Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Visit..positive Experience

Roda

By Roda
in Doctors

Recommended Posts

Roda Rising Star
Roda
Posted

I went for a surgical consult today to get my gallbladder removed. The surgeon pretty much explained everything to me and I had ample time to ask questions. My last concern I mentioned to him was getting any oral medications(pain meds) in recovery or before I was discharged, that might have gluten in them. He was very understanding and said that it would have to be checked. He also said that if I knew of a certain drug that was gluten free that he would be willing to prescribe it. I'm not one to know much about pain meds. I don't even take over the counter meds unless I'm desperate. He went on to tell me that when it comes to individuals with allergies, celiac, etc that the patient usually knows more what is safe or not and that he welcomes suggestions and information.

It was really nice to have a doctor be concerned and understanding. He went on to tell me his wife is non celiac gluten intolerent also. I am planning on getting the most recent updated list from a site (glutenfreedrugs.com) and give it to him so he can prescribe whatever he sees fit.

So in a nut shell I was pretty pleased with my consult and am scheduled for Oct. 24th. Another interesting thing is that he performs the laproscopic procedure through just one incision in the umbilical region instead of the 3-4 incisions typically used. Less holes for me!! :lol::P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

Nice to hear about a good Dr experience.

Just one incision sounds about right. (Wondering what changed in procedure compared to multi-incision . ..better imaging maybe?)

Good luck on Oct 24, tho it appears you won't need it.

ravenwoodglass Mentor
ravenwoodglass
Posted

He sounds like a great doctor.

You may want to ask him what he usually prescribes and call your pharmacey and get the maker if the drug. Then you can call the maker yourself to be sure. When I had my oral surgery the doctor gave me a prescription a week ahead so I could take it to the pharmacy and check it before it was filled. He said that way if they don't have a safe version he would have time to prescribe something different. I was able to get the makers phone number by just putting their name and the words 'contact infor' into a search engine.

Good luck with your surgery and I hope you heal quickly.

Roda Rising Star
Roda
Posted
  • Author

Thanks everyone. I was nervous going in there. I believe he said he prescribes lortab or vicoden or something of the sort. I can call my local pharmacy to see what brands they carry. I really want to opt for the less mind numbing of the two. I've had lortab once after a car accident(sore neck from whiplash) but only took one dose that same night to help me sleep without pain. I never took anymore. I probably will be more "sore" from the surgery.

shadowicewolf Proficient
shadowicewolf
Posted

Honestly, if you can handle it, just go with plain tolenol or moltrin. They gave me tolenol with codien and on the second day i was throwing up something fierce.

Also, you will probably have a sore sholder because of the gas they blow ya up with for the surgery. Heating pads are wonderful for this and walking helps alot.

Roda Rising Star
Roda
Posted
  • Author

Honestly, if you can handle it, just go with plain tolenol or moltrin. They gave me tolenol with codien and on the second day i was throwing up something fierce.

Also, you will probably have a sore sholder because of the gas they blow ya up with for the surgery. Heating pads are wonderful for this and walking helps alot.

I was thinking on those lines also, but just in case I need something stronger I want to get the RX. I may not need it, but would rather have it on hand if I do.

mushroom Proficient
mushroom
Posted

I was thinking on those lines also, but just in case I need something stronger I want to get the RX. I may not need it, but would rather have it on hand if I do.

They do say that it is better to head off pain, rather than try to treat it once it takes hold. So don't be slow to start taking the pain relievers, tylenol or whatever. I tend to avoid the strong morphine-derived pain relievers because they make me vomit. I have taken Tramadol in the past.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted
  • Author

They do say that it is better to head off pain, rather than try to treat it once it takes hold. So don't be slow to start taking the pain relievers, tylenol or whatever. I tend to avoid the strong morphine-derived pain relievers because they make me vomit. I have taken Tramadol in the past.

I agree with that. When I feel a migraine coming on I try and take something off the bat to catch it before it gets full blown. It does make a big difference.

shadowicewolf Proficient
shadowicewolf
Posted

Indeed. In my case, my family has a history with issues in the vicatin area of meds, so it was best to avoid them.

Though, heating pads do wonders...

ravenwoodglass Mentor
ravenwoodglass
Posted

I was thinking on those lines also, but just in case I need something stronger I want to get the RX. I may not need it, but would rather have it on hand if I do.

I had to have oral surgery a couple years ago and the surgeon prescribed Hydrocodone-APAP 5-500 the generic for Vicodin 5-500. It was made by Mallinkrt Pharm and at that time it was gluten safe. I had no problems with it but only needed it for the first two days after surgery. Doc prescribed 1 -2 every six hours but one was all I needed.

I agree you should not wait until the pain is severe before taking the pain meds.

Gemini Experienced
Gemini
Posted

Thanks everyone. I was nervous going in there. I believe he said he prescribes lortab or vicoden or something of the sort. I can call my local pharmacy to see what brands they carry. I really want to opt for the less mind numbing of the two. I've had lortab once after a car accident(sore neck from whiplash) but only took one dose that same night to help me sleep without pain. I never took anymore. I probably will be more "sore" from the surgery.

Roda....name brand Vicodin is gluten free. I have been using it for dental implant surgery and have had zero issues with it and I am very, very sensitive.

It works on pain well without making you too dopey. Actually, you won't get too dopey if used after surgery as all the active ingredient in it will be used to suppress pain.....it will bring you to normal, if that makes sense. You only usually get really dopey if you use it when you don't have pain.

It's easy on the stomach, too! Good luck and speedy recovery.

Roda Rising Star
Roda
Posted
  • Author

Roda....name brand Vicodin is gluten free. I have been using it for dental implant surgery and have had zero issues with it and I am very, very sensitive.

It works on pain well without making you too dopey. Actually, you won't get too dopey if used after surgery as all the active ingredient in it will be used to suppress pain.....it will bring you to normal, if that makes sense. You only usually get really dopey if you use it when you don't have pain.

It's easy on the stomach, too! Good luck and speedy recovery.

Thanks, that's good to know. Until I looked it up I didn't realize that lortab and vicodin were the same thing.

I went today to fill out my FML papers. I wanted to give my work plenty of time for the paperwork trail and not have to worry. My supervisor doesn't want me back for 3 weeks post op then I will be temporarily moved to day shift until the rest of the restrictions are lifted(I was told no strenuous exercise or heavy lifting for 6 weeks). Unfortunately my job is pretty physical at times. I have to move patients a lot. At night there are limited staff in other areas and I am the only one staffed in my department also. Being back on day shift for a little bit will be a challenge in itself.. :lol:

Gemini Experienced
Gemini
Posted

Thanks, that's good to know. Until I looked it up I didn't realize that lortab and vicodin were the same thing.

I went today to fill out my FML papers. I wanted to give my work plenty of time for the paperwork trail and not have to worry. My supervisor doesn't want me back for 3 weeks post op then I will be temporarily moved to day shift until the rest of the restrictions are lifted(I was told no strenuous exercise or heavy lifting for 6 weeks). Unfortunately my job is pretty physical at times. I have to move patients a lot. At night there are limited staff in other areas and I am the only one staffed in my department also. Being back on day shift for a little bit will be a challenge in itself.. :lol:

Like there isn't enough for you to be thinking about without having all this work related paperwork and planning to do! <_<

I worked night shift a long time ago and loved it. It was more in line with my body clock. I then got a fantastic job, which I am still at, but it was day shift. After 30 years, I still hate the day shift but love the job! I know what you mean. ;)

  • 3 weeks later...
Roda Rising Star
Roda
Posted
  • Author

Well, just two more days to go. I'm sitting here having discomfort from it now and a migraine that I've had since yesterday afternoon. The migraine is what is bothering me the most and I can't take a darn thing for it. :(

Gemini Experienced
Gemini
Posted

Well, just two more days to go. I'm sitting here having discomfort from it now and a migraine that I've had since yesterday afternoon. The migraine is what is bothering me the most and I can't take a darn thing for it. :(

I am sorry you are having a migraine, Roda! It probably is stress related and who can blame you for that. You will be fine afterwards but it is stressful before anyone has surgery....the mind is too active. Pretty soon the GB problems will be gone...one less thing to worry about. I will be thinking of you on the 24th and wish you a speedy recovery! Let us know how everything went when you are able. :)

Roda Rising Star
Roda
Posted
  • Author

I am sorry you are having a migraine, Roda! It probably is stress related and who can blame you for that. You will be fine afterwards but it is stressful before anyone has surgery....the mind is too active. Pretty soon the GB problems will be gone...one less thing to worry about. I will be thinking of you on the 24th and wish you a speedy recovery! Let us know how everything went when you are able. :)

Thanks Gemini for the nice thoughts. I have to be in the same day surgery center at 7:40 tomorrow morning. I still have the migraine lingering but it's a lot better now. My mom is going with me in the morning along with my husband. My dad is in charge of getting the kids up and off to school. That should be interesting. He asked my youngest son if he could get his own breakfast. DS looked at him kinda funny, then my dad told him, "I hope so because I can't." He was dead serious. Good thing there are fruity pebbles in the pantry and yogurt in the fridge! :o:lol:

Roda Rising Star
Roda
Posted
  • Author

Had my surgery on Wednesday. The surgery itself went well. I remember waking up in recovery and was in quite a bit of pain. They gave me IV morphine. Next I remember sitting up and them giving me some pills to swallow. After that I became very nauseated, sweating profusly and really not feeling well. Then I hear the nurse say lay her down because my blood pressure had dropped really low. I think it was 85/31 at it's lowest. They had to keep me in recovery until my BP went back up. From what everyone tells me they think I had a vasal vagal reaction to the morphine. It wasn't pleasant. Everyone was great and my nurse didn't leave my bedside until everything was stable. I finaly got discharged from the SDS center around 5:00 pm. Was still pretty nauseated when I got home. I did manage to get sick and after my stomach was empty I felt better.

Yesterday I started really feeling the pain but mostly at the incision. I've also been taking it easy on the food, sticking mostly to clear liquids and jello. I was able to help my mom make some quail soup last night in the pressure cooker. OMG did it taste good. That bone broth is just what I needed.

Today I think will be a little bit better. Still some discomfort at my incision, but now it's the gas pain that is bothersome. Thank goodness for gas X.

Over all I'm pleased with my treatment. The staff was really great and really paid attention to detail. They double checked all meds for me when I checked in and even had someone come from pharmacy to talk to me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.