Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Abdomen Related Symptoms Did You Have?


guest134

Recommended Posts

guest134 Apprentice

1- Where in the abdomen was your pain located?

2- How long after a meal would the pain come?

3- Would you get pains when eating non gluten food?

4-How would you describe the pain? (sharp and stabbing, dull, achy)

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

6- Was the pain consistent like daily or would it come and go?

What other symptoms came after ingesting gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

1- Where in the abdomen was your pain located?

2- How long after a meal would the pain come?

3- Would you get pains when eating non gluten food?

4-How would you describe the pain? (sharp and stabbing, dull, achy)

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

6- Was the pain consistent like daily or would it come and go?

What other symptoms came after ingesting gluten?

As you may already know, there are over 300 symptoms of Celiac. We all respond differently., oddly enough.

I, myself have had no digestive pain, as others have. I (after seven years gluten free), get a wave of nausia, 24 hours after an exposure. Until you heal, all foods may be problematic.

In the initial diet, all foods can be problomatic.Begining a food diary can be helpful.

guest134 Apprentice

As you may already know, there are over 300 symptoms of Celiac. We all respond differently., oddly enough.

I, myself have had no digestive pain, as others have. I (after seven years gluten free), get a wave of nausia, 24 hours after an exposure. Until you heal, all foods may be problematic.

In the initial diet, all foods can be problomatic.Begining a food diary can be helpful.

With no digestive issues what made you think you had celiacs?

SMDBill Apprentice

Mine were from right of center of my upper abdomen, somewhere slightly below my ribcage and they extended all the way down to my waist. When I was eating gluten the pain didn't seem to come and go. It was just constant. The pain was an ache, almost flu-like but not quite that strong. The pains weren't sharp at all, but sometimes they were "crampy" and would cause me to just lie and kinda curl up with my knees pulled up, trying anything to make the pain less severe.

I would use the restroom 5-8 times per day while eating a normal gluten-filled diet. Post-gluten-free I now go once or twice daily. I no longer have constant D either. That went away rather quickly when I went gluten-free (2-4 days).

I have only been glutened one time so I'm rather inexperienced so far, but I can tell you that the stomach pain returned within hours of ingesting gluten, the brain fog returned, my skin dried out again (elbows and feet mostly), and I had alternating D, C, D again. It took the past 2 weeks to be free of any signs of it having happened.

nvsmom Community Regular

This is my personal experience. I was an undiagnosed celiac for decades:

1- Where in the abdomen was your pain located?

At the front just below the ribs. Often it encompassed my entire abdomin. It's been like that since childhood.

2- How long after a meal would the pain come?

15-30 minutes. Often during the meal.

3- Would you get pains when eating non gluten food?

With milk, yes.

4-How would you describe the pain? (sharp and stabbing, dull, achy)

The initial pain was raw. It was definitely NOT from overeating. The bloated pain was different again and I would want to push back on my belly. It was wasn't stabbing like a sciatic pain but it was just dull and achey either. Raw pain, like someone rubbed my insides with something abrassive.

5- How often did you go to the washroom? Would you need to go soon after ingesting gluten?

Every day or 3. I had C. Ingesting gluten did not cause me to go to the bathroom, rather the opposite.

6- Was the pain consistent like daily or would it come and go?

It came and went throughout the day. I got used to stomach aches since I'd had them for over 35 years. Not having boloat or pain was more noticeable that having it beacuse that was my normal. I don't remember as many stomach aches in my late teens and early twenties, but I can't be sure.

What other symptoms came after ingesting gluten?

I didn't realize until after I was gluten-free that my migraines were caused by gluten but was seperated from the ingestion by hours. I used to have migraine 2-3 weeks of the month and now I'm down to just a couple days a month. Apparently it kept my hair thin too. I've only been gluten-free for 4 month so I'm not sure what other symptoms will be relieved as my health improves.

guest134 Apprentice

Wow Nicole it sounds like you really went through hell to get your diagnosis. What were the doctors telling you for all those years? Let me guess... IBS.

I know someone who has been having horrible bowel issues for years, he went two weeks without going to the washroom, TWO WHOLE WEEKS and the doctors say IBS. Of course they did not actually do any exclusions to diagnose the syndrome of exclusions.

nvsmom Community Regular

Wow Nicole it sounds like you really went through hell to get your diagnosis. What were the doctors telling you for all those years? Let me guess... IBS.

I know someone who has been having horrible bowel issues for years, he went two weeks without going to the washroom, TWO WHOLE WEEKS and the doctors say IBS. Of course they did not actually do any exclusions to diagnose the syndrome of exclusions.

Not really. I went to the doctor as a child and they essentially told me that that is just the way I was. I was raised with the mindset that you don't question the doctor so I never questioned it again... that and the "suck it up" attitude of my family. I finally stumbled across celiac when researching stomach and growth issues for my son, and after reading Wheat Belly (I like to read health and fitness books) and a friend told me I should test. I tried a home Biocard test, it was positive and then I went and told my doctor who retested me. So really, I've only seen a doctor twice for my life for stomach issues if you don't count the follow up visit where I got my official diagnosis.

I also found my thyroid problem but requesting specific tests... I don't have much use for doctors now a days unless I need a specific medicine or treatment. :rolleyes:

Two weeks, eh? Ouch. I would go a week without, which was uncomfortable, but I was usually bloated (as an adult) anyways.... and when you've always been that way, you may not question it as much.... at least in my case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.