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Kid W/ Other Gi Problems + Celiac

wildones

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wildones Apprentice
wildones
Posted

I just discovered this forum, and am really glad I did. I have 7 yr old triplets, and two of them have celiac (one confirmed, one strongly suspected). My son with the confirmed celiac also has short bowel syndrome, he had 70% of his small intestines, his ileocecal valve and part of his colon removed. The celiac diagnosis is relatively new (@9 months ago). His chronic abdominal pain and nausea are better, but not gone by any means. He has a lot of scar tissue in his abdomen because of so many surgeries. He had his gal bladder removed because of a huge stone in his common bile duct and a really bad case of pancreatitis when he was 4 yrs old.

He had an atypical effect from the celiac-he was chronically constipated. The motility of the gut is what is affected by celiac, as I understand it. It is much less common to be constipated and it is very unusual for a kid with short gut to be constipated.

The nutrition challenges are really big with short gut kids, and the added stress of a celiac diet also has been really challenging for me. All three of my kids had a totally milk protein free diet for 4 yrs. That was challenging, but they didn't know any better :D . Now my boys have tasted all kinds of gluten containing foods and are having a hard time giving them up.

Does anyone have a child w/ additional nutrition challenges, besides celiac ?

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    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      If you don't like prunes, Figs are rich in fiber, with 3-5 dried figs providing about 5 grams.
    • Wheatwacked
      Fiber Supplement

      By Wheatwacked · Posted

      edited after your post: "one cup of canned prune juice has 707 mg of potassium, while half a cup of dried prunes has 635 mg... whole prunes provide more fiber and fewer calories per serving." - google  When I complained of constipation due to my BP meds my doctor recommened prune juice without hesitation,  When I bother to eat Prunes or plums it works.   I think the fruit is better for you than the juice for addition nutrients.
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      Fiber Supplement

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      Thanks, I do include chia seeds and ground flax seed in my diet to help as well but on days that I'm not close to my target of 30 grams of fiber, I would add the Benefiber. My IBS-C was much better with both natural foods and the supplement so I will continue to search for another natural supplement that is not based on wheat to have when needed. Thanks 
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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
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