Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Cocoa Causing Stomach Problems?

megansmommy

By megansmommy
in Coping with Celiac Disease

 Share

Recommended Posts

megansmommy Newbie
megansmommy
Posted

Can anyone give me any insight to hot cocoa causing a celiac reaction?

My daughter has celiac disease, diagnosed 2 years ago. We follow a very strict gluten free diet.

For the last week she has been having a lot of stomach problems, even though we are certain everything

she is eating is gluten free. Twice this weekend she had a bad reaction immediately after drinking hot cocoa,

which the label says is gluten free. She has drank this brand in the past and not had any problems.

Could it be the milk used to make the cocoa? She drinks milk all the time with no issues.

Its so frustrating to see her get sick, and not know the cause. Is there anything anyone can suggest

we can do to try to figure out what is making her sick?

Thanks for the help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txgal748 Apprentice
txgal748
Posted

It could be the cocoa was manufactured in a facility that processes wheat. I was looking at the popular hot cocoa products at the grocery store and none of them are gluten-free. I figure I will have to make hot cocoa from scratch. Hope you find a solution.

shadowicewolf Proficient
shadowicewolf
Posted

I agree with the idea that the cocoa being cc'd by the factory. If she has hand no issues prior to this with milk, then i believe she's fine with it.

megansmommy Newbie
megansmommy
Posted
  • Author

The cocoa mix was Swiss Miss, it says gluten free on the package. She has drank this brand for the last 2 years with no problems.

She drank it 3 times over the last 3 days, twice she got sick within 30 minutes of drinking it, the other time she was fine?

Lisa Mentor
Lisa
Posted

Sometimes we have to remind ourselves to think outside of the box. :) Chocolate and High Frutose Corn Syrup give me terrible reflux within 15-20 minutes, with chocolate being the worst as far as symptoms.

It's not gluten related, yet bad enough that I try to avoid it as much as possible.

I'm not sure if this is your situation, but....

OH WOW...And a great welcome to you! :rolleyes:

  • 6 years later...
Ballerina-1020 Newbie
Ballerina-1020
Posted

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

ch88 Collaborator
ch88
Posted

Can you drink milk fine?

Milk tolerance can change with time or after a gluten exposure. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted
7 hours ago, Ballerina_1020 said:

Having a reaction after drinking Swiss Miss hot cocoa that I made with milk. I was diagnosed with celiac disease this Summer. This is the first time that I've had hot cocoa since being diagnosed. It doesn't contain wheat. Why am I reacting? 

Many Celiac have milk issues at least at first, your villi produce the enzymes to break down milk. Celiac damages and flattens them thus limiting enzyme production and often causing forms of lactose intolerance. There is also the sugars in it to consider, and that chocolate can be harsh sometimes.

Suggestion to find out, get some Hershey Cocoa and Sweetener of choice (like swerve for no sugar, or real plain cane sugar) and some almond milk like almondbreeeze. Make it using the almond milk (heat 1 cup 1:30 in the microwave) stir in 2-3tsp cocoa, 2table spoons sugar, pinch of salt, and 1 cup milk, They say to add 1/4tsp vanilla but try without first to be sure.

Ballerina-1020 Newbie
Ballerina-1020
Posted

Ennis_TX, 

Thank you so much for all of the info & the hot cocoa recipe. I will definitely try it. I really like it & am not willing to try the Swiss Miss again. I had cereal with milk a few days ago & it didn't seem to bother me. Does heating milk change it? 

 

  • 2 weeks later...
selectivefocus Enthusiast
selectivefocus
Posted

I react to Swiss MIss. It has whey in it I believe, and also corn, but this is not a gluten reaction, even though it can seem that way. Has she been tested for the top 8 allergens since going gluten free? She likely has other intolerances. Cocoa also gives me migraines. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.