Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Thought On Supplements


alesusy

Recommended Posts

alesusy Explorer

hello there. I've just been DX - the result of my bioopsy came in today and confirmed I'm a 3.b marsh celiac. As expected (all the bloodwork was positive).

This post is just a thought about supplements. I did ask my doc, and he said that my body will start to absorb nutrients on its own when I'm healing, and until I'm healing, my bowels would not absorb supplements anyway as they don't absorb nutrients from food. This makes sense to me - I wonder anybody had any thoughts about this?

alesusy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Here was my regular doctors thoughts on it and I think, for me , it made sense.

You have 16-20 feet of small intestine. It is unlikely that every square inch is too damaged to absorb anything. celiac tends to be " patchy". Even if only 20% of your intestines are absorbing nutrients, you want to make sure that 20% always has some to absorb. There are a few vitamins that are small enough to be absorbed thru the skin in your mouth. B12 is one.

mushroom Proficient

Some supplements are also available in liquid form which should be easier to digest. Another aid in getting the nutrients into your body is digestive enzymes. Part of the lack of absorption is that the food is not broken up enough into small chain fatty acids to pass through into the blood stream because of the negative influence gluten has on the pancreas and its output of enzymes. So supplementing with pancreatic enzymes helps break down both regular food and the supplements you take to help you get the nutrition out of them. It is a bit of a catch 22 at first but if you make enough nutrients available in the right form you will eventually start absorbing them. Some of them will undoubtedly be wasted, but in the case of something like Vitamin D, you don't want to leave your body without its availablility for too long or you are risking bone loss and lots of other negative effects. Again, the Vit. D available in gel caps in liquid form would be better absorbed, I would think, than regular tablets.

1desperateladysaved Proficient

My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

dilettantesteph Collaborator

There is little scientific evidence for supplements helping, and they are poorly regulated. I prefer to use whole foods, but I do use two very carefully chosen supplements where I didn't have that option.

Open Original Shared Link

petitesteph Newbie

My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

I strongly agree with you 1desperateladysaved - supplements were my life saver before I even knew I had a gluten intolerance. I was so low in magnesium and strangely enough b5 and a few other b vitamins that I was almost crippled completely. The lack of magnesium actually gave me an EXTREME migraine condition that worsened gradually as I got older (21 years of this!) until I was actually completely housebound. After that I had to take almost DOUBLE the amount of supplements - which gave me my life back! It was like a miracle!!!!

This actually led to finding out I was celiac! the question was, "Why am I so deficient and have to take SO MUCH via supplement to keep up?!" Answer = your intestines can't absorb it! super damaged!

Hopefully once I'm more healed, I can pull back on the dosage.

GOOD LUCK TO YOU!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748

    Kundrey
    Newest Member
    Kundrey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.