Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Abdomen Related Symptoms Did You Have?


guest134

Recommended Posts

guest134 Apprentice

1- Where in the abdomen was your pain located?

2- How long after a meal would the pain come?

3- Would you get pains when eating non gluten food?

4-How would you describe the pain? (sharp and stabbing, dull, achy)

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

6- Was the pain consistent like daily or would it come and go?

What other symptoms came after ingesting gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

1- Where in the abdomen was your pain located?

2- How long after a meal would the pain come?

3- Would you get pains when eating non gluten food?

4-How would you describe the pain? (sharp and stabbing, dull, achy)

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

6- Was the pain consistent like daily or would it come and go?

What other symptoms came after ingesting gluten?

As you may already know, there are over 300 symptoms of Celiac. We all respond differently., oddly enough.

I, myself have had no digestive pain, as others have. I (after seven years gluten free), get a wave of nausia, 24 hours after an exposure. Until you heal, all foods may be problematic.

In the initial diet, all foods can be problomatic.Begining a food diary can be helpful.

guest134 Apprentice

As you may already know, there are over 300 symptoms of Celiac. We all respond differently., oddly enough.

I, myself have had no digestive pain, as others have. I (after seven years gluten free), get a wave of nausia, 24 hours after an exposure. Until you heal, all foods may be problematic.

In the initial diet, all foods can be problomatic.Begining a food diary can be helpful.

With no digestive issues what made you think you had celiacs?

SMDBill Apprentice

Mine were from right of center of my upper abdomen, somewhere slightly below my ribcage and they extended all the way down to my waist. When I was eating gluten the pain didn't seem to come and go. It was just constant. The pain was an ache, almost flu-like but not quite that strong. The pains weren't sharp at all, but sometimes they were "crampy" and would cause me to just lie and kinda curl up with my knees pulled up, trying anything to make the pain less severe.

I would use the restroom 5-8 times per day while eating a normal gluten-filled diet. Post-gluten-free I now go once or twice daily. I no longer have constant D either. That went away rather quickly when I went gluten-free (2-4 days).

I have only been glutened one time so I'm rather inexperienced so far, but I can tell you that the stomach pain returned within hours of ingesting gluten, the brain fog returned, my skin dried out again (elbows and feet mostly), and I had alternating D, C, D again. It took the past 2 weeks to be free of any signs of it having happened.

nvsmom Community Regular

This is my personal experience. I was an undiagnosed celiac for decades:

1- Where in the abdomen was your pain located?

At the front just below the ribs. Often it encompassed my entire abdomin. It's been like that since childhood.

2- How long after a meal would the pain come?

15-30 minutes. Often during the meal.

3- Would you get pains when eating non gluten food?

With milk, yes.

4-How would you describe the pain? (sharp and stabbing, dull, achy)

The initial pain was raw. It was definitely NOT from overeating. The bloated pain was different again and I would want to push back on my belly. It was wasn't stabbing like a sciatic pain but it was just dull and achey either. Raw pain, like someone rubbed my insides with something abrassive.

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

Every day or 3. I had C. Ingesting gluten did not cause me to go to the bathroom, rather the opposite.

6- Was the pain consistent like daily or would it come and go?

It came and went throughout the day. I got used to stomach aches since I'd had them for over 35 years. Not having boloat or pain was more noticeable that having it beacuse that was my normal. I don't remember as many stomach aches in my late teens and early twenties, but I can't be sure.

What other symptoms came after ingesting gluten?

I didn't realize until after I was gluten-free that my migraines were caused by gluten but was seperated from the ingestion by hours. I used to have migraine 2-3 weeks of the month and now I'm down to just a couple days a month. Apparently it kept my hair thin too. I've only been gluten-free for 4 month so I'm not sure what other symptoms will be relieved as my health improves.

guest134 Apprentice

Wow Nicole it sounds like you really went through hell to get your diagnosis. What were the doctors telling you for all those years? Let me guess... IBS.

I know someone who has been having horrible bowel issues for years, he went two weeks without going to the washroom, TWO WHOLE WEEKS and the doctors say IBS. Of course they did not actually do any exclusions to diagnose the syndrome of exclusions.

nvsmom Community Regular

Wow Nicole it sounds like you really went through hell to get your diagnosis. What were the doctors telling you for all those years? Let me guess... IBS.

I know someone who has been having horrible bowel issues for years, he went two weeks without going to the washroom, TWO WHOLE WEEKS and the doctors say IBS. Of course they did not actually do any exclusions to diagnose the syndrome of exclusions.

Not really. I went to the doctor as a child and they essentially told me that that is just the way I was. I was raised with the mindset that you don't question the doctor so I never questioned it again... that and the "suck it up" attitude of my family. I finally stumbled across celiac when researching stomach and growth issues for my son, and after reading Wheat Belly (I like to read health and fitness books) and a friend told me I should test. I tried a home Biocard test, it was positive and then I went and told my doctor who retested me. So really, I've only seen a doctor twice for my life for stomach issues if you don't count the follow up visit where I got my official diagnosis.

I also found my thyroid problem but requesting specific tests... I don't have much use for doctors now a days unless I need a specific medicine or treatment. :rolleyes:

Two weeks, eh? Ouch. I would go a week without, which was uncomfortable, but I was usually bloated (as an adult) anyways.... and when you've always been that way, you may not question it as much.... at least in my case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.