Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Ready For Colonoscopy/endoscopy


KikiB

Recommended Posts

KikiB Explorer

I am scheduled for Tuesday. My instructions say nothing by mouth after midnight. Does that include water? I don't think I can go without water for 12 hours!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Call your GI doctors office and ask the nurse.

KikiB Explorer

Took forever for my doctor's office to call me back. I just wanted to know how everyone else has dealt with this. It's so close, but I'm so tempted to chicken out. The idea of the procedure is kind of freaking me out.

ravenwoodglass Mentor

Sorry I couldn't be more helpful with your original query. It has been awhile since I had mine done and don't remember whether it was allowed or not.

Hopefully the dr's office gave you a clear answer.

Try not to worry about the tests. The prep is not pleasant but the procedures are usually very easy. Most don't remember anything of them except going to sleep and waking up in the recovery room. Just do be sure someone goes with you as you won't be allowed to drive for the rest of the day.

Celiac Mindwarp Community Regular

I was really scared before mine last month but it was fine. Just a few more days it will be out of the way x

GottaSki Mentor

Hi Kiki - water is fine!

The usual instructions say clear liquids and jello fine -- just no red, blue, purple jello! I didn't feel like anything but water during the prep.

Honestly, the colon prep is the worst part of the whole deal. You will likely be given sedation meds - not anesthesia - that will make you sleepy and forget most of the procedure.

The information to be gained is very much worth having them done. If you don't have them done there will be a lot of unanswered questions hanging out there.

Even if the tests end up showing nothing or negative - at least you know any damage to your system was not severe.

You have already passed the most important test - you know your health improves gluten-free - these tests will give you more info and I think that info will be comforting in the months and years to come.

Hang in there - only a few more days and you'll be able to remove gluten completely :)

KikiB Explorer

I was really scared before mine last month but it was fine. Just a few more days it will be out of the way x

Thank you! I'm a little surprised at how nervous I am!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KikiB Explorer

Even if the tests end up showing nothing or negative - at least you know any damage to your system was not severe.

You have already passed the most important test - you know your health improves gluten-free - these tests will give you more info and I think that info will be comforting in the months and years to come.

Hang in there - only a few more days and you'll be able to remove gluten completely :)

Thanks, Lisa! I didn't think I was going to be such a chicken about it. I'm not looking forward to the prep, but I'm also nervous about the procedures. My insurance company approved the anesthetic, so I'll be out, but definitely feeling like a scaredy-cat. :blink:

GottaSki Mentor

You are neither chicken nor scaredy-cat. What rational person would not be nervous about doctors sending cameras into places that are generally better left alone. :blink:

I was the first time, but not any of the subsequent times. Just the unknown getting to you - I'd bet on Wednesday you'll be ready to tell others with similar fears that it really was much easier than you thought it would be.

Just imagine Mushroom waving pom poms, IrishHeart jumping up and down and me doing cartwheels to entertain you as you drift off into la-la land on Tuesday :P

KikiB Explorer

Just imagine Mushroom waving pom poms, IrishHeart jumping up and down and me doing cartwheels to entertain you as you drift off into la-la land on Tuesday :P

That's so sweet, it made me tear up. That's exactly what I'm going to think about! :wub:

nicoleashley Rookie

nothing by mouth after midnight means just that, nothing by mouth after midnight. You can have clear liquids up until midnight. You can only have sips of water to take medication like blood pressure medication if you absolutely need it. Don't worry about becoming dehydrated, they will start an IV and give you fluids as soon as you get to wherever the endoscopy is being done. Good luck.

KikiB Explorer

I had my tests yesterday. Should have results in 10 days or so. I had gluten free chicken soup when I got home, but my stomach has hurt ever since. Still hurts. Is that normal?

GottaSki Mentor

Hmmmm....what type of hurt/pain? One of my endos I felt some discomfort when I ate for a day or so after - not sure but thought it might be where they took samples. Do you know if they took samples from different parts -- like your stomach in addition to small intestine?

KikiB Explorer

Hmmmm....what type of hurt/pain? One of my endos I felt some discomfort when I ate for a day or so after - not sure but thought it might be where they took samples. Do you know if they took samples from different parts -- like your stomach in addition to small intestine?

I do know she took samples from other areas, but I don't know where, although I thought it was the colon. But I don't really know. Maybe that explains it though.

Of course, she told me about the biopsies when I was coming out of the anesthesia -- so no wonder I don't remember!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.