Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Gonna Kill Someone


Bonnie

Recommended Posts

Bonnie Explorer

Sorry guys but I have smoke coming out my ears and need to vent to keep my sanity.

I am sooooo sick of explaining this disease to people. One of my work colleagues - whom I have explained to at great length and in great detail the consequences of me eating gluten - has just suggested I INTRODUCE IT BACK SLOWLY INTO MY DIET and surely the linsoy bread she has is ok - its only got 7.5% wheat in it.

AAAAhhh - I wanted to punch her right in her face. I am not a violent person but come on .......

Are people just really stupid or am I being over-sensitive. Thats it - I'm not explaining it anymore. I am just saying no thanks, don't want any, whatever with no explanation.

I am so angry I'm going to explode. Do they think I'm doing this for fun? :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

No. people really are that stupid. I had one guy stunned b/c he saw me eating shrimp. How can I eat shrimp if I can't eat gluten? What!?! Its depressing....and it has changed my perspective on how intelligent people in general are.

Wandering Hermit Contributor

Boy can I relate. Sad to say but this celiac disease has caused me to crawl back in my shell a bit, so to speak. I just avoid situations where this will come up.

Them: "Want to come to lunch with us today?"

Me: "No, I have some errands I have to run. Thanks"

That is so much easier than explaining why we HAVE to go to PF Changs, etc, and dealing with the ensuing stupidity.

Then I go to the grocery store, get a few things, and sit and eat in the car by myself.

Bonnie Explorer

Shrimp? Ok people really are stupid then. Ha ha.

The same colleague came and plonked half a melon on my desk to apologise.

I was so tempted (just to be evil) to tell her I can't eat it because its got gluten in it. That would have really stumped her and given me revenge. I controlled myself however. :rolleyes:

Bonnie Explorer

Wandering Hermit, I know what you mean.

This disease makes me a bit like a freak.

The other side of the coin is when some people do understand and make a big deal out of going somewhere where you CAN eat. Then I feel really guilty about being such a bother. It embarrasses me.

So much easier just to stay at home. I won't go anywhere anymore.

Wonder if we'll ever get used to it?

nettiebeads Apprentice
Wandering Hermit, I know what you mean. 

This disease makes me a bit like a freak.

The other side of the coin is when some people do understand and make a big deal out of going somewhere where you CAN eat.  Then I feel really guilty about being such a bother.  It embarrasses me.

So much easier just to stay at home.  I won't go anywhere anymore.

Wonder if we'll ever get used to it?

<{POST_SNAPBACK}>

I've resigned myself to it. I don't eat out much, not worth the worry and hassle. Decline lunch invites, eat at my desk, don't bother to explain anymore. I like to give people the benefit of the doubt that maybe they're just trying to be helpful and want to understand, but I'm tired of explaining it so I just don't. It's just a fact of my life and has become routine for me that I'm pretty used to it. You can't wish this away, so why dwell on it? Life goes on...

jenvan Collaborator

Yvonne-

sorry for other's ignorance :( maybe on the bright side we will emerge from this more patient and gentle people :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bonnie Explorer
Yvonne-

sorry for other's ignorance  :(  maybe on the bright side we will emerge from this more patient and gentle people  :P

<{POST_SNAPBACK}>

Hi Jen,

Don't know about that - its my PMS week - so I was ready to rip her head off. Hee hee.

ianm Apprentice

I've come to the sad conclusion that most people really are stupid. So many people just don't get it. But the bright side is that I have had some really great people come into my life once I went gluten free. I have licked a LOT of people out of my life because of their stupidity. But the new people are of such greater intelligence and quality that it more than makes up for the decrease in quantity.

Guest Viola

Eating out is most of the time a big hassle, sometimes embarrassing, sometimes depressing, and the odd time it goes just wonderful and you have a good time with your friends. My real friends simply ask me to pick the restaurant, and not make a big deal of it.

But what I really want to say here is ... There are getting to be more and more of us out there, we need to make an effort to educate these restaurants and keep going out, and most of all, make sure we let the restaurant know when they've done well with the meal. I make a phone call to the manager the next day and ask him or her to pass on my thank you to the cook and serving staff. When you do that you are pretty sure to keep getting a good meal without the embarrassing question and answer part every time. After the first time it is only necessary to order a simple meal and send in your card. We have three restaurants here that now see myself and my hubby coming in and start digging out the clean fry pans, utensils etc. ready to cook :D

fisharefriendsnotfood Apprentice

whoops, double post.

jenvan Collaborator

Yvonne-

What is it about PMS? I keep getting so annoyed at people this week b/c of mine :)

fisharefriendsnotfood Apprentice

Let me share with you an experience I had.

At sleepover camp, I had my gluten-free macaroni when everyone else had the regular one. Here's the transcript:

Girl: Why do you have different food? (Looks at me like I have four heads.)

Me: Um, I can't eat the regular kind. You see, I have lots of allergies. (No sense in getting into it, I hardly even know her.)

Girl: To what?

Me: Wheat and gluten.

Girl: Well, then why can't you have the macaroni?

Me: Uh, WHAT DO YOU THINK MACARONI IS MADE OF???

Girl: Macaroni has wheat? Really?

Me: *Mouth opens in shock from extreme stupidity of this girl* Yes!

There you go.

-Jackie

bluelotus Contributor

I went to a work dinner with my husband and had called the caterer beforehand to check on the food (they said it was ok, but got sick anyway, so much for work-related dinners). When they brought dessert out, the server brought me a fruit plate (no cake for me, obviously). This woman at the table, in a loud/obnoxious voice said that she wanted pineapple too. Then she proceeded to ask me questions about why I got special food -was I on a diet? Me: No, I have an allergy to wheat (easier to say and thought that would be it). Her: You don't need to be on a diet, why are you on a diet?

Omigod!!! That's all I got all night from the lady "why are you on a diet?" as if me eating fruit rather than her cake somehow threatened her. Whatever, get a life!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.