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Just Got Diagnosed Now What

ChristyM

By ChristyM
in Coping with Celiac Disease

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ChristyM Newbie
ChristyM
Posted

Hi all, I have read a lot of your post and I thnak you all for the imformation I have read. It's been very helpfull.

I lost almost 30 pounds in a matter of 3 months. I could not figure out what was wrong with me. I was eating donuts every morning and pizza every day. I should have been the size of a house. I finally broke down and saw the DR. I got the diagnosis today. I'm a celiac. Holy cow a what!!!!!! :o:o

I just opened my own pizza shop 2 months ago. :angry: I was eating all of our types of pizza so I knew what I was selling. BIG mistake. The over indulgance of pizza made me lose weight. What a concept! Now I'm only 104 pounds and look anorexic, i'm completely unhealthy. I started eating everything to make me gain weight. That backfired too. Everything I was eating was reversing the weight. Lesson learned.

So now that I have this CS where do I go from here? It's going todrive me crazy not being able to eat my own pizza.

If anybody has a good gluten-free pizza crust recipe I could use it.

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dbuhl79 Contributor
dbuhl79
Posted

Christy,

Ah I feel so bad for you, just figures you open this great shop and now Celiac creeps its way ujp! I'm sorry I don't have a recipe to post, but if you do a search there are SEVERAL posts on here w with various pizza recipes. And being as that what you do, I am sure with a bit of trial and erro you can figure out a great balance from the recipes given. And please post when do youdo!

I love pizza, and its been great playing around with the different crusts. Good luck, and keep us posted!

darlindeb25 Collaborator
darlindeb25
Posted
:( sorry Christy, to be giving more info you wont want to hear, but you are going to have to be very careful in your pizza shop--airborn flour is as bad for us as eating it--we can get very sick just by breathing too much flour in--my sister became very ill when making her kids rolled out sugar cookies--you may need to check further into this--sorry, deb
FreyaUSA Contributor
FreyaUSA
Posted

There's a bakery (that does all the baking for it's 3 restaurants and other area retailers) near my kids' gymnastics studio that has a great latte... Well, every time I go in there I get sores in my nose. They're totally annoying, but I haven't had any of my other glutened reactions, not even the headaches. It may be you'll be fine. Wear a face mask when mixing doughs?

You might want to contact the baker for Wholefoods that has just started a gluten-free baking (factory?) for the chain. In the bio I read about him, he worked in the regular bakery, with celiac disease, for well over a decade. You can ask him how he handled the flour in the air, if it even bothered him.

Now, you do realize your business will very popular with this group, don't you? Find a good gluten-free pizza crust, let your area know you have it, and you'll have every celiac/wheat allergy individual frequenting your place in no time! (For a gluten-free pizza crust I use the recipe for Crumpets from Bette Hagman's "More from the Gluten Free Gourmet." One recipe makes a large round pizza pan worth. I bake it a bit before topping, top and rebake. My kids really like it.)

JUDI42MIL Apprentice
JUDI42MIL
Posted

Christy- I just wanted to say I am so sorry. WOW opening a pizza shop to find out you have celiac.

I agree be careful with the airborne flour. And let us know where you are, so when you find that perfect crust we can eat, we can come by and have some. :) Boy I miss pizza

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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