Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Wednesday...worrying About Fasting!advice Anyone?

Sarahsmile416

Recommended Posts

Sarahsmile416 Apprentice
Sarahsmile416
Posted

As stated in the title, my endoscopy is coming up on Wednesday and though it may sound strange, I am more worried about the fasting aspect of it than the endoscopy itself. I have Type 1 Diabetes and am on the pump and often get hypoglycemic when I wake up...and that's with being able to eat a 10pm snack. I don't know what I am going to do now with not being able to eat after 8! I am thinking of maybe getting one of those protein shakes or something but am not sure if its allowed. It's such a fine line because I don't want to get hypoglycemic because that would mean rescheduling this, but I also don't want to have a 300 blood sugar or even 250+ because then they won't do the procedure either.

Anyone who has diabetes have any advice? Or even those prone to hypoglycemia? What did you do? Any help or advice would be appreciated !!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

My husband isn't on a pump, he does injections but it isn't much of a difference besides he has to do math. He also has a tendency to wake up hypoglycemic and had surgery about 5 years ago. We were quite concerned, although they didn't say they would reschedule if he were high. We had spent some time talking to the doctor and hospital staff about it before going in and they said better high than low and to eat a healthy meal the night before and to have a good protein rich snack at the cutoff time to help keep him level. Since every diabetic reacts differently to different foods, you'll know what you do best with. I like to give him dairy at bedtime without a shot to account for it which lets him be a little but not too high overnight and wake up level. We've tried everything with his long acting insulin and dose it now at lunch time but still have this problem. On the day before surgery he also did half a dose of his long acting, again not something he did without doctor's advice and they were prepared to operate with him high. Of course, he could just wake up in the morning and take a shot. My niece has a pump and I'm not sure but seem to remember her being able to pretty much correct in the same way. If you wake up high, can you correct just a little with a pump?

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

Hello Adalaide -

Thanks for the response and the advice as per what your husband did- I appreciate it. The milk is especially a good idea - thanks for the tip!

Yes, I can correct with the pump but I am a little afraid of over -correcting - even with the pump, with my sensitivity to insulin especially in the AM, I am a little worried I might end up hypoglycemic.

Actually I had read somewhere that people who have Celiac (pre diagnosis) are more prone to hypoglycemia because their bodies do not fully absorb gluten. Not sure if that's true or not, but I did find it interesting

Adalaide Mentor
Adalaide
Posted

I'm pretty sure my husband's hypoglycemic episodes are due to undiagnosed celiac. Between his own symptoms and his family's medical history there is no reason for the lot of them not to be gluten free. But yes, it does make perfect sense. You eat something, correct for it but are incapable of absorbing it entirely because your villi are useless and BAM! low.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

I'm pretty sure my husband's hypoglycemic episodes are due to undiagnosed celiac. Between his own symptoms and his family's medical history there is no reason for the lot of them not to be gluten free. But yes, it does make perfect sense. You eat something, correct for it but are incapable of absorbing it entirely because your villi are useless and BAM! low.

Is Celiac considered to be genetic as well? Not sure what kind of family medical history tends to point to Celiac?

Yes, the link between Celiac and hypoglycemic episodes made sense to me as well.

Adalaide Mentor
Adalaide
Posted

Is Celiac considered to be genetic as well? Not sure what kind of family medical history tends to point to Celiac?

Well, celiac does tend to be genetic although no one in my husband's family is diagnosed with it.

Diseases closely linked to celiac that in your family history can point to needing to be tested: dementia, non-Hodgkin lymphoma, diabetes (both types), thyroid problems, Crohn's, IBS, depression.

Really, the link between celiac and SO MANY diseases is ridiculous and I'm sure lots of people could draw these same conclusions. But really, would it hurt anyone to go gluten free? No.

GFinDC Veteran
GFinDC
Posted

Hi Sarah,

Celiac is auto-immune, and people with one AI disease tend to have a higher chance of getting a 2nd AI disease. So a family history of AI diseases is what you would look for.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Yes, it is genetic. It behaves similar to diabetes in a sense. You can have family members with it, and you yourself may never develop it. But you may develop it, but your family members don't.

At any rate, I've heard that so long as you stop eating before midnight, you'll be fine (don't quote me on this).

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

Well, despite all my best efforts, at 2 am last night I had a low blood sugar (54)- that thank goodness I was able to bring up just by removing my pump for a little while!! Although I was so worried about the whole thing, I got little sleep.

I still love my GI - when I saw her this morning prior to the endoscopy I remembered everyone 's advice and asked how many samples she was going to get...she told me 6-8 and I knew then I was in good hands. After I woke up she told me I had a lot of inflammation in my intestines that could be something else but since it was so diffuse, she doubted it...and that I had significant evidence of acid reflux (I don't know how they see that, but all I know is that that is a major symptom of mine so it didn't surprise me it was there - only that it was so obvious ). I asked her if it would not surprise her if it was Celiac and she said no...and given the look on her face, it seemed that was her best guess. She stressed of course that we won't know for sure until the biopsies come back, but at least I will know for sure soon!

So I guess my new question for everyone is - what do you all think? Does this sound like the preliminary (pre-biopsy results) findings for Celiac? Do most people show these things?

guest134 Apprentice
guest134
Posted

diabetes (both types)

That is not correct. There is no correlation between type 2 diabetes and Celiac and there have been countless studies to show that. In all clinical studies done, it has the same prevalence in diabetes type 2 patients as the general population. Also hypoglycaemia is not even on the long list of 300 symptoms by the Chicago Celiac disease center and once again has no connection with Celiac. Now before you try and use a case of "I have Celiac and I am hypoglycaemic" or that you know someone, that is not factual causation. The person happened to have both issues, absolutely no link to it.

Celiac can cause symptoms that would be similar to hypoglycaemia but in no way would it cause it.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

That is not correct. There is no correlation between type 2 diabetes and Celiac and there have been countless studies to show that. In all clinical studies done, it has the same prevalence in diabetes type 2 patients as the general population. Also hypoglycaemia is not even on the long list of 300 symptoms by the Chicago Celiac disease center and once again has no connection with Celiac. Now before you try and use a case of "I have Celiac and I am hypoglycaemic" or that you know someone, that is not factual causation. The person happened to have both issues, absolutely no link to it.

Celiac can cause symptoms that would be similar to hypoglycaemia but in no way would it cause it.

I don't think anyone used the word causation, although I could be wrong. I am very much a newbie here and all I know are things I have read in different places. Let me be clear, I never read that a symptom of celiac was hypoglycemia merely that some Type 1 Diabetics may experience hypoglycemia more than others due to the lack of absorption of gluten. I do not know if this is true or not, never stated it as a fact, I believe we both just stated that were that true it would make some logical sense. That is all.

guest134 Apprentice
guest134
Posted

That comment was not directed at you Sarah. I know that there is a link to type 1, I was just saying not type 2 and not hypoglycaemia.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

That comment was not directed at you Sarah. I know that there is a link to type 1, I was just saying not type 2 and not hypoglycaemia.

I know...that really wasn't what I was trying to say either...sorry for the misunderstanding - I got 3 hours of sleep last night worrying about my blood sugar and the endoscopy - so my comprehension skills today are not top notch :)

guest134 Apprentice
guest134
Posted

I know...that really wasn't what I was trying to say either...sorry for the misunderstanding - I got 3 hours of sleep last night worrying about my blood sugar and the endoscopy - so my comprehension skills today are not top notch :)

Sorry to hear that, was the endoscopy today? If so how did it go? Mine is on Friday.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

Sorry to hear that, was the endoscopy today? If so how did it go? Mine is on Friday.

Yup, this morning. It was not bad...a little better than I expected I think. I made the mistake of eating after it and paid for it all day long!

Doctor said my intestines showed inflammation and seemed to indicate that she thought it was celiac, though was careful to say of course that nothing was certain until the biopsy came back.

Good luck to you on Friday!!! Hope your post-op experience is better than mine was!! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.