Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till It Gets Better?


llj012564

Recommended Posts

llj012564 Newbie

I have been gluten-free since Feb04 . My question is how long does it take to really start to feel like my old self again . I have been sick for several years now and was finally diagnosed with cialiacs in Feb. I lost so much weight I thought I had cancer or something. My really big problem now seems to be my weight . I was heavy b4 so I wasnt bothered by it, but now it has been months and my intestines dont seem to be getting any better. I eat a ton of food but am still losing weight. Anyone have any ideas. I also have lactose, egg,nut,and yeast allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Try not to fret....it can take over a year to get better. I've been gluten-free since February, too, and I still have symptoms -- and I've been really paranoid about the diet and have been tested in many different ways for other problems. It takes time.

Carriefaith Enthusiast

I've done some research on this since I am wondering the same thing (I've been gluten-free for just over 7 months and still not better). I know how discouraging it is.

There are a number of things that could be wrong if a celiac continues to have problems on the gluten-free diet:

1. There could still be gluten in your diet (unlikely if you're very careful about cross-contamination and reading ingredients).

2. You could have another intolerance or allergy.

3. You could have another health related problem in addition to celiac.

4. It takes some people longer to heal than others (Which can be frustrating, especially if you've been so faithful to the diet and not seeing improvements).

5. And there's also something called refractory celiac (which we hope no one EVER gets) where celiacs do not respond to the gluten-free diet. This is rare though.

SofiEmiMom Enthusiast

It took about 1 year for me to feel really good. I also discovered a few months in to going gluten-free that I am intolerant to casein and soy as well. I still have days where I'm really tired. But I feel the best I have in my entire life.

tarnalberry Community Regular

Are you sure you're eating enough as well? If food was making you sick before, you may have gotten into the habit of not enough calories. You might try a food journal (you can use Open Original Shared Link to do it online), to see if you're getting enough calories. Eating plenty of nutrient and calorie dense foods (avocados, plenty of oil on your salads, etc.) may help there.

(Of course, all of this comes after what everyone else said about other intolerances and giving it plenty of time.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Super Sensitive People
      2

      Alarming

    2. - trents commented on Scott Adams's article in Origins of Celiac Disease
      10

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    3. - RMJ replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,448
    • Most Online (within 30 mins)
      7,748

    JEBarry
    Newest Member
    JEBarry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my "new care",i thought. I had  scheduled appointment in March zoom call just to be dump, it was CANCELLED on their part! My appointment isn't there anymore! I do have appointment with Mayo clinic Tuesday on the phone. I also did talk to our local representative in Stanislaus office this past Friday, yesterday and ( Justin) thinks he knows about celiac disease. I don't think he understands because he told me he knows all about celiac! Well Justin why am I dealing with this bs in your county? Hintz the reason why I feel the need to go to city hall meeting yet I  don't have the medical  support....
    • RMJ
      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza?  I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless slices. Papa Murphy’s nutrition  
    • Colleen H
      Has anyone had a reaction to gluten free pasta ?  I made ground beef pasta and gluten free sauce and I'm having every symptom there is.  Nausea ,  constipated,   burning pins and needles, anxiety...etc   lots of pain 😞 headache 😭  Does this sound familiar?   I'm literally bed ridden.  
    • Known1
      Thank you for your reply.  I read the same thing about distilled water.  Oddly, drinking that has not caused any sort of reaction in my gut.  Nothing I can hear and feel anyway.  🤣  With that said, I have also switched over to spring water for drinking.  My traditional go to grocery store charges the exact same thing ($1.39) for a gallon of pre-bottled spring, distilled, or RO water.  The manual gallon refills of RO water have an attractive price of $0.49 per gallon, provided you use your own container.  Knowing it causes major bubble gut (and likely other issues) for me, I am avoiding all RO water moving forward.  In fact, I will gladly drink tap before RO water. Here is what Google says when searching "European study regarding reverse osmosis water". --Begin quote: European studies indicate that while reverse osmosis (RO) is highly effective at removing contaminants, it strips essential minerals (calcium, magnesium) and creates low-mineral, slightly acidic water.  Research suggests this may have long-term health implications, such as mineral deficiencies, while also negatively affecting the sensory quality (taste) of water. Key Findings from European Research & Reviews: Health Concerns: Epidemiological studies in Europe have associated low-mineral water consumption with increased risks of cardiovascular disease, cognitive decline, and reduced intake of essential nutrients. Mineral Depletion: RO systems can remove up to 95%+ of solutes, including minerals that are vital for health. Sensory and Quality Impact: Studies show that reducing the mineral content (TDS) of water makes it taste bitter or flat, with optimal, "fresh" taste found in water with a TDS between 190 and 350 mg/L, suggesting post-RO remineralization is necessary for better quality. Regulatory & Safety Context: While not banned, European regulations under the Drinking Water Directive emphasize the importance of mineral content, and countries like Germany often favor alternative treatment technologies that retain minerals. Industrial Application: In Europe, RO is widely accepted for industrial applications (e.g., food, beverage, pharma) due to its high purity output, but it poses challenges like membrane biofouling. Environmental Impact: RO is recognized to use more energy and waste more water (up to 15% more) compared to conventional treatment methods, raising environmental concerns in some municipalities.  Recommendations: Due to the loss of minerals, many experts recommend remineralizing RO water before drinking to improve taste and nutritional value.  --End Quote
    • knitty kitty
      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.