Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dehydration


Jodster72

Recommended Posts

Jodster72 Rookie

hello and good morning all:)

Just wondering if anyone as dealt with this along their journey.

Because I am obviously malabsorbing everything I have started to get dehydrated the last week. I first noticed I was very pasty in my mouth abd white tongue despite how much water I am drinking as well as my bottom eyelids are white rather than red/pink. I'm thinking this could be the reason that my heart rate as been jumping over 100 this week as well. Can anyone suggest any vitamins I could try while I wait to see doctor in a few days. They must also be sugar free as well. Any ideas would be appreciated xo

Have a great morning xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I also had dehydration for quite some time, hon but I also have a hubs who pestered me to drink water all day long. When I was very dehydrated pre-DX from (I'll just say it) vomiting and the Big D, he had me drinking 16 oz. glasses of water with a tsp. of salt/a TBLS. of sugar in it to balance my electrolytes. It was that --or go to the ER for a bag of saline again. It helped immensely.

That said, I drink about 68-72 ounces of water a day now and I found that being hydrated helps with muscle and tissue repair as well as a keeping a clear head, smooth -running bowels, and better digestion.

My heart palps stopped, the "funky tongue" cleared up, my kidneys function better (the doc loved my last lab test results) and I push water on everyone now.

I say: Drink up! It may take some time for all these issues to resolve. Hang in there.

1desperateladysaved Proficient

Can you do coconut? I was having dehydration problems with a recent cold. My tongue was cleaving to the roof of my mouth. I believe my red eyes might have been assoicated with the dehydration. Water just seemed to be going straight through. I tried coconut water. In a couple of hours my mouth was moistened again. It seemed to stick better than water.

I look for a brand that has only Coconut water in it. Young coconut water actually tastes good. I read that Coconut water can be a good sport drink and that is what made me think of it. Regular sport drinks aren't hydrating and are too much sugar for me.

It advertised that it has natural potassium in it. My only problem is that I bought out all 4 bottles at the local store and need to go further for more. One store has 4 different brands of coconut water for me to choose from!

Diana

mommida Enthusiast

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

IrishHeart Veteran

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

Brilliant advice!!!!

I had B-12, iron and folate anemias--and yes, they all can cause those symptoms as well.

And I echo the thought-do not start supplementing until your levels are checked.

Nice catch, mommida :)

gfreejz Rookie

I have dehydration problems as well and would like to second irishheart's suggestion with the salt sugar water. It has helped myself alot. My recipe is a shake of salt and one teaspoon sugar to about 20 ounces of filtered water. Also I'd like to add that I don't consume any other added salt or sugar on my diet. I also no longer have any blood pressure or blood sugar problems to worry about so I'm not worried about adding in more salt or sugar.( I still check my BP daily ) Too me this water reminds me of milk, so it shouldnt taste bad or weird, if it does add more water. I also gave up caffeine recently because coffee was simulating my bowels alot, and it seems that I would have to pee before I even set my cup down. Now I have to get up in the middle of the night to pee, for the first time ever! The salt/sugar makes the water stick. Oh and since I'm taking b12 now I never even think about caffine . I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

IrishHeart Veteran

I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

"Grumpy-free" :D ...Love this.

Congrats on your rebound to good health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

More vegetables, you need the fiber in them to hold the moisture in your gut. Put the stuff in a blender for a smoothie with a piece of fruit, if you can't stand the thought of just eating it.

Other than that, I agree w/ the above suggestions that you sound like you're also a bit anemic. At one point I was sucking down blackstrap molasses every day like manna as a source of iron, besides gluten free B complex vitamins/mineral supplements. If you can't do the home made electrolyte sugar/salt in water, (normal summer temps here hit a high of 100

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.