Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?


KikiB

Recommended Posts

KikiB Explorer

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Soy can cause different symptoms in each person. Yours can be completely different from mine.

Bubba's Mom Enthusiast

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

KikiB Explorer

Thanks! It makes me nauseated, too, and makes my head foggy. I am keeping a food journal.

Good advice about GMO. I didn't realize soy was a part of that. It's so frustrating that California just voted down labeling GMO foods. Also, I was shopping for flours yesterday and it seemed that most of them contained soy lechtin. Ugh.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

cahill Collaborator

Soy is EVIL ! :ph34r:

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

KikiB Explorer

Vegetable oil can contain soy and not include it on the label?

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

cahill Collaborator

Vegetable oil can contain soy and not include it on the label?

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time eliminating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KikiB Explorer

I discovered it was in tuna after tuna started making me sick and I was trying to figure out why. Before that I never knew there was soy in tuna.

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time elimating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:

Lady Eowyn Apprentice

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

GFinDC Veteran

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

KikiB Explorer

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Bubba's Mom Enthusiast

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

GFinDC Veteran

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

KikiB Explorer

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

AnnJay Apprentice

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

KikiB Explorer

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

Do you have a problem with soy lechtin as well?

Pegleg84 Collaborator

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

KikiB Explorer

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

CarolinaKip Community Regular

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

CarolinaKip Community Regular

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

This is how I figured out my soy problem! I didn't use a certain lip balm for two days and felt so much better!

KikiB Explorer

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

Thanks for letting me know. It's interesting to me to know how it affects others.

ncdave Apprentice

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

GFinDC Veteran

Good to

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

    3. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    4. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

    5. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748

    Greg R.
    Newest Member
    Greg R.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.