Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Cocoa Causing Stomach Problems?


megansmommy

Recommended Posts

megansmommy Newbie

Can anyone give me any insight to hot cocoa causing a celiac reaction?

My daughter has celiac disease, diagnosed 2 years ago. We follow a very strict gluten free diet.

For the last week she has been having a lot of stomach problems, even though we are certain everything

she is eating is gluten free. Twice this weekend she had a bad reaction immediately after drinking hot cocoa,

which the label says is gluten free. She has drank this brand in the past and not had any problems.

Could it be the milk used to make the cocoa? She drinks milk all the time with no issues.

Its so frustrating to see her get sick, and not know the cause. Is there anything anyone can suggest

we can do to try to figure out what is making her sick?

Thanks for the help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txgal748 Apprentice

It could be the cocoa was manufactured in a facility that processes wheat. I was looking at the popular hot cocoa products at the grocery store and none of them are gluten-free. I figure I will have to make hot cocoa from scratch. Hope you find a solution.

shadowicewolf Proficient

I agree with the idea that the cocoa being cc'd by the factory. If she has hand no issues prior to this with milk, then i believe she's fine with it.

megansmommy Newbie

The cocoa mix was Swiss Miss, it says gluten free on the package. She has drank this brand for the last 2 years with no problems.

She drank it 3 times over the last 3 days, twice she got sick within 30 minutes of drinking it, the other time she was fine?

Lisa Mentor

Sometimes we have to remind ourselves to think outside of the box. :) Chocolate and High Frutose Corn Syrup give me terrible reflux within 15-20 minutes, with chocolate being the worst as far as symptoms.

It's not gluten related, yet bad enough that I try to avoid it as much as possible.

I'm not sure if this is your situation, but....

OH WOW...And a great welcome to you! :rolleyes:

  • 6 years later...
Ballerina-1020 Newbie

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

ch88 Collaborator

Can you drink milk fine?

Milk tolerance can change with time or after a gluten exposure. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
7 hours ago, Ballerina_1020 said:

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

Many Celiac have milk issues at least at first, your villi produce the enzymes to break down milk. Celiac damages and flattens them thus limiting enzyme production and often causing forms of lactose intolerance. There is also the sugars in it to consider, and that chocolate can be harsh sometimes.

Suggestion to find out, get some Hershey Cocoa and Sweetener of choice (like swerve for no sugar, or real plain cane sugar) and some almond milk like almondbreeeze. Make it using the almond milk (heat 1 cup 1:30 in the microwave) stir in 2-3tsp cocoa, 2table spoons sugar, pinch of salt, and 1 cup milk, They say to add 1/4tsp vanilla but try without first to be sure.

Ballerina-1020 Newbie

Ennis_TX, 

Thank you so much for all of the info & the hot cocoa recipe. I will definitely try it. I really like it & am not willing to try the Swiss Miss again. I had cereal with milk a few days ago & it didn't seem to bother me. Does heating milk change it? 

 

  • 2 weeks later...
selectivefocus Enthusiast

I react to Swiss MIss. It has whey in it I believe, and also corn, but this is not a gluten reaction, even though it can seem that way. Has she been tested for the top 8 allergens since going gluten free? She likely has other intolerances. Cocoa also gives me migraines. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.