Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New Here (Split From Wendy's Frosty Topic)

anngf4life

By anngf4life
in Coping with Celiac Disease

Recommended Posts

anngf4life Rookie
anngf4life
Posted

Hello everyone, I am New to the gluten free scene. I self diagnosed my gluten sensitivity and I feel free. I feel as though I have been reborn to some degree. I had been having problems for the past 4 years and never ever thought of celiacs disease. One day a friend of mine had been listening to me complain (being a true friend) and all of a sudden she says are you sure that you aren't gluten sensitive? I said I don't know, never really thought of it, so I gave up all gluten and I cannot tell everyone enough how well I feel! I also have Vitiligo which is also an autoimmune disease and after doing my research figured what my condition was. I also am suffering with a hyperthyroid which gives me a lump in my throat and I feel as though I am speeding(this is also part of the autoimmune community) That is starting to feel better also, I am so very happy to be feeling better. I know it will take a little bit to get my immune system back on track but since I have found this site I am extremely happy, I can eat again!!! Yall have a wonderful day and happy days are coming!!!! Lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Hello everyone, I am New to the gluten free scene. I self diagnosed my gluten sensitivity and I feel free. I feel as though I have been reborn to some degree. I had been having problems for the past 4 years and never ever thought of celiacs disease. One day a friend of mine had been listening to me complain (being a true friend) and all of a sudden she says are you sure that you aren't gluten sensitive? I said I don't know, never really thought of it, so I gave up all gluten and I cannot tell everyone enough how well I feel! I also have Vitiligo which is also an autoimmune disease and after doing my research figured what my condition was. I also am suffering with a hyperthyroid which gives me a lump in my throat and I feel as though I am speeding(this is also part of the autoimmune community) That is starting to feel better also, I am so very happy to be feeling better. I know it will take a little bit to get my immune system back on track but since I have found this site I am extremely happy, I can eat again!!! Yall have a wonderful day and happy days are coming!!!! Lol

Just an FYI

You are replying to an over 4 year old thread on the topic of Frosty's.

Lisa Mentor
Lisa
Posted

Hello everyone, I am New to the gluten free scene. I self diagnosed my gluten sensitivity and I feel free. I feel as though I have been reborn to some degree. I had been having problems for the past 4 years and never ever thought of celiacs disease. One day a friend of mine had been listening to me complain (being a true friend) and all of a sudden she says are you sure that you aren't gluten sensitive? I said I don't know, never really thought of it, so I gave up all gluten and I cannot tell everyone enough how well I feel! I also have Vitiligo which is also an autoimmune disease and after doing my research figured what my condition was. I also am suffering with a hyperthyroid which gives me a lump in my throat and I feel as though I am speeding(this is also part of the autoimmune community) That is starting to feel better also, I am so very happy to be feeling better. I know it will take a little bit to get my immune system back on track but since I have found this site I am extremely happy, I can eat again!!! Yall have a wonderful day and happy days are coming!!!! Lol

Hello and Welcome! Please feel free to take a walk around this place. There is a lot of great information as you travel down your gluten free road.

Karen mentioned that this is an older thread...yes, and the facts may not be accurate today. But I do think that Wendy's Frosties are still gluten free, as last I checked.

anngf4life Rookie
anngf4life
Posted
  • Author

Thanks for the information from all of you but I don't see myself asking questions, commenting or starting a New topic too much. It seems as though I have not been a good girl and I don't do these things right so I may just find my info elsewhere. Thanks buches!

psawyer Proficient
psawyer
Posted

Thanks for the information from all of you but I don't see myself asking questions, commenting or starting a New topic too much. It seems as though I have not been a good girl and I don't do these things right so I may just find my info elsewhere. Thanks buches!

You are new, and are having a bit of trouble finding your way around a complicated board. That is not unusual. Some members here have tried to help you with that. You DO need to learn how to start a topic when your comment or question is not relevant to the original topic in a thread. The moderators have split threads several times so that your question gets the prominence that it deserves.

Most people would not read your post above that I made into a new topic, since it was in an old topic about Wendy's. Maybe with a new title, and in the "coping" section instead of restaurants, you will get some attention.

Please stay with us.

mushroom Proficient
mushroom
Posted

ann, we are definitely not trying to drive you away :( We are trying to keep you :) And if there is any way in the world we can give you any assistance, just start a new topic under an appropriate heading and we will head your way :D

GFinDC Veteran
GFinDC
Posted

Hi Ann,

Please do stay around. We are actually a pretty nice bunch! :)

if you have a lump on your throat, and are having hyperthyroid symptoms, please consider testing for Hashimoto's Thyroiditis, Hashimoto's is an autoimmune disease where the immune system attacks the thyroid. The docs can test you for TPO antibodies to see if you have Hashimoto's. We have several people with Hashimoto's here on the forum. Women tend to get it more often than men, according to the doctors anyway. I have a thyroid cyst myself and take natural thyroid supplements.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. thejayland10
      - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      TTG IgA and IGA elevated mildy

      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening thank you for attaching...
    2. HilaryM
      - HilaryM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      New onset constant gas

      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel l...
    3. knitty kitty
      - knitty kitty replied to Bindi's topic in Super Sensitive People
      43

      Refractory or super sensitive?

      @Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine...
    4. lizzie42
      - lizzie42 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free and oat free bars not sugary?

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any...
    5. knitty kitty
      - knitty kitty replied to MagsM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Inflammation and Menier’s disease link?

      Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,769
    • Most Online (within 30 mins)
      7,748
    Francie Bailey
    Newest Member
    Francie Bailey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
    • HilaryM
      New onset constant gas

      By HilaryM · Posted

      Hi all, I’ve been following a strict gluten-free diet for 1.5 years since I was diagnosed. The last few weeks though I’ve suffered almost continual bloated stomach and flatulence. It literally is almost constant - and I was never this way before. I can’t think of any change to my diet, activity, etc. I’m dying - it’s so uncomfortable and embarrassing to feel like I have zero control over this. Any ideas? Thank you!
    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @Levi, How are you doing?  Sorry I missed your posts.   How's your thyroid?  Did your Vitamin D stabilize?  Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D.  Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form.  Also, Thiamine is needed to active Vitamin D.   Hypothyroidism can be caused by Thiamine deficiency.  The thyroid is an organ that uses lots of thiamine.  sometimes thyroid deficiency can also cause hyperthyroidism, or swings between both hyper- and hypo-thyroidism. We need more Thiamine when we're sick with an infection (like Covid) or injured.  We need more Thiamine when we're physically active.  We need more Thiamine when we're emotionally stressed or worried.  Our brain uses the more Thiamine just thinking than our muscles do while running a marathon.  Thiamine is extremely important in fighting infections.  Covid patients and long haulers have found taking Thiamine has improved their survival rate and long term symptoms.   Consider taking a Thiamine supplement like Benfotiamine which has been scientifically shown to promote intestinal healing.  Damaged villi need thiamine to grow back.   Be sure to take a magnesium supplement, too.  Thiamine and magnesium make life sustaining enzymes together.  You also need magnesium to keep calcium in the bones.  The thyroid regulates calcium.  A wonky thyroid can lead to reduced bone density.   Remember the B vitamins all work together in concert so adding a B Complex to Benfotiamine and magnesium supplements and Vitamin C would be great in improving absorption of nutrients while we're dealing with celiac disease. Namaste
    • lizzie42
      Gluten free and oat free bars not sugary?

      By lizzie42 · Posted

      I'm looking for bars or non perishable snacks for my 2 kids. They are 5 and 3. The 3 year old seems sensitive to oats also. We do a lot of long hikes and bike rides. They eat mostly fresh foods but for these rides and hikes we need easy and non perishable. Also that taste good! We do a lot of larabars and freeze dried apples but those are getting old. Any ideas? 
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      Oh, @MagsM, Sorry you had that happen with Niacin.  500mg is the maximum amount of Niacin one should take.  Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time.  All the B vitamins work together in concert.  Niacin in doses at 500 mg or above have been used by doctors to lower triglycerides levels and raise HDL, the good cholesterol.  Pharmaceuticals to do the same thing are more expensive and thus more profitable for physicians. Has your doctor tested you for H. Pylori?  An infection by H. Pylori can be tested for by your doctor.  H. Pylori can cause low tTg IgA results, too.   I would hold off on the microbiome test for now.  Your microbiome is going to change when you go gluten free.  Your microbiome will change when you start taking Thiamine.  Thiamine supplementation influences which microbes grow in the intestines, encouraging beneficial bacteria and getting rid of the bad ones.  Thiamine in the form Benfothiamine promotes intestinal healing, too.  Adopting the Autoimmune Protocol Diet (by Dr. Sarah Ballantyne, a Celiac herself) after diagnosis will also change your microbiome.  This is the best diet to heal and recover, IMO.   If you're going to have more testing done for vitamin deficiencies, don't take vitamin supplements beforehand, otherwise the tests will measure the vitamin supplements in your bloodstream and give false results.  Same thing will happen if you take B vitamin shots.  The supplements you mentioned (Arterosil HP and Vascanox HP) are herbal support and do not contain all eight B vitamins.  There's no harm in taking them, but I prefer a B Complex that contains all the B vitamins in activated forms like Life Extension's Bioactive Complete B Complex.  All the B vitamins work together in concert.  Magnesium is important to supplement as thiamine and magnesium make life sustaining enzymes together.  Do not buy supplements containing Thiamine Mononitrate because it is not biologically active.  It is very hard for the body to utilize.  Most of it (70%) passes out unused.    Yes, my Meniere's disease has not returned.  I was deficient in Vitamin D.  I took high doses of Vitamin D 3 to correct the deficiency quickly.  I also took TTFD (tetrahydrofurfuryl disulfide) which is a form of thiamine different from Benfotiamine.  TTFD can cross the blood brain barrier without a carrier, so it can get into the brain very easily.  TTFD helps the Vagus nerve function.  The Vagus nerve regulates the ears and balance, and also the digestive system.  I like Allithiamine by Ecological Formulas.  I also like Thiamax by Objective Nutrients.  You should have improvements within a hour with TTFD.  TTFD is much stronger, so lower doses will give amazing benefits (50-200 mg).   I hope this helps give you some direction to take on your journey!
×
×
  • Create New...