Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance And Candida


Aetheana

Recommended Posts

Aetheana Newbie

I just wanted to share with everyone my experiences.

I was never officially diagnosed with gluten intolerance, but after a mini gluten challenge, i now know myself to be gluten intolerant. What i was officially diagnosed with via an antibody test was systemic candida. Its a yeast overgrowth in the gut and eventaully into the blood stream.

This is my theory, see if it makes sense. i think ive been gluten intolerant for a long while, though un-knowing (maybe triggered by knee surgery like my immune system went into overdrive because i have bolts in my knee). then i think i got the leaky gut issue which allowed candida to overgrow and get into my blood stream.

The point is that i am gluten free and now on an anti-candida diet.

:rolleyes: Im doing really great! :rolleyes:

gluten free isnt that big of an issue, but the anti-candida diet is a giant pain in the arse! no cheese, no sugar, no vinegar, etc and so forth. its not exactly SCD, but probably close. im still trying to find what works with my body.

i wonder if a lot of people that are celiacs actually have a candida problem as well, maybe undiagnosed, though. seems that leaky gut is talked about a lot, but not candida.

Now im going on a cruise for my honeymoon next week and lets see how good on my diet i can be. im planning on being 100% because of how much better i feel, but hidden gluten might be a problem!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Who diagnosed you with systemic candida? An alternative doctor? I dont believe in the "systemic" theory (although I did at one time). There is no scientific evidence to back this up. I believe only those with severely compromised immune systems develop systemic candida and at this point they would be hospitilized. Candida antibodies in the bloodstream do NOT mean that candida is actually in your bloodstream.

I have gluten intolerance, candida overgrowth, leaky gut and C. Difficile bacteria overgrowth and even though I was extremely ill from all this I do not believe that candida was in my bloodstream. Probably just about everyone with gluten intolerance has leaky gut and a candida overgrowth at some point...they kind of go hand in hand. Before I had any idea about gluten intolerance or that I had a serious bacteria overgrowth I thought I was dying from systemic candida...the only thing that helped me was diet. I saw an alternative doctor and told her I thought I had systemic candida and she agreed based on symptoms. Well...it wasnt true but the real diagnosis didnt come until later. The antibody bloodtest isnt really proof of anything...candida is natural in all of us and even though it can overgrow it isnt likely to be invading your bloodstream.

I'm glad you're feeling better..I'm just starting out on SCD and it seems to be helping already.

Aetheana Newbie

So the antibodies don't mean its in your blood stream.... Yea, I did get diagnosed by a half traditiona/half homeopathic doctor.

I didn't realize that.

Hmm.. What's the point of all the antifungal junk I'm taking then?

You seem to think its just gluten intolerance. Maybe after I do my anti-candida diet for awhile, I'll be able to go back to eating certain things like sugar. That would be the best.

How did you find out about C. Diff? I've seen you post about it before (on a couple boards, actually! :D ) and I don't know much about it.

Figuring out what's going on in the body is really hard. The biggest reason I thought the candida was in my blood stream was because I also have fibromyalgia. I've been reading some things that suggest some think that fibromyalgia is like having candida in muscle tissue. Though, for what its worth, a LOT of candida websites seem to be hardcore propaganda for their own products.

I do hope that someday, though, I'll be able to eat sweet things again!

chrissy Collaborator

i'm a little up in the air about the whole candida issue. i also have fibromyalgia as do two of my sisters and my mother. one of my sisters has tried MANY "alternative" things to treat her headaches, backaches, etc.(eventually diagnosed with fibro) all 3 of us (sisters) have been to a doctor (a regular MD) who specializes in candida. it didn't help me or my other sister, but it did help the "alternative" sister a fair amount. (ok, i did notice that my gastro system felt more "at peace"---for lack of a better description, and i lost the last 5 baby pounds i was carrying in a week. but, i was not eating the foods i was told i was sensitive to, (including wheat) and i was not eating anything with yeast). more recently, my alternative sister went to someone (not an MD) who specialized in a program for treating fibro. she put my sister on a cleansing program and also a diet and herbs directed at eliminating fibro and candidia. she was able to get off her prescription pain meds and has really improved---but not pain free. so......she really seems to believe in the candidia thing. two of my children have had fungal infections in their esophagus-------which alot of docs think is uncommon----it's not, if you have a chronic condition, such as reflux. i also had a raging case of breast yeast while i was nursing my baby (one of the kids with it in her esophagus) so i know yeast ends up in strange places. i guess i am rambling on and on.........if going gluten free and eliminating yeast makes you feel better, than that is all that areally matters.

i also have heard that candida can cause gluten intolerance, (not the celiac kind). there is an article somewhere here on celiac.com that talks about candida possible triggering celiac disease. so there you have it----many different scenarios!

christine

key Contributor

BEfore going gluten free I had had vaginal candida almost every month or more for like six years. Haven't had a yeast infections since. I don't follow any other candida diets. SO for me, I definitely think it had something to do with a lowered immune system maybe from celiac.

Monica

P.S. It has been almost a year since going gluten free and haven't had a yeast infection once.

Monica

Aetheana Newbie

Just a note about the fibromyalgia...

I feel really really better when I am on magnesium and malic acid. That might be something for you and yours to try to feel better. My back is a LOT better when i take it.

This is what Im taking 2 2x a day: Open Original Shared Link

Sometimes I get frustrated that everything seems related, but its not clear where the beginning and the end are. i know you have to treat everything at the same time and cant knock them down one by one, but i just feel like im chasing my tail! its all about chicken and the egg!

Yes, the point is that i do feel tons and tons better and i will keep eating this way as long as i am feeling good. its just really restrictive way of eating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.