Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help, Major Stomach Issues


MATT1983

Recommended Posts

MATT1983 Rookie

Hello all, It's been a while since I have posted or asked any questions. Recently my wife and I went on vacation. We went to see her family and they understand my gluten-free & DF Celiac Disease. But the problem is that they don't think about all the cross contamination that can occur. We came back home and the day we left I started to feel extremely sick. I'm thinking that there was some cc involved and the bad thing is that we were there for four days. Since being home i have had nothing but a horrible week. I have been very sick. Nothing but laying down. If I get up I get extremely sick. I mean bathroom runs and coming from both ends. If anything makes it threw without coming back up, it just comes out as quickly from the other end. I have only been able to eat Applesauce. That is the only thing I can Stomach. My Question is, Is this normal with celiac disease? Or can it be something else? I don't have insurance and cannot really afford to see the Doctor. I have tried to eat more, but only results with bathroom visits and major stomach bloating/stiff stomach, cramping, etc.

Thank you for anyone's help.

Matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Do you have a fever?

And yes, from what i know, it is.

MATT1983 Rookie

Do you have a fever?

And yes, from what i know, it is.

Not that I have seen/caught yet. My temperature is running between 96.8-97.3.

shadowicewolf Proficient

Keep an eye on it. If it is a virus (i got hit with a nasty one a couple of weeks ago) then it might show up.

As for the stomach issues, at this point i'd say stay on a BRAT diet (bannanas, rice, apple sauce, and toast (or maybe not lol)). Keep drinking water. If you can, i'd also suggest drinking somehting like gatoraide for the vitamins.

GottaSki Mentor

If you don't have a fever, I'd guess it is gluten related. I've had "flu" like symptoms many times...sometimes just a few days, worst was several weeks.

Rest, drink as much water as you can and eat any whole food your stomach can handle. Good old chicken broth soup with vegies is my go to when these "flu" symptoms hit.

Hope you are feeling better very soon.

LauraB0927 Apprentice

I second the gatoraide suggestion - from all the vomiting and D you are having (combined with the fact that you aren't eating too much) you are probably losing tons of electrolytes which will make you feel even worse and do terrible things to your body. Make sure you are having some intake of sodium, potassium, magnesium, calcium, and phosphate. If you start to notice changes like confusion or altered states of consciousness, get to the emergency room ASAP - it means you lost too many electrolytes. Can you tolerate things like rice and chicken broth? They help me when I get glutened.....feel better!!

MATT1983 Rookie

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

MATT1983 Rookie

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

I never thought of that. I was just trying to follow docs orders to hopefully get better. lol I notice sometimes the vitamins he has me taking make me sick if i don't eat. So that would make sense.

Not sure if this helps but these are the vitamins I take 2xs a Day:

These are all Wal-Mart or SAMS brand.

Vitamin C -1

Multi Vitamin -1

Fish Oil -2

Fiber Pill -3

Anti Acid 2- 150mg

I have two Ulcers also that don't like to help at all. And the meds the doc wants me to take are Extremely Expensive even without Health Ins. The bad thing is I can tell a major diff when I miss all these.

The bad thing is I Want to Sleep So Bad, but for what ever reason, Being Glutened Doesn't help in that. And since I got glutened on vacation I haven't been able to sleep except about 1 -2 hrs. On average, I get about 4hrs of sleep every night. This is not healthy and nothing helps. But thankful I get some sleep. I know that everyone here knows what I mean.

flowerqueen Community Regular

It sounds like cross contamination, but you can't totally rule out bugs etc., I find when I've accidentally been CC'd my stomach can't cope with vitamins as the gut is already damaged. Being in England I don't know what is available where you are to stop you being dehydrated and this is more important than food when you've had such harsh symptoms for so long. Hope you are on the mend soon.

GottaSki Mentor

I agree with Prickly - stop all the supplements for at least a few days - until you are successfully getting food into you. When you feel stronger and are eating with no problem re-introduce them one at a time/no more than one a day - so you'll be able to identify if one sets you back.

GFinDC Veteran

Hi Matt,

It might help to take some probiotics. I suggest trying some deglysternized licorice (DGL) for the ulcers and mastic gum. Antacids are not real helpful for your condition. H.Pylori likes a low acid environment and that just lets it thrive. I take Betaine HCL for my H.Pylori to help kill it. And I sleep on my side that hurts so the stomach acid and DGL washes over the h.Pylori infected area of the stomach. It helps kill the bacteria and keeps the pain at bay.. It may hurt at first but if you can do it for 10 minutes at a time and build up it can help. It is important to keep your stomach acid at a high enough level to kill invading germs. Especially at night before going to bed, try the DGL.

I suggest avoiding sugar and carbs while you are getting over being glutened. Pepto Bismol may help some if your gut is irritated.

joolsjewels Newbie

I am going through the same thing right now. Got cc from a favorite eatery. Boo! Yesteday was the first day i was able to eat solid foods. I spents several days consuming soup,, gatorade, and water. Finally the nastiness has stopped, but i am weak and abdomen is sore. Still just wearing jimjams. I hate that torn up feeling inside.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.