Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac With A Fever Part Of Autoimmune Response?


GFreeMO

Recommended Posts

GFreeMO Proficient

I have been tested for many autoimmune diseases, the only positive one thus far and I hope and pray it stays that way, is celiac. When I am CCed, I will run a fever for several days. I also have elevated liver enzymes. Does anyone else run a low grade fever as part of the autoimmune response with celiac? My doctor told me to take Tylenol but I don't want to be popping tons of tylenol with elevated liver enzymes?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Running a low-grade fever, in and of itself, is not harmful. It is the body's way of dealing with a problem :) and probably does not require medicating unless it gets out of hand.

deb445 Rookie

Interesting...my oldest son responds to gluten with a fever (amongst other symptoms). It's been suggested by his Naturalpath, that his liver becomes overloaded with toxins (due to the gluten/gluten response) and this results in congested liver and fever. The fever used to last 5 days, with extreme fatigue ( wouldn't/couldn't walk for 3 - even with Tylenol and Motrin tag team) but we've been able to reduce that. Thank goodness.

GFreeMO Proficient

The thing that is bugging me is that my gastro didn't know if celiac could cause a fever and told me to see an internal med. doctor. I saw one and she sent me to him. I feel like I can't get answers as to why I get these low grade fevers.

Denine Newbie

I have been tested for many autoimmune diseases, the only positive one thus far and I hope and pray it stays that way, is celiac. When I am CCed, I will run a fever for several days. I also have elevated liver enzymes. Does anyone else run a low grade fever as part of the autoimmune response with celiac? My doctor told me to take Tylenol but I don't want to be popping tons of tylenol with elevated liver enzymes?

My daughter was just diagnosed this week. She has been running a low-grade temp on and off for several weeks, along with the abdominal pain. She went gluten-free on Monday.

Em314 Explorer

I have long been "used to" having low-grade fevers seemingly at random. I now strongly suspect they were related to the celiac. For all I know was something else, but that strikes me as occam's razor.

JNBunnie1 Community Regular

During the six months I was 'sick' I ran a low-grade fever almost constantly. I

think it's just another one of the strange symptoms we get!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

For me it was. I knew what my normal temp usually ranged, so i kept an eye on it. It went away after i went gluten free.

  • 2 weeks later...
Jen-1984 Apprentice

I (when I first became sick) had a low grade fever that would spike about an hour to two hours after eating. I would feel flush like and I would get terrible stomach pains and heart burn. I also could not sleep whatsoever. Then one night, my husband took me out to eat and I ate felafel. I know now has tons of gluten derived ingredients and had horrific stomach pains the whole night, running a low grade fever and so I finally took myself to the hospital where I was found to have panceatitis. It was mild but was painful. I think it may have something to do with celiac effecting an organ in the body. I have also been tested for lupus, RA and other autoimunes and nothing ever came out positive but celiac ever. Its crazy the symptoms besides the pancreatitis that I have had. Namely neurological, seizure like episodes, floaters in the vision, photophobia. Its been a crazy ride!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.