Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Cocoa Causing Stomach Problems?


megansmommy

Recommended Posts

megansmommy Newbie

Can anyone give me any insight to hot cocoa causing a celiac reaction?

My daughter has celiac disease, diagnosed 2 years ago. We follow a very strict gluten free diet.

For the last week she has been having a lot of stomach problems, even though we are certain everything

she is eating is gluten free. Twice this weekend she had a bad reaction immediately after drinking hot cocoa,

which the label says is gluten free. She has drank this brand in the past and not had any problems.

Could it be the milk used to make the cocoa? She drinks milk all the time with no issues.

Its so frustrating to see her get sick, and not know the cause. Is there anything anyone can suggest

we can do to try to figure out what is making her sick?

Thanks for the help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txgal748 Apprentice

It could be the cocoa was manufactured in a facility that processes wheat. I was looking at the popular hot cocoa products at the grocery store and none of them are gluten-free. I figure I will have to make hot cocoa from scratch. Hope you find a solution.

shadowicewolf Proficient

I agree with the idea that the cocoa being cc'd by the factory. If she has hand no issues prior to this with milk, then i believe she's fine with it.

megansmommy Newbie

The cocoa mix was Swiss Miss, it says gluten free on the package. She has drank this brand for the last 2 years with no problems.

She drank it 3 times over the last 3 days, twice she got sick within 30 minutes of drinking it, the other time she was fine?

Lisa Mentor

Sometimes we have to remind ourselves to think outside of the box. :) Chocolate and High Frutose Corn Syrup give me terrible reflux within 15-20 minutes, with chocolate being the worst as far as symptoms.

It's not gluten related, yet bad enough that I try to avoid it as much as possible.

I'm not sure if this is your situation, but....

OH WOW...And a great welcome to you! :rolleyes:

  • 6 years later...
Ballerina-1020 Newbie

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

ch88 Collaborator

Can you drink milk fine?

Milk tolerance can change with time or after a gluten exposure. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
7 hours ago, Ballerina_1020 said:

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

Many Celiac have milk issues at least at first, your villi produce the enzymes to break down milk. Celiac damages and flattens them thus limiting enzyme production and often causing forms of lactose intolerance. There is also the sugars in it to consider, and that chocolate can be harsh sometimes.

Suggestion to find out, get some Hershey Cocoa and Sweetener of choice (like swerve for no sugar, or real plain cane sugar) and some almond milk like almondbreeeze. Make it using the almond milk (heat 1 cup 1:30 in the microwave) stir in 2-3tsp cocoa, 2table spoons sugar, pinch of salt, and 1 cup milk, They say to add 1/4tsp vanilla but try without first to be sure.

Ballerina-1020 Newbie

Ennis_TX, 

Thank you so much for all of the info & the hot cocoa recipe. I will definitely try it. I really like it & am not willing to try the Swiss Miss again. I had cereal with milk a few days ago & it didn't seem to bother me. Does heating milk change it? 

 

  • 2 weeks later...
selectivefocus Enthusiast

I react to Swiss MIss. It has whey in it I believe, and also corn, but this is not a gluten reaction, even though it can seem that way. Has she been tested for the top 8 allergens since going gluten free? She likely has other intolerances. Cocoa also gives me migraines. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748

    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.