Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Hungry

glutenfree015

Recommended Posts

glutenfree015 Rookie
glutenfree015
Posted

Hey everyone!

I’ve been gluten free for 4 months now( soy and dairy free for 2.5 months), and though I struggled a lot at first, things finally seem to be settling down. I do have a quick question for everyone: now that I have been gluten free for 4 months, I am hungry all of the time! I never used to eat much before going gluten free, and even for the first few months gluten free I didn’t have much of an appetite. I lost about 10 pounds. Now, if I don’t eat a lot of calories and a lot of carbs, I get dizzy, irritable, weak, and exhausted. My legs also cramp up, which is weird. It tends to get worse if I consistently eat fewer than 2500 calories per day; if that happens I get really sick and have to spend the whole day eating to correct it.

I have a doctor’s appointment in a few weeks, but if this has happened to any other celiacs, I would love to know.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Vitamin deficiencies?

glutenfree015 Rookie
glutenfree015
Posted
  • Author

I am anemic and vitamin D deficient, but taking supplements! Everything else looks good.

Hala Apprentice
Hala
Posted

I've only been gluten-free for 6 weeks but I'm feeling the same way....it's really annoying!

Lizanne Newbie
Lizanne
Posted

Hi- I know how you feel! I found out I had Celiac Disease in July, so I've been gluten free about 5 months now. I am constantly hungry, even after I eat a meal I feel starving. I went from 140 lbs to 110 currently. Dr said I would level off with my weight, but so far keep losing pounds. Bloodwork is fine, no deficiencies.

rosetapper23 Explorer
rosetapper23
Posted

I'd add potassium, magnesium, and chelated manganese to the supplements you're taking. They may alleviate the cramping.

  • 2 weeks later...
Trelliemae Newbie
Trelliemae
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
KristenS Rookie
KristenS
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

I feel like I am STARVING all day every day! My iron infusions are in 3 weeks and you have given me hope that they may help aleviate this insatiable hunger.

Opa3 Apprentice
Opa3
Posted

Eat more protein.

1desperateladysaved Proficient
1desperateladysaved
Posted

I ran out of iron supplement lately and got insatiable appetite. I don't understand all of it, but I think I have hypoglycemia issues going along with it. Maybe it is just because I have been succombing to eating alot of fruit.

Diana

tarnalberry Community Regular
tarnalberry
Posted

One hallmark of hypoglycemia is feeling hungry again 1-2hrs after eating. Especially if those meals/snacks are high in carbs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,611
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.