Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elisa Gluten Test Kit For Food


jmj0803

Recommended Posts

jmj0803 Apprentice

Hello everyone!

I was wondering if anyone out there has ever tried the Elisa gluten home test kit for food? If by chance you have, does it work on medication also? My daughter has been diagnosed for 7 months and I thought that I had removed all the gluten from her diet( boy was I wrong!!!!) her original TTg level was 106 now it is 142. I can't figure out what is the source of gluten, hence the reason for the test kit. Any help would be greatly appreciated!! I am going to list most of the food I am giving her if anyone sees something suspicious please let me know. Thank you in advance.

Eggs

Lactaid milk, cheese and ice cream

glutino bagels

lays chips

fritos

perdue short cuts - original roasted flavor

frozen veges and fresh veges

fruit

heinz tomato soup

sanj wheat free tamari

A1 steak sauce

classico tomato sauce - tomato sauce

fleishmann's unsalted margarine

McCormick spices(confirmed by co. to be gluten free)

Centrum kids rugrats vitamins

planters peanuts/cashews

jetpuff marshmallows

Oscar mayer ready to serve bacon(the microwave kind)

Levoxyl - thyroid medicine

Flouride chewable tablet(this is suspect)

dum dum lollipops

dinty moore beef stew

All crackers and cookies are gluten free versions

shaws rice puffs(This is maybe once a month)

Mott's all natural apple sauce

Thank You everyone!!!

Jessica :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

How old is your daughter? Is there a possibility she could be eating some while you are not around?

jmj0803 Apprentice

My daughter is 7 years old. I thought that maybe she was at first, I don't think that now. She knows how serious this is. Also, I am around her a majority of the time and all the gluten containing food is up high, at 42 1/2 inches tall even with a chair she can't reach!

connole1056 Rookie

Are you certain the frozen vegetables are gluten-free? Are they plain, or do they have a sauce, or butter added that might contain gluten? Is there a possibilty of cross contamination at school or in another location that you are not with her? or maybe at home? Kitchen sponges for instance, can hold gluten so it is best to use separate sponges for gluten and non-gluten cleaning. Have you checked all the laundry supplies, soap and napkins/paper towels/kleenex, and nail polish, if she uses it? I am trying to think of everything I can to help, I do not mean to go on and on. I would reiterate the importance of not sneaking at home and trading snacks at school. Seven months is not long enough for a child's taste buds to "forget" what gluten foods taste like, so maybe she is sneaking and is afraid to tell you. Of course, some people may not understand the very real problems associated with giving your daughter gluten, and be giving her something you do not know about.

Merika Contributor

Where do you live? I'd suggest having someone from a local celiac support group come to your house and look at ALL the labels of food and see what's going on in your house.

I would also talk with the teachers and see if your dd is eating something at school or swapping lunches with someone.....just in case.....

Hope you get it figured out,

Merika

  • 3 years later...
Woolygimp Contributor

get rid of the lays and fritos, for sure. they have some serous issues with cross contamination at the factory, and many other posters on this forum report getting glutened consistently when they eat those chips.

CeliacMom2008 Enthusiast

I'd check the Centrum. When I called them (last Jan.) they said all of their children's chewables contained gluten. But that's been almost a year.

Are you sure on the A-1? I've never checked A-1, because my hubby was a Heinz 57 fan (which does contain gluten from malt or something, I can't remember).

I too would ditch the Lays and Fritos for awhile. At least until you get things figured out. And double check those items that are labelled gluten free. There are enough horror stories around here about people finding things with gluten labelled gluten free. And how about your kitchen. It sounds like you're in a mixed household. Could she be getting cross contamination accidently. And then of course there's the shampoos, lotions, etc.

I'm so sorry you're having to go through this detective work. It's really tough. Last spring we thought my son was getting glutened. I was pulling my hair out trying to figure out where it was coming from. I still don't know for sure what was up, but when he was tested he came back at 2.8 so we at least knew it wasn't gluten. I know you're frustrated, but hang in there. You'll find the culprit.

Best of luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Note that the original post and most of the thread is over 3 years old.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.