Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Toddler Had Gluten By Accident Help


Kellyrassy

Recommended Posts

Kellyrassy Newbie

Wednesday my son who has been gluten-free for 7 months was served meatballs at school. Since he has been so gassy, big bloated belly and diarrhea not interested in eating much. Today he seems very lethargic and had the worst rash on his bottom area. He keeps moaning and his eyes look tired. Is this all from the meatballs? How long can i expect this to be going on, the lethargic mood is freaking me out. Help please!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

We are all different. The symptoms you describe can all be related to the accidental gluten exposure. It is possible that he also has a bug.

Personally, I remain very lethargic for several days. Try to get him to drink a good amount of water.

Kellyrassy Newbie

Thanks so much for the feedback!

tarnalberry Community Regular

I would expect it to be gluten from the meatballs - they almost always have breadcrumbs in them.

Kellyrassy Newbie

Thank you, how long does this reaction last typically? A couple days? Weeks? Month??

LFitts Apprentice

I wish I could help but I am nearly in tears tonight because my 9 year old is suffering again tonight and I am so sick of this. We have read every label and prepared everything so carefully. I have no idea what got her this time, no clue. Either a label was wrong or she is just super-sensitive to cross-contamination in our house. I have had it. I am ready to just put the whole family on raw veggies. The first few weeks seemed easy and she was feeling so much better, now she's having a mysterious accidental exposure of some sort every couple of days! When will this get easier???

Kellyrassy Newbie

I am so sorry to hear about your 9 year old, it's so awful to see them suffer especially when you working so hard at a gluten-free lifestyle. How long have you been gluten-free? Could it be at school or something? What are her symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Good Morning Kelly!

Unfortunately there is no set time - for some it passes in hours and others days -- worst case and not common is weeks. It really depends on so many factors -- the meatballs may have tasted yummy so he may have ingested quite a few? As time gluten-free increases - the reactions often become worse to smaller and smaller amounts of gluten -- hence the very real problem of cross contamination that is the bane of our existence.

Welcome LFitts!

So sorry to hear your family is having such a rough time. It really does get better -- as a family you will learn the level of care needed to keep your child healthy and I assure you there are many, many wonderful and tasty gluten-free options -- most of start with whole ingredients. If you haven't had oportunity - take a look at the Newbie 101 thread -- this is filled with great information that will help ease the transition -- I won't lie - the transition is very tough, but as time passes it does get much easier.

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

kareng Grand Master

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

bartfull Rising Star

LFitts, it isn't uncommon for us to show great improvement at first, and then to slide back into being sick. Some of it could be due to other (most likely temporary) intolerances, and some of it could just be the body is still healing. Definitely check for cross contamination, but if you find that there is no chance of it, just give it time. And DO keep a food diary. That way if there are other things that are bothering her such as dairy, corn, or soy (common culprits), you can try eliminating them and see if she improves.

LFitts Apprentice

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

GottaSki Mentor

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

Might want to try replacing your All Purpose Flour with a gluten-free version -- I use all my old cake recipes with Bob's Red Mill -- others don't care for BRM, but like Pamela's or others. Gluten eaters eat my cakes all the time and have no idea it is gluten-free until I tell them.

kareng Grand Master

Can you mix with the flour in an enclosed small space away from the kitchen? If not , just remember that it can take at least 24 for the flour floating in the air to settle. That means, anything sitting on the counters, like a water cup or a bowl of fruit, could have a layer of flour.

Takala Enthusiast

Hey, LFitts, hang in there. Paper towels, paper towels, paper towels ! You may, in the near future, be making yummy gluten free cakes, with your new, dedicated gluten free mixer and baking pans. There is this demand, you know, especially for "mixed" families and special occasions. Plus your daughter might just be reacting to something like soy flour - OMG, the first time I had a major hit of that stuff, I had eaten a bunch of cookies after a long, cookieless drought, and it nearly knocked me out flat. Talk about classic conditioning and motivation, I still shudder when I see that brand in the stores and think "No Cookie" and head over to the gelato in the frozen case aisle. :P

Celiac Mindwarp Community Regular

It looks like you may get to be your neighborhood gluten-free baker then! It takes some practice but many people actually prefer it. My husband even made eclairs recently ( we are in the UK and just substitute Doves Farm gluten-free flours).

I hope you track down what is affecting your daughter. I did well for a couple of months, then got hit 5.times in 6 weeks. We are a mixed house, but only bake gluten-free now. We got better at cleaning up, use lots of kitchen paper now. I am also eating more completely whole food and so nothing processed.

It takes time to work it out, but you will get there.

Good luck

GretaJane Newbie

You need to stop baking with the gluten containing flours. The dust gets everywhere. Kids touch everything and put their fingers in their mouths or eat something without washing their hands. i'm sorry for your loss of baking as you know it. Good luck!!! Its long learning process that your child inevitably will have to suffer through. I've made so many mistakes that leave me crying to have hurt my child.

GFinDC Veteran

Making gluten-free cakes is easy. You can get Betty Crocker gluten-free cake mixes at some grocery stores. The yellow cake mix was little gritty to me so I used to add a banana to it. It does have potato starch in it so it you are avoiding nightshades they don't work.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.