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Daisymouse

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Daisymouse Newbie
Daisymouse
Posted

My daughter had her endoscopy (I asked last month if it was needed). It came back postive for Celiac. We started our gluten-free journey on Friday. I am doing it with her because even with my blood work coming back negative, I think I may have it. I also have thyroid and sjogrens and hope to see an improvement there.

She is doing great. We have been enjoying our gluten-free foods, and she is so excited to still be able to have Eggnog. Our first non family outing is on Saturday at Barnes and Noble. The school is having a fundraiser. They are making school colored frappachinos. She was disappointed that she won't be able to have one, but I promised something "good" for her in its place.

She has had a sloshy belly, the first symptom that started me researching and realizing everything else made sense too. After only 4 days he sloshing is nearly gone. She is so excited about that. Now we are hoping that the constipation improves soon as well as weight gain. I have noticed an improvement in her appetite and she has even gone back for seconds for dinner the last two nights.

Our first b-day party will be on Dec 8th. It is at a really cool pin ball place so hoping that distracts from what she can't have. But as I just read the other posts about the cupcakes, I will have one in hand for her. Yes, it seems overwhelming at times, like in the grocery store. But I do love the options. It seems it is all about mind set. I just have to think about what we CAN have rather than focusing on what we can't :-)

~Missy

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Jestgar Rising Star
Jestgar
Posted

I'm glad that it's all going well so far, and also that you have each other for support. :)

Thanks for sharing good news!

GottaSki Mentor
GottaSki
Posted

This is great news -- glad you both have the opportunity to heal together!

gluten-free treats are important during the transitions for kids -- both young and old ;)

Let us know if you'd like to replicate something -- there are a lot of members that can help.

Congratulations on the great start :)

mushroom Proficient
mushroom
Posted

Well-done, mom!! Both for your good attitude towards the change, and for realizing that you might benefit from it too, with your two AI diseases.

Yes, the rewards and treats are important, even more important, for celiac children and always make sure you have something in your purse for her if she gets the munchies :)

kb27 Apprentice
kb27
Posted

Good luck with your gluten-free journey!

Someone on this board pointed out that the University of Chicago celiac center offers care packages to newly diagnosed celiacs, including kids, for free. We ordered one for my son, and he was so thrilled when it came. In addition to samples, it also had a shopping guide and copies of a few gluten-free/allergen-free magazines (which I've used more than him, but he was pretty excited by the gluten-free pizza crust mixes).

Just thought I'd pass it on: Open Original Shared Link

mamaupupup Contributor
mamaupupup
Posted

:) You are doing all the best things--most of all positioning this so well and focusing on the "can." We have cousins with Celiac who are just about to be teenagers...their mom says, "Having Celiac and having young children say "no" to things that are bad for their bodies also trains them well for things they should say "no" to later (like drugs and alcohol)." I think in some ways we are "lucky" to be able to teach our kids about their bodies at such a young age!

I love the UofC gift basket idea...I actually made our own based on theirs--it was super-fun!

Also, I have gotten really good at baking and decorating beautiful cupcakes--so good that I offer to bake birthday cake or cupcakes for the whole party and I'm often successful in making all the treats :) then everyone feels super-included. (And I am otherwise a middle-of-the-pack cook!). Something for the future for you perhaps :)

BTW--I got diagnosed with Celiac after my kiddos got diagnosed...interesting it happens in that order so often...

Congratulations and thinking of you!

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