh fruit??? How do I expect to be able to go on outings with the kids or play a baseball game without flare ups??? I'm so frustrated right now!! I'm too afraid to even go for a walk with the kids, and that is just not fair!

I understand the elimination test, but how can I do that when everyday differs? Does it make a difference when I eat the same fruit two days in a row? Please help!

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kittty Contributor
kittty
Posted

It may not have been the grapes, but a continuation of the glutening you got last weekend. I was glutened last week, and the D went away for a couple of days and then came back again yesterday. I wasn't glutened again, so my body is probably doing a rollercoaster recovery. I'm not sure how long the average gluten symptoms can last, but some people have issues for a couple of weeks after accidentally eating gluten.

Lisa Mentor
Lisa
Posted

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Yes! Definitely the worrying makes it that much worse! That was my next question. It's like a vicious circle! I don't understand how things can ever get better when things are constantly changing? I've been tempted to try a laxative every morning to clear things out and then immodium through the day to actually be able to have some sort of life.

Yes, I have eliminated dairy other than lactose free milk and lactose free yogurt. I wonder if there is something in those other than lactose that would be causing this?

Lisa Mentor
Lisa
Posted

I wonder if there is something in those other than lactose that would be causing this?

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

ciamarie Rookie
ciamarie
Posted

When you mentioned grapes, the first thing I thought was sulfites, since I've been having to avoid that as well as gluten (and soy and msg). See here: Open Original Shared Link

1desperateladysaved Proficient
1desperateladysaved
Posted

Grapes have yeast naturally in/on them. I learned this picking grapes in an orchard. I won't tolerate grapes. But I see that one time you did.

Well, I am about 3 months in and dealing with the same questions. What did it and why?

Diana

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Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

What about BBQ's?

Lisa Mentor
Lisa
Posted

What about BBQ's?

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

LauraB0927 Apprentice
LauraB0927
Posted

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

  • 2 weeks later...
Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

Thank you! It's definitelyl a roller coaster ride. It is also tough when some symptoms happen right away and others take a couple days. How do you know what it actually was that bothered you? I'm just going to keep trying and look forward to the day when things get back to "normal". One day at a time!!!

Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

Persei V. Enthusiast
Persei V.
Posted

I kind of made a list of safe foods I can eat, no matter what my state is. Before I knew I had GI, I could eat three slices of bread + a handful of cookies before getting sick and now I get glutenated by cross contamination...

So whenever I feel bad, I go back to eating only those foods, that I know for sure that aren't doing any harm and wait for the sunshine to come. I don't stay ill for too long, though. Only three days maximum.

bartfull Rising Star
bartfull
Posted

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

You mean is your BBQ grill contaminated? Probably. If you ever toated buns on it, used BBQ sauce, seasonings, or even margerine on whatever you cooked on it in the past. Most people either buy a new grate for their grills or use foil so their food doesn't touch the grate.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

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      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
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