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Very Hungry

glutenfree015

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glutenfree015 Rookie
glutenfree015
Posted

Hey everyone!

I’ve been gluten free for 4 months now( soy and dairy free for 2.5 months), and though I struggled a lot at first, things finally seem to be settling down. I do have a quick question for everyone: now that I have been gluten free for 4 months, I am hungry all of the time! I never used to eat much before going gluten free, and even for the first few months gluten free I didn’t have much of an appetite. I lost about 10 pounds. Now, if I don’t eat a lot of calories and a lot of carbs, I get dizzy, irritable, weak, and exhausted. My legs also cramp up, which is weird. It tends to get worse if I consistently eat fewer than 2500 calories per day; if that happens I get really sick and have to spend the whole day eating to correct it.

I have a doctor’s appointment in a few weeks, but if this has happened to any other celiacs, I would love to know.

Thanks!

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bartfull Rising Star
bartfull
Posted

Vitamin deficiencies?

glutenfree015 Rookie
glutenfree015
Posted
  • Author

I am anemic and vitamin D deficient, but taking supplements! Everything else looks good.

Hala Apprentice
Hala
Posted

I've only been gluten-free for 6 weeks but I'm feeling the same way....it's really annoying!

Lizanne Newbie
Lizanne
Posted

Hi- I know how you feel! I found out I had Celiac Disease in July, so I've been gluten free about 5 months now. I am constantly hungry, even after I eat a meal I feel starving. I went from 140 lbs to 110 currently. Dr said I would level off with my weight, but so far keep losing pounds. Bloodwork is fine, no deficiencies.

rosetapper23 Explorer
rosetapper23
Posted

I'd add potassium, magnesium, and chelated manganese to the supplements you're taking. They may alleviate the cramping.

  • 2 weeks later...
Trelliemae Newbie
Trelliemae
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

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  • 2 weeks later...
KristenS Rookie
KristenS
Posted

I was hungry all the time after switching to gluten-free. I have always been low-iron. My hematologist prescribed intravenous iron. I'm not hungry all the time any more. I have more energy than ever and I don't chew ice all the time!

I feel like I am STARVING all day every day! My iron infusions are in 3 weeks and you have given me hope that they may help aleviate this insatiable hunger.

Opa3 Apprentice
Opa3
Posted

Eat more protein.

1desperateladysaved Proficient
1desperateladysaved
Posted

I ran out of iron supplement lately and got insatiable appetite. I don't understand all of it, but I think I have hypoglycemia issues going along with it. Maybe it is just because I have been succombing to eating alot of fruit.

Diana

tarnalberry Community Regular
tarnalberry
Posted

One hallmark of hypoglycemia is feeling hungry again 1-2hrs after eating. Especially if those meals/snacks are high in carbs.

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  • Posts

    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
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    • JulieRe
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      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
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      By Ceekay · Posted

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