Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kid W/ Other Gi Problems + Celiac

wildones

Recommended Posts

wildones Apprentice
wildones
Posted

I just discovered this forum, and am really glad I did. I have 7 yr old triplets, and two of them have celiac (one confirmed, one strongly suspected). My son with the confirmed celiac also has short bowel syndrome, he had 70% of his small intestines, his ileocecal valve and part of his colon removed. The celiac diagnosis is relatively new (@9 months ago). His chronic abdominal pain and nausea are better, but not gone by any means. He has a lot of scar tissue in his abdomen because of so many surgeries. He had his gal bladder removed because of a huge stone in his common bile duct and a really bad case of pancreatitis when he was 4 yrs old.

He had an atypical effect from the celiac-he was chronically constipated. The motility of the gut is what is affected by celiac, as I understand it. It is much less common to be constipated and it is very unusual for a kid with short gut to be constipated.

The nutrition challenges are really big with short gut kids, and the added stress of a celiac diet also has been really challenging for me. All three of my kids had a totally milk protein free diet for 4 yrs. That was challenging, but they didn't know any better :D . Now my boys have tasted all kinds of gluten containing foods and are having a hard time giving them up.

Does anyone have a child w/ additional nutrition challenges, besides celiac ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to science enthusiast Christi's topic in Coping with Celiac Disease
      4

      Sugar intolerance 10 years into gluten-free diet

      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO). Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet. Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas. I changed my diet to the Autoimmune...
    2. Yaya
      - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Great Value Veggies cannot be trusted.

      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.
    3. trents
      - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      8

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      "I am quite convinced this gluten is coming from exposure whilst eating out. Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    4. Peggy M
      - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      25

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not. They can be purchased direct from Solgar or Amazon.
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      3

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      The original source only mentioned that is was for "misdemeanor charges", so nothing serious.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,482
    • Most Online (within 30 mins)
      7,748
    AntiWheatBabe
    Newest Member
    AntiWheatBabe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Sugar intolerance 10 years into gluten-free diet

      By knitty kitty · Posted

      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO).  Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet.   Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas.   I changed my diet to the Autoimmune Protocol Diet (AIP), a Paleo diet, and supplemented with a B Complex and Benfotiamine, a form of Thiamine that helps heal the intestines and has antibacterial properties.  I had improvement within a few days.  The AIP diet starves out the carbohydrate loving SIBO bacteria and allows more beneficial bacteria a chance to repopulate. Hope this helps.
    • Yaya
      Great Value Veggies cannot be trusted.

      By Yaya · Posted

      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.    
    • trents
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By trents · Posted

      "I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    • Peggy M
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Peggy M · Posted

      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
    • Scott Adams
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By Scott Adams · Posted

      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.