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Two Days After Endoscopy -- Very Sick


kyss

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kyss Rookie

I am just wondering if anyone else has had this experience after their endoscopy. I had mine done on Monday afternoon...and I haven't been able to eat anything, just keep drinking Gatorade. My abdomen feels like it was pulled out and I have a fever. I called my GI doc and he thinks it may be the flu...I have felt like I had the flu off and on forever so I can't say what it is. I am sooooo tired and unable to consentrate. My GI doc said my small intestine looks pretty bad and he has no doubt it is celiac disease...however he took 3-4 biopsies of different areas and tested me for a bacteria in the stomach that can cause ulcers....that test was negative. I just feel awful and I missed work today and will have to go in on Saturday to catch up on my work....what a mess!

Kelly :(


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j9n Contributor

I had mine on Thursday. I am pretty sick too but I think it has more to do with being untreated for whatever undiagnosed problem I have. I am trying the low residue diet to see if it helps. Potatoes and rice are a staple for me as well as jello and yogurt. I, too, am missing work. Of course it waits for me so when I do stay home I can not relax because now I am getting more stressed about how much work I have which makes me sicker.

I am sorry I don't have any answers for you but I do know how you feel!!

kyss Rookie

Thank you for your response. I think my intestines feel bad because they are a mess. The GI doc said he hadn't seen blood test results as high as mine, and the small bowel matched it. I talked to his office today and I am going to be sick for awhile because he irritated an already irritated part of my GI tract. I also am sicking with clear liquids, rice and potatoes I was able to get mashed potatoes to stay down at lunch. I am feeling very frustrated and overwhelmed too I think. I have known now for over a month that I would have to become gluten-free eventually but I guess I wanted a miracle and the GI doc to say...oh no it isn't celiac disease so I wouldn't have to change my entire life and eating habbits. But I guess I need to start looking at what I can eat instead of being upset at what I can't eat. Thanks again for your reply. I will try work tomorrow and see what happens.

Thanks again!

Kelly

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
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    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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