Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constant Nausea


flowerqueen

Recommended Posts

flowerqueen Community Regular

Has anyone had problems with nausea even though they are gluten and wheat free. When I was first diagnosed apart from feeling constantly hungry my reflux and stomach problems vastly improved. Recently however, I have felt nauseous much of the time and stomach ache, gas etc. Also every few weeks I wake very early with an overwhelming urge to vomit and get a cold sweat with it. It usually settles down after about an hour, following fennel tea and going to the bathroom. As far as I know, I'm not consuming anything I shouldn't eat and am very particular in the kitchen (I have my own preparation area and utensils etc.). Any ideas? I do also have diabetes and a hiatus hernia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

Has anyone had problems with nausea even though they are gluten and wheat free. When I was first diagnosed apart from feeling constantly hungry my reflux and stomach problems vastly improved. Recently however, I have felt nauseous much of the time and stomach ache, gas etc. Also every few weeks I wake very early with an overwhelming urge to vomit and get a cold sweat with it. It usually settles down after about an hour, following fennel tea and going to the bathroom. As far as I know, I'm not consuming anything I shouldn't eat and am very particular in the kitchen (I have my own preparation area and utensils etc.). Any ideas? I do also have diabetes and a hiatus hernia.

have you checked you blood sugar at these times?

flowerqueen Community Regular

have you checked you blood sugar at these times?

Yes I have and there doesn't seem to be anything too unusual. I manage my diabetes by diet alone at present, I'm bordering needing medication for it. My Hba1c tests are due this week. I have found that since I can no longer have my usual sources of fibre it's been more difficult to regulate my ideal levels.

pricklypear1971 Community Regular

Could be hormones fluctuating, or your hernia on an empty stomach, or blood sugar in combo with all of that.

Is there a chance your blood sugar is dipping too low in the middle of the night?

flowerqueen Community Regular

Could be hormones fluctuating, or your hernia on an empty stomach, or blood sugar in combo with all of that.

Is there a chance your blood sugar is dipping too low in the middle of the night?

It's possible. It did dip one day when I was out walking the dog, recently. It was a day I'd only had soup at lunch time with a couple of rice crackers. Night time glucose dips are harder to check on. At the moment I've got that many theories going round my head I don't know what to think anymore.

pricklypear1971 Community Regular

Some people set an alarm to check glucose around 3 a.m.

If you can add beans or leafy veggies it helps with fiber and glucose regulation, for most.

flowerqueen Community Regular

Some people set an alarm to check glucose around 3 a.m.

If you can add beans or leafy veggies it helps with fiber and glucose regulation, for most.

Yes, also I think there's a wrist band you can buy that monitors glucose levels while you are asleep, don't know how much they are though. I eat beans and leafy veg etc. and of course, there's a chance that it's nothing to do with my glucose. I am restarting a food diary to see if that shows anything up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Is nausea one of your glutening symptoms? Could you have become sensitive to lower levels of gluten than before?

flowerqueen Community Regular

Is nausea one of your glutening symptoms? Could you have become sensitive to lower levels of gluten than before?

I think the nausea was more to do with the lactose intolerance I developed about 2 years before I was diagnosed Coeliac. Although as I had so many nasty symptoms due to Coeliac it's hard to differentiate between them. At the moment my stomach feels like I've been accidentally glutened, but I don't know how, as I'm fastidious in the kitchen etc. Starting to wonder if gluten is hidden in something I don't know about. One thing I don't really know is how long symptoms persist if there's been some cross contamination.

flowerqueen Community Regular

I'd like to add something to original post....

Have you ever had a throat infection where your throat feels sore, swollen, throbbing and itchy and wish you could put your hand down your throat to give it a good scratch? Well that's what my stomach feels like right now - as well as the nausea.

Bubba's Mom Enthusiast

It sound like it could be a food intolerance of some sort..if not gluten? Do you keep a food log/symptom diary? Write down what you eat and note any symptoms. Many food reactions are delayed so it's good to have a way to go back and see if there's a pattern.

Many of us find that we don't tolerate soy or dairy after omitting gluten. Most vitamins have soy. I had nausea problems a lot too, until I got rid of all traces of soy. It made a big difference.

Also, digestive enzymes and probiotics help a distressed digestive system a lot.

flowerqueen Community Regular

It sound like it could be a food intolerance of some sort..if not gluten? Do you keep a food log/symptom diary? Write down what you eat and note any symptoms. Many food reactions are delayed so it's good to have a way to go back and see if there's a pattern.

Many of us find that we don't tolerate soy or dairy after omitting gluten. Most vitamins have soy. I had nausea problems a lot too, until I got rid of all traces of soy. It made a big difference.

Also, digestive enzymes and probiotics help a distressed digestive system a lot.

Thanks, you've more or less confirmed my own suspicions about food allergies although I still can't tolerate dairy products and don't eat them. I did wonder about soya products and I've just recommenced my food diary that I started before being diagnosed Coeliac. I have just purchased some probiotics (gluten/wheat/dairy free/soy free) so I've got my fingers crossed. It's more reassuring when other people have the same symptoms, even though it doesn't take away the pain and discomfort.

GFinDC Veteran

You might have an H.Pylori infection going on. You could get a test for it and try some natural remedies. Gluten CC is a possibility too, and also other food intolerances might be the problem. Do you eat a little protein with every meal, and especially before bed?

I checked on the wrist watch glucose monitors once and the were about $1500 without insurance.

Takala Enthusiast

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

bartfull Rising Star

Remind me to check the brand of sea salt I get. It has nothing added to it at all. (I can't remember the brand but it comes in a clear plastic bag with pale turquios, dark blue, and red writing. It also says it is not heated or something to that effect.)

flowerqueen Community Regular

You might have an H.Pylori infection going on. You could get a test for it and try some natural remedies. Gluten CC is a possibility too, and also other food intolerances might be the problem. Do you eat a little protein with every meal, and especially before bed?

I checked on the wrist watch glucose monitors once and the were about $1500 without insurance.

I was checked for H.pylori a while back and it came back negative. I can't eat anything after my evening meal as I have a hiatus hernia and it would cause problems if I ate at bedtime. I think I've seen a wrist watch glucose monitor in UK, will check out the prices. It may be possibility it's CC even though I'm careful, I've spoken to Coeliacs UK today and we were discussing the possibility of it being other food intolerances that may have surfaced. Many thanks.

flowerqueen Community Regular

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

flowerqueen Community Regular

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

I have not dared to have any gluten free codex wheat starch as I've always been sensitive to wheat. I have recently been eating a cereal with flax in, and I did wonder whether it could be that, but I've wondered about a lot of things. I am keeping a food diary to see if it highlights anything. It's very odd putting dextrose in salt, not heard of that before.

frieze Community Regular

I was checked for H.pylori a while back and it came back negative. I can't eat anything after my evening meal as I have a hiatus hernia and it would cause problems if I ate at bedtime. I think I've seen a wrist watch glucose monitor in UK, will check out the prices. It may be possibility it's CC even though I'm careful, I've spoken to Coeliacs UK today and we were discussing the possibility of it being other food intolerances that may have surfaced. Many thanks.

do you have the head of your bed elevated?

flowerqueen Community Regular

do you have the head of your bed elevated?

Yes I do, I have lots of pillows too. I can't sleep flat on my back for obvious reasons. It's not always restful sleep though as I have arthritis in my spine and sciatica caused by my spine degenerating, making the nerves in my legs very painful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.