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Will An Endoscopy Show Physical Evidence Of Celiac?

jwblue

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jwblue Apprentice
jwblue
Posted

Will an endoscopy show evidence of Celiac or does the doctor need to take a specimen for lab testing?

I have had two endoscopies for other digestive disorders and am disappointed that the doctor didn't suggest I be tested for Celiac.

Why not since he is down there already?

Now I have to have an endoscopy just for Celiac.

Is it possible the doctor did not see any physical evidence of Celiac and decided a lab test was not necessary?

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Takala Enthusiast
Takala
Posted

Yes, it's possible they didn't see it. It may not be visible to the naked eye or the damage can be patchy, and they did not look in an area which had the damage closely enough. For celiac, they are supposed to look in the area where the stomach and intestines meet, the duodenum. They are supposed to take enough samples for biopsy that they get a good representation of the status of the area.

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Skysmom03 Newbie
Skysmom03
Posted

It also may not have been something they were looking for at the time. It can't be diagnosed with the naked eye.

psawyer Proficient
psawyer
Posted

Is it possible the doctor did not see any physical evidence of Celiac and decided a lab test was not necessary?

In a word, yes. Only in severe cases is the damage visible to the naked eye. Usually it is not. Marsh I and II are not visible, but are definitive diagnostics. You have to be well into the March III stages before it may be visible. Marsh IV is total destruction of the villi and will be visible to a trained eye (been there).

jwblue Apprentice
jwblue
Posted
  • Author

In a word, yes. Only in severe cases is the damage visible to the naked eye. Usually it is not. Marsh I and II are not visible, but are definitive diagnostics. You have to be well into the March III stages before it may be visible. Marsh IV is total destruction of the villi and will be visible to a trained eye (been there).

Did you have any symptoms with Marsh IV?

1desperateladysaved Proficient
1desperateladysaved
Posted

Did you have any symptoms with Marsh IV?

Additional questions for PSawyer :

Did it heal well?

How long did you have symptoms?

psawyer Proficient
psawyer
Posted

I had severe symptoms for years prior to my diagnosis: diarrhea, nausea, vomiting, cold sweats, anemia, and others.

I saw a significant improvement within six weeks, but it was more like six months to feel normal. A follow-up five years later showed normal villi. In other words, complete healing of the intestine on a strict gluten-free diet.

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Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Peter

What amazing healing. It is so great to hear others stories. No wonder you are such a good advocate :)

love2travel Mentor
love2travel
Posted

Are you talking endoscopy or colonoscopy?? Two different things, two different ends. :)

SMDBill Apprentice
SMDBill
Posted

I just had my endoscopy yesterday and one of the questions I asked in advance was whether damage would be visible or not. He said most times the damage is only microscopic so they do their best to determine where to sample/biopsy and they use multiple locations just for that reason. Mine was ugly. I had many visible spots on the printout of some photos he took while in there and for now he just diagnosed as erosive gastritis for the damage to my stomach lining (way too much ibuprofen over the last few years - daily - due to celiac-induced headaches) and duodenitis for the damage seen to the intestine/duodenem (sp?).

He was surprised to see so much damage visibly, but even invisible damage is of great concern so either way it is important that they take multiple samples.

Edit: Of note to anyone who reads this and has not been diagnosed, I've been gluten free for 2 months now and my endoscopy results were still very visible. Not everyone will see the same results, obviously, but any doubters can rest assured that even if you are gluten free for some time, they may still be able to medically diagnose you accurately from the endoscopy. I don't have blood results back yet, but he seems certain they'll also agree with the endoscopy just due to the severity of the damage. Moral of the story...if you want to know and have self-diagnosed recently...GO GET TESTED! You may be pleased to have a medical confirmation and a plan to heal your blood, bone, thyroid or whatever issues you have that need more than supplements and gluten-free diet.

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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