Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son Will Be Tested After He Is Back On The Gluten


Happyw5

Recommended Posts

Happyw5 Explorer

I took my son to the doctor today and he said he would run a full celiac panel on him. First I have to get more gluten into his diet. I have been gluten free for two years, so most everything in the house is gluten free. He does eat gluten at school and at other peoples houses. The dr told me to feed him alot more gluten for the next five weeks so the test results can be accurate. How much should he be eating? Bread everyday? Any input would be great, my celiac test was negative, but I was already wheat free because of a wheat allergy. Thanks for any info..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

This is your 12-year-old, right? If memory serves, this is the age where they start eating quite a lot, so I would give him the equivalent of a couple of slices of bread a day. And then he gets some at school and other places so that should be plenty.

nvsmom Community Regular

I agree with Neroli. :) Good luck to him; I hope his gluten trial goes smoothly!

Happyw5 Explorer

Yes, it is my 12 year old. Thanks for the info. If he tests positive maybe my other family members will finally get tested. My mom is hypothyroid and has fibromyalgia. My sister is hypothyroid and unexplained infertility. My brother has epilepsy (has seizures even with all the medication) Not to mention all the little complaints I hear from all of them.

mushroom Proficient

My brother has epilepsy (has seizures even with all the medication)

My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

Happyw5 Explorer

My brother was also diagnosed with epilepsy, in his 40's. Not grand mal, not petit mal, just generic epilepsy. Like your brother, for him medication made no difference and the mini seizures continued. We eventually lost him to complications of one of his seizures :( I am convinced it was gluten - we are a gluten family, and he had other symptoms.

That scares me! I don't know what kind of epilepsy he has, but I asked him to try gluten free for a month to see if they continued. I offered to make all his meals even. He made it about two days and said it was just to hard and quit...Frustrating!!!

mushroom Proficient

Convince him to get tested. Getting rid of seizures would be worth the hardship, surely. We didn't know about our familial affliction when my brother was having his seizures.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,063
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.