Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Proctitis


gfreejz

Recommended Posts

gfreejz Rookie

Hello to all.

Today my boy who is 7 went to the doctor about blood on his stool. He has had bright red blood in his stool about once a week for about a month. He usually has fairly normal movements maybe a little on the hard side. He does well with his Gluten free diet and is in the 92 % for height and weight, which is better than me, I can't gain a pound for nothing. My wife and I have come to realize that dairy, mostly ice cream, makes him have blood in his stool. The Doc said for him to be 100% lactose free and get rechecked in a week to see if resolved. If not he goes to Children's for more tests. He had some blood work done and an x-ray to check for constipation. The doc says its Proctitis. She said to give him a stool softner every day and it should be better in a week. I am self diagnosed gluten/lactose intolerant with family history of Celiac and Chrons. We both have been Gluten free for over a year. Any one here have Proctitis? I've been giving him almond milk and not much lactose other than ice cream now and then. But the doc says he shouldn't have Almond or Soy milk because they have some traces of lactose. Anyone heard of that? I buy the Silk brand Soy or Diamond brand Almond milk and they both say lactose free on the package. This week was the first time trying the Soy milk because he says Almond milk gives him a tummy ache. We both seem to tolerate the Soy just fine, so probly its only the ice cream that is giving him trouble. He does crave ice cream and its hard to say no, up until now. So now its Gluten/lactose free for both and extra fluids. I'm going to ask about probiotics for sure.

Any feedback would be great! Anything I should ask the Doc at his checkup? Thank you all in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gatita Enthusiast

I had to look up proctitis... it sounds painful, poor kid.

I can't believe there is lactose in almond milk. I drink it all the time, and I am sure lactose is ONLY found in milk products.

Hope someone else can come along to answer your other concerns.

gfreejz Rookie

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

ravenwoodglass Mentor

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

That's great news. So good to hear he is doing better.

GFinDC Veteran

HI,

I am not so sure it is lactose causing the problem. It is also possible that casein, the protein in cow dairy is the issue. Lactose intolerance usually causes bloating, and diahhrea. Casein is a protein and is more likely to cause an immune reaction. Lactose is just a form of sugar and if you don't have the enzyme (lactase) in your gut to digest it the sugar is eaten by bacteria. The bacteria multiply quickly and make the gas and cause the diahhrea. If it is a casein problem he will not be able to eat any diary. If it is just lactose intolerance he would be able to eat dairy if he took lactaid pills with it. The lactaid pills digest the lactose so the bacteria don't get to eat it. But lactose free milk or lactaid pills won't help with a casein reaction.

Soy is not a good choice for a milk substitute IMHO. Personally I'd take him off all soy. Almond milk, rice milk, or hemp milk would be better choices. There is coconut ice cream available in stores and also sherberts or ices. If you are worried about lactose in a food item the ingredient label should list it. Or if it is not clear you can always call the company and ask them to confirm. Dairy is one of the top 8 food allergens that have to be included in ingredient labels in the USA.

Procitis is not a disease from what I read, rather it is a description of a condition. It seems to me the doctor doesn't know what the cause is if that's all they told you. Procitis would be caused by something.

If the kid is bleeding from eating dairy it is not a great Idea to let them have it as a treat. Whether they want it or not. There are plenty of dairy free substitute treats available. Maybe he will like them better, wouldn't hurt to try. Coconut does cause some people to have diahhrea. Hopefully it won't be a problem.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,114
    • Most Online (within 30 mins)
      7,748

    Cheryl Elliott
    Newest Member
    Cheryl Elliott
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.