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Road To Recovery, How To Heal?


user001

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user001 Contributor

I know the story is all too familiar for all of you, but I have to tell a little bit of my story here.

 

I am turning 30 in about a month, and i honestly feel like i have never lived.

I have been told Im crazy more times than I care to remember. I have come to terms with my upbringing, but still have gone to therapy, in an attempt to be less crazy.

I've taken medications that I swore I'd never take. All so I wouldn't be crazy anymore.

I have eaten mac n cheese to comfort me when im feeling sad and chicken noodle soup when I had a cold, but i still felt crappy and that cold always ended up lasting 2 months.

I have spent so much of my life being sick and fatigued, i feel like a new born kid these past 4 months gluten free.

I recently received my blood tests back, they were done after 3 1/2 months gluten free. Here are those results https://www.celiac.com/forums/topic/107942-help-me-de-code-these-results/

Many of my symptoms have decreased significantly in the past 4 months. I am still having some issues, but really working on perfecting this gluten free thing. I know i have to and it really feels much better.

 

What are the best foods to eat to heal ? I like to eat as many raw fruits and veggies as possible during the day. I feel like it makes me feel better, but is it hard to digest? I really just want to make sure I am doing things properly to heal as well as possible. I feel like little cuts and scrapes have been healing quicker than ever, im like super human! Does this go for my gut? How long does it take to heal?


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IrishHeart Veteran

I just posted on your other thread. Take a look :)

 

If you can tolerate raw fruits and veggies, eat them. There is no "prescription" or set diet except avoid gluten (and if you have a dairy problem, take that out for a few months and add it back in later. )

 

It takes anywhere from 6 months- years, depending on many factors: age, severity of the damage, how long you have been sick, how dietary compliant

someone is, etc. .

 

Don't think in terms of "when will I get there?"  because this is an exercise in patience. It is counter-productive to healing if you are stressing over things. 

 

Think this way : every day is a healing day.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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