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How Long Does It Take To Heal?


GluFREEthatsME

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GluFREEthatsME Newbie

Hey all,

I've been gluten free for a month now. I've been overweight for quite some time and have heard that people with gluten intolerance are usually underweight. That's a little confusing for me, but I have lost 12 pounds in a month. I'm eating very healthily - 80% organic fruits and veggies, gluten free, dairy free, soy free, low salt, sugar free (except some cane, honey, real maple syrup as sweeteners), no crappy processed foods.

Anyway - I had been suffering for quite some time (stomach pain, digestive problems, acid reflux, etc.) All of that has just about melted away, but wondering how long it REALLY takes to heal. I was diagnosed with CFS/FM in 2003, and suffer a LOT of pain, daily. I'm hoping that this may eventually dissipate, but as yet, I don't feel any better in that department.

Just wondering if there are others like me out there who have actually reversed FM pain through gluten (and other) free diets.

Glad to have found this group and thanks for listening :)


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Wolicki Enthusiast

Time to heal is different for everyone. I, too, had chronic pain. Pleurisy, joint pain, muscle pain, daily for 10 years. Most of the pains went away within a month. I still have occasional joint pain, but it seems to be related to specific foods. I have been gluten free for 7 months. I still have a ways to go with healing intesinal damage, but it is so much better than it was. As long as you stick to the diet, you will continue to improve. My rheumatologist is amazed at the difference. My pain was so bad I was taking prednisone at least 3 times a month! Haven't had any steroids at all since going gluten free.

luvs2eat Collaborator

I don't have FM pain, or any pain really. My symptoms were/are all digestive. I can tell you that it took the better part of a YEAR (as I realized I was making a lot of mistakes) before I decided my bowels had returned to "normal."

sandsurfgirl Collaborator

Unfortunately for some of us celiac causes us to gain weight instead of lose it. Your body is malnourished so it slows your metabolism and hangs on for dear life to every single calorie you eat. Also it will raise your appetite so you take in too many calories to compensate for the lack of nutrition.

It's a myth that cost me 7 years of my life in illness and 2 horrific pregnancies because a GI doc told me my weight gain assured him that there was no way I could have celiac disease.

GluFREEthatsME Newbie

Thanks for your responses! OMG - I believe I may have had this all of my life! Unfortunately, I guess it CAN go undetected, depending on the severity of the symptoms. Honestly, this is the first time I am eating food that I don't get a stomach ache from. How did I get used to those stomach aches to the point where I thought they were normal after eating. If I were nauseous, I might have suspecting something, but a burning sensation and some discomfort was just annoying.

I didn't know the difference, until I cut out ALL gluten. Wow - now I know what it feels like to eat and not have that discomfort. Man - I feel pretty stupid, but I wonder how many people go through this and not realize.

Thanks Sandsurfgirl - I'm glad to hear that the weight thing is not necessarily a given. You had horrific pregnancies and I couldn't get pregnant at ALL, and had an early menopause at 41. I recently read that Celiac can cause infertility and early menopause. NOW YA TELL ME! I'm kinda angry that doctors still don't realize the kind of damage this can cause and make sure their patients are thoroughly tested for this if there are signs of any digestive problems!

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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