Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Months In And Food Intolerances Are Growing! Why?


Sarahsmile416

Recommended Posts

Sarahsmile416 Apprentice

So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized, I had become intolerant to dairy - something I had expected to a point given the state of my gut. However, I figured that would be the end of it, hopefully! Because of my dairy intolerance I thought I would try the So Delicious Coconut ice cream - definitely delicious and no ill effects. This past weekend I saw they had a no sugar added variety and because of my diabetes, I figured that might be better than the other. I tried it two nights ago and was okay that night but later on, not so much. As an experiment to confirm it was that food that had given me the problem, I ate it again...same issues. I'm trying to figure out whether it was some added ingredient in the NSA variety or if it is the So Delicious brand in general. I have heard people have had reactions to the carageenan in that, but figured I was okay because I haven't reacted to the yogurt that had it in it or the first So Delicious brand I tried. However, maybe like everything else, I am growing intolerant to that too.

I guess my question is, is it normal to have growing food intolerances two months into the gluten-free diet? If so, why? All I know, is that it becomes very frustrating to have to keep adding foods to my do-not-eat list. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

It is possible that you are better able to distinguish food problems now. That seemed to be the case for me. You get one big culprit out of the way and your body isn't overwhelmed with that anymore. Then it is more able to alert you that something is wrong with what you are still eating. I also had cross contamination problems that kept me feeling low and withdrawl. Give yourself time to cope with these. Keep refining your scrutinizing and making it better and better.

Keep at it! You are on the right road. For every food I haven't been able to eat anymore, I find two or three things to substitute with. I have used almond milk, coconut milk, and hazlenut milk for example.

It seems odd to me to have too much acidicity in your stomach. I take a little hydrochloric acid to help with digestion.

Get well***

Diana

Sarahsmile416 Apprentice

Thanks for the help. :) Hazelnut milk sounds really good - I've never seen that in any of the stores near me though :(

designerstubble Enthusiast

Hi there

I'm 5 months gluten free (just), I have had SO many allergies and intolerances since I began gluten free. Dairy was the first, soy next, then eggs, citrus fruit (caused terrible asthma and bad ezcema), quinoa (asthma again), and now corn (which is really upsetting me as corn is everywhere)... Recently had a few reactions to corn, just like eating gluten :( the reaction last night from blowing up a balloon or baking my son's birthday cake (don't know which it was?).... So yes, it's very possible to have growing problems with food intolerances and allergies.

I've had some great advice on here though, and some great people on here keep telling me to hang on in there. And that's precisely what I aim to do. It's hard. I'm currently depressed about corn (very recent intolerance)... I keep wondering how much food I will be able to eat... I'm vegetarian too so it's very difficult.

But... On a day to day level, I feel ok! And isn't that wonderful! My energy has picked up since taking iron etc feel much better generally. So something must be right?? I also gave up smoking and sugar when I went gluten-free. My poor poor body! I just keep telling myself that my body has gone a bit haywire and is just rewiring itself (and sometimes getting it wrong for a bit)!

It's hard to be positive, don't I just know it. But it's the only way. Some of the guys on here are an inspiration with their positivity... So I figure they are probably right...

Good luck, have a good rant on here! I have been on here all day complaining!! Makes me feel tons better!

Chaff Explorer

Grrr. Because out digestive symptoms are drama queens. Just when you think you get it, it all changes on you.

I hear it gets easier, so hang on. When I feel sad, I read the Crohn's boards and thank my lucky stars.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.