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Need Some Help - In Pain And Discouraged.

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

Back in the beginning of August, I saw a gyn. and she told me that since I had mucus with my stool and mucus on it's on after a stool that I just HAD to have ibs and not celiac. I was tested for celiac before and my test was inconclusive b/c I wasn't eating gluten at the time. I was diagnosed on my symptoms and improvement on the gluten free diet.

Anyway, to make a long story short, I went on this ibs diet that the gyn gave me. It basically involved a bunch of gluten like noodles and breads and plain and bland foods. I was ok and I use ok lightly for a few weeks but then I started having horrible knife stabbing low abdominal pain, cramps, gas and d mixed with c. and a lot of mucus. I sometimes will get mucus discharge on it's own when I have the terrible lower gut pain. I was getting migraines and bad joint pain and muscle weakness.

I went to another doctor for a lupus test b/c my Grandma died from lupus. I was getting night sweats and running a low grade fever for a few weeks. They ran my blood work and it all came back fine with the exception of elevated liver enzymes.

I went back on the gluten free diet last week on Thursday. My joint pain, headaches and muscle pain is gone. The cold sores on my lips have cleared up and I have a lot more energy. The only thing that is persisting is the gut pain and the mucus discharge from the rectum. It hurts pretty badly.

Anyone have any advice for me? I am so sick of being in pain and now I am worried about my liver enzymes.

Thanks - MO

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kareng Grand Master
kareng
Posted

Hey Mo! Looks like you have your answer! You are having great improvement with the gluten-free diet.

It is possible to have IBS and Celiac. The way I understand " real" IBS ( not the " I Be Stumped version") is that the large intestine spasms causing it not to work properly. I would wait before trying any of those meds tho. I bet this mucous will go away with a gluten free diet. I'm sure the stress of moving to a new place didn't help either.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Hey Mo! Looks like you have your answer! You are having great improvement with the gluten-free diet.

It is possible to have IBS and Celiac. The way I understand " real" IBS ( not the " I Be Stumped version") is that the large intestine spasms causing it not to work properly. I would wait before trying any of those meds tho. I bet this mucous will go away with a gluten free diet. I'm sure the stress of moving to a new place didn't help either.

Thanks Karen. I really hope that the mucus goes away b/c I can't stand it. The mix of constantly running the the bathroom thinking that I have to go and all I get is mucus and the elevated liver enzymes is ticking me off.

Moving did not help at all. It's pretty lonely here. My husband is working all the time and we don't know anyone. We left our house that I just loved and now we are in a rental townhome and since I am not feeling well at all, it's just making me depressed.

shadowicewolf Proficient
shadowicewolf
Posted

IBS is a symptom for a lot of conditions, celiac included.

i don't doubt that you have celiac or at the very least NCGI (both are sooo similar, with the exception of gut damage). If gluten free works for ya, go for it.

  • 2 weeks later...
L.J. Rookie
L.J.
Posted

I have had mucous, and other things,,((((too much to say here))) :D But, I found that if you are having troubles...and they get a bit better...You are on to a *good thing*...gluten-free is one of them........ So many problems with gut problems--but try gluten-free one step at a time...You will be amazed in time....(A very smart gluten-free Forum Friend said it can take 6 - 12 *MONTHS* before you see a significant difference!...\

Quite honestly, I freeeeeeeeeeeked out at this..... but it has been 6 months for me......I am *much Better ya see*? :D

So haaaanng in there............. It gets easier......and ya feel feel *Better* in some time............. (Honestly, I did not realize how much better I felt until my family confirmed it! (It's true) One small step at a time, OK? One small gluten-free bite at a time... :lol: Tell me how you are doing, OK? ;)

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