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Chronic Non-Specific Dermatitis...

jlaw

By jlaw
in Dermatitis Herpetiformis

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jlaw Apprentice
jlaw
Posted

...was the result of my son's skin biopsy. Which quite frankly, I knew before I even took him to the doctor's office. I was kind of hoping to clear up the 'non-specific' part! So needless to say a little frustrated. And a little mad. When I spoke to the arrogant doctor (as previously documented on this forum :-) ) we discussed that he would take 3 samples - two blisters and a clear bit. When I took the dressings off, I saw he took the first two only. So I'm wondering if that's what's led to this result? Is it possible that such an inconclusive outcome is due to just taking two blisters and no clean skin?

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squirmingitch Veteran
squirmingitch
Posted

The biopsy HAS to be taken from CLEAR SKIN ADJACENT TO AN ACTIVE LESION. So the 2 biopsies he did don't count. :(

I feel like the arrogant doctor did this on purpose.

jlaw Apprentice
jlaw
Posted
  • Author

I had wondered about the sabotage thing myself....it sounds horrid but wouldn't have surprised me. Especially since he told me specifically he would take clean skin and then didn't. I'm kicking myself for not actually watching him - but I had to turn away. And we had had the 'take it from the clean skin' discussion immediately prior so I thought we were sorted....*sigh*

rosetapper23 Explorer
rosetapper23
Posted

Yes, he scammed you--what an arrogant, arrogant doctor! Is there any recourse? Either you need to have a new derm do it over again or insist that the first one do it correctly. Bring in written information if you need to--this man needs to be educated!

squirmingitch Veteran
squirmingitch
Posted

Problem is jlaw is in India so I don't know that there is much recourse for her over there. :(

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I have a sneaky technique - I'd go back and say there seems to have been a mistake and I know you were very keen to get a biopsy on clear skin as we know how important it is, so we can sort it out quickly today. Or something like that.

I had forgotten that you were in India with a very traditional doctor. Sometimes getting what you want without having the other person lose face is more important than winning an argument. You could even say you know you were upset on the day and are sorry you distracted him. Or something.

I have had to be sneaky and fawn a bit to get my son tested.

I hope you find a way. Go Mum, go!

squirmingitch Veteran
squirmingitch
Posted

Good tactic mindwarp! It's worth a shot jlaw.

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jlaw Apprentice
jlaw
Posted
  • Author

Thanks all, and Mindwarp, you sound like the kind of person I wish I was more like! You are absolutely right, especially in this culture where everything is done in a round-a-bout way, as opposed to talking directly. Still, I do have a contact for another reputable dermatologist in this city...my poor little brave boy. Should not have to do this again...

Thanks all for your support

squirmingitch Veteran
squirmingitch
Posted

Hugs for your brave little boy!

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Great if you can get him to another dermatologist. Sorry you have to see him go through that again. When I took my son for his skin prick gets and blagged a celiac panel I was great being strong while with him, but blubbed and shook once dh could take over. Just to say I feel for you.

Good luck, sounds like you are doing a great job x

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