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Dh As An Indicator Of Gluten Ingestion?

zamm0

By zamm0
in Dermatitis Herpetiformis

Recommended Posts

zamm0 Apprentice
zamm0
Posted

Same as the title really....can DH flare-ups be a signal that the body has recently taken in gluten, however small? As per here: Open Original Shared Link

FWIW - I've had DH for a couple of years now and found that elocon seems to dampen it down quite well. I tend to use it very sparingly. Lately I'm experimenting with not using the elocon to see if it goes on it's own.

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texas flood Newbie
texas flood
Posted

I don't know. From what I've read here, Iodine can trigger it. So that could be it as well.

squirmingitch Veteran
squirmingitch
Posted

zamm0, Yes, it can be a sign of having recently taken in gluten. I would say especially if you have been gluten-free for a couple of years & have not had any dh outbreaks in at least several months. If you are under the 2 year mark then it's possible that it's just a "spontaneous outbreak" which can also happen any time until all the antibodies are out of our skin.

  • 1 month later...
sharese28 Apprentice
sharese28
Posted

I'm going through that right now recently diagnosed and i've developed these skin rashes on my face back neck etc :angry: after going gluten free don't know if i've ingested gluten unintentionally or if it's my body trying to get everything out of my system.

squirmingitch Veteran
squirmingitch
Posted

I'm going through that right now recently diagnosed and i've developed these skin rashes on my face back neck etc :angry: after going gluten free don't know if i've ingested gluten unintentionally or if it's my body trying to get everything out of my system.

That's almost impossible to say for sure. Only you would be able to tell.......maybe......  And that's also why it's soooooooo important to make absolute, for sure, no doubt about it positive, that you are not getting the slightest amount of gluten.

pricklypear1971 Community Regular
pricklypear1971
Posted

Same as the title really....can DH flare-ups be a signal that the body has recently taken in gluten, however small? As per here: Open Original Shared Link

FWIW - I've had DH for a couple of years now and found that elocon seems to dampen it down quite well. I tend to use it very sparingly. Lately I'm experimenting with not using the elocon to see if it goes on it's own.

Elocon is a topical steroid.

 

My experience was even after weaning off of my topical, and using barely enough to dampen the tip of a qtip, when I finally went cold turkey for a few days....whammo. Outbreak.

 

So, I wouldn't assume you've ingested gluten if you're weaning off. I'd assume you're going through that typical steroid withdrawal bounce-back.

  • 2 weeks later...
koalbish Newbie
koalbish
Posted

Every time I get contaminated with gluten I flare up and it takes weeks to go away. It mostly happens when I eat out and I think the food is safe.

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squirmingitch Veteran
squirmingitch
Posted

That's why I refuse to eat out no matter how safe one might think it may be. The only way to be sure is to be in total control of all your own food. With the outbreaks I get there is NO WAY I'm taking any chances until all the antibodies have gotten out of my skin.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
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      By trents · Posted

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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