Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Igg And Iga


Kairyn

Recommended Posts

Kairyn Newbie

Hello guys,

I am 17 years old and for the past year and a half, I've been on a gluten-free diet. I hadn't actually been tested before, my mom just wanted me to try the diet to see if I felt better because since I was 13 I always felt sick, and bloated immediately after eating bread, and when I was younger I had terrible headaches and blah blah blah. Recently, I asked my doctor if I should be tested, he said sure if I really thought I was, he'd order a blood tests(I was on a gluten free diet at this time however, and I asked my doctor if I should start eating gluten rich foods before the test... he said no), I got the test results back and both my IgG and IgA test results are below the normal range. Does this mean I am celiac, or not?

*Additional info: I am slightly Anemic, and I am very sensitive to milk, ice cream, and yogurt... but not cheese.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MitziG Enthusiast

Your doctor is incorrect. In order to be tested you need to be eating gluten regularly, for several months.

The blood tests look for IGA and IGG antibodies being made in response to gluten. If you aren't eating gluten, your body does not make antibodies.

Many doctors are not very knowledgeable about how to properly test for celiac. If you really need to know if you are celiac, you must begin eating gluten now, and continue for several months. Even then you may get a negative response as celiac doesn't always show up in tests. Gluten intolerance cannot be tested for at all.

If you feel bad when you eat gluten, you really have your answer. My advice would be to simply call yourself celiac and be done with it.

mushroom Proficient

Hi Kairyn, and welcome.

Your doctor is wrong, if you had not been eating gluten there is a very slim chance that your tests would be positive for celiac. It is normally recommended that you be eating gluten for at least six weeks before testing. So your test results do not tell you whether or not you have celiac disease. To get a proper test you would have to go back on gluten.

I am assuming since you did not mention current symptoms that the gluten free diet has taken care of your symptoms :) If this is the case your are at least non-celiac intolerant, if not celiac. If there is some overriding reason why you need a diagnosis (e.g., you have to pay for a meal plan in college) you would need to follow through with testing. Otherwise, it is up to you whether you can live without a proper diagnosis. Many of us on here have no diagnosis because we could not tolerate eating gluten for six weeks in order to be tested.

It is interesting that you are still intolerant of lactose containing dairy. If you have been really strict with your diet your small intestine should have healed by now and you should once again be making the lactase enzyme to digest those products. This might indicate that you still have intestinal damage and that perhaps a biopsy would be able to diagnose whether or not you have celiac disease. It is something to talk to your doctor about. Celiac damages the villi in the small intestine, and lactase is produced at the tips of the villi. Most celiacs have problems with lactose until they are sufficiently healed.

One thing we have all learned is that in order to heal we have to eliminate ALL gluten. :)

GottaSki Mentor

Welcome Kairyn!

Your doctor was incorrect. The blood tests measure the antibodies produced in reaction to gluten ingestion. There is no way you would have antibodies to be measured at a year and half gluten-free.

Do you feel better since you removed gluten?

Are you sure you have removed all gluten?

Do you have reactions to small amounts of accidental glutening?

Some doctors will diagnose Celiac Disease based on symptom improvement alone - others require you complete a gluten challenge for testing. The major celiac centers all say a challenge must be at least six weeks - University of Chicago suggests three months.

If you want to go forward to obtain a diagnosis I'd contact a local Celiac Support group to ask for a referral to a gastroenterologist that specializes in Celiac Disease.

It is also important to understand there is something called Non-Celiac Gluten Intolerance that there are no medical tests for. The only test is strict elimination of gluten. Those with NCGI can have severe symptoms that are very similar to Celiac.

Good Luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.