Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Drama


soyjoy318

Recommended Posts

soyjoy318 Newbie

My sister (who is a hypochondriac) has now decided that she too has Celiac. She refuses to get tested, complains all the time about how she feels, and asks me about my symptoms.

I have had to stop talking to her, because she doesn't get it. She thinks Celiac is something fun??!! She thinks she will get special attention if she has it??!!

I told her all the scary stuff my doctors shared with me. I told her it wasn't a game. She has pulled this prank before - when my mother had breast cancer and when my baby sister was in a near fatal accident.

It's more annoying than anything else. She thinks it is a game. I would NEVER wish Celiac on anyone!!

So frustrated!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alesusy Explorer

My sister (who is a hypochondriac) has now decided that she too has Celiac. She refuses to get tested, complains all the time about how she feels, and asks me about my symptoms.

I have had to stop talking to her, because she doesn't get it. She thinks Celiac is something fun??!! She thinks she will get special attention if she has it??!!

I told her all the scary stuff my doctors shared with me. I told her it wasn't a game. She has pulled this prank before - when my mother had breast cancer and when my baby sister was in a near fatal accident.

It's more annoying than anything else. She thinks it is a game. I would NEVER wish Celiac on anyone!!

So frustrated!!!

tell her you won't talk to her again unless she get tested, and then really do it. It is a reasonable and strong lever point. She might really be celiac as well. On the other hand, there's no obligation to be nice to an annoying person just because she's a family member: steer clear...

soyjoy318 Newbie

tell her you won't talk to her again unless she get tested, and then really do it. It is a reasonable and strong lever point. She might really be celiac as well. On the other hand, there's no obligation to be nice to an annoying person just because she's a family member: steer clear...

Thank you alesusy!! I like your advice!! I'll definitely speak to her about getting tested!!

ravenwoodglass Mentor

Celiac is genetic so it is quite possible she also does have celiac. Many of us have been called hypochondriacs and told we just wanted to be sick. Share your knowledge of the disease or refer her here to answer her questions if you don't care to answer them. She should be tested and your being diagnosed is a reason to give her doctor to test her. Celiac can be hard to deal with, especially at first and it might not be a bad thing to have another family member to help others in the family understand.

bartfull Rising Star

For most of my childhood and well into adulthood, I thought my Mom was a hypochondriac. She too thought she had whatever someone she knew was diagnosed with. Every day it seemed she had a different complaint. Headache one day, backache the next. Sick stomach the following day, dizzy the next.

I STILL haven't forgiven myself for thinking she was making it all up. When I found out she had had celiac all her life, and that when she went gluten-free she became a new person, I felt terrible. It was only after I had lost her that I got celiac, and now I feel even guiltier. When I get to Heaven, the very first thing I am going to do is apologize to Mom.

soyjoy318 Newbie

My dad said he will get tested and I told my sister to get tested. Once she gets her results back, I will talk to her about it.

I do feel bad for not believing her, but she does have a track record for making things up. I hope she gets tested and then we will know the answer.

Thanks all for your comments!! Very helpful!! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,113
    • Most Online (within 30 mins)
      7,748

    J CARUCCI
    Newest Member
    J CARUCCI
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.