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Interstitial Cystitis And Elmiron

Peppa-minto

By Peppa-minto
in Related Issues & Disorders

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Peppa-minto Apprentice
Peppa-minto
Posted

Okay so I recently realized I never actually checked to make sure that elmiron was gluten free (I have IC). I've seen some conflicting posts on the matter. Some say the medication inside the capsule is gluten-free but the capsule itself is not. Does anyone know?

  • 1 month later...
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archaeo in FL Apprentice
archaeo in FL
Posted

Peppa_minto, I don't know. I do remember having GI issues when I took it, but I think they warn about that even for "normal" folks. I didn't know I had Celiac then, so I wasn't researching my meds. Elmiron was not good for me, though - I had the side effects. I also am not sure whether I have IC, so I didn't appreciate taking it! (It didn't help me, but since I may not have IC that might be why! I do hope it helps you!)

I know I read on an IC board about some people putting the pill's contents into water and drinking it. I'd talk to your pharmacist, they should be able to help you.

  • 2 months later...
Judyin Philly Enthusiast
Judyin Philly
Posted

Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks for the input

infectious disease specialist said that that drug caused diarrhea and a reocurance of c diff

Of course urologist just denied it

So now I'm struggling with the pain of both I C and C-Diff.

Any ideas welcome done waiting for

sunsetsunrise Newbie
sunsetsunrise
Posted

Long time member needs some help.

Since this was a old post I hope some new posts on how this med worked for them.

The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.

Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.

any help so appreciated as just too tired and weak to search

Thanks in advance Judy

So sorry to hear you are not feeling well. I do not have IC, but regarding the C diff and your diet restrictions--I've had to restrict some foods in my diet in addition to gluten containing foods due to (my interpretation) inflammatory reaction. I've had low WBC counts occasionally which I believe is adding to more susceptibility to infection. I have found The New Yorker, October 22, 2012 article, Germs Are Us, very interesting and helpful (there is reference to C. diff infection, and basically that we are eroding our gut flora and probiotics help maintain it). I have found that the diet restrictions (in addition to gluten) very narrow, but the increased health really negates any difficulty. I truly hope you feel better and wish you a very happy holiday season.

Judyin Philly Enthusiast
Judyin Philly
Posted

Thanks for your reply and the time it took to do it

Learning all I can about this drug

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