Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?


KikiB

Recommended Posts

KikiB Explorer

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Soy can cause different symptoms in each person. Yours can be completely different from mine.

Bubba's Mom Enthusiast

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

KikiB Explorer

Thanks! It makes me nauseated, too, and makes my head foggy. I am keeping a food journal.

Good advice about GMO. I didn't realize soy was a part of that. It's so frustrating that California just voted down labeling GMO foods. Also, I was shopping for flours yesterday and it seemed that most of them contained soy lechtin. Ugh.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

cahill Collaborator

Soy is EVIL ! :ph34r:

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

KikiB Explorer

Vegetable oil can contain soy and not include it on the label?

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

cahill Collaborator

Vegetable oil can contain soy and not include it on the label?

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time eliminating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KikiB Explorer

I discovered it was in tuna after tuna started making me sick and I was trying to figure out why. Before that I never knew there was soy in tuna.

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time elimating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:

Lady Eowyn Apprentice

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

GFinDC Veteran

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

KikiB Explorer

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Bubba's Mom Enthusiast

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

GFinDC Veteran

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

KikiB Explorer

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

AnnJay Apprentice

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

KikiB Explorer

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

Do you have a problem with soy lechtin as well?

Pegleg84 Collaborator

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

KikiB Explorer

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

CarolinaKip Community Regular

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

CarolinaKip Community Regular

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

This is how I figured out my soy problem! I didn't use a certain lip balm for two days and felt so much better!

KikiB Explorer

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

Thanks for letting me know. It's interesting to me to know how it affects others.

ncdave Apprentice

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

GFinDC Veteran

Good to

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.