Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take To Heal?


GluFREEthatsME

Recommended Posts

GluFREEthatsME Newbie

Hey all,

I've been gluten free for a month now. I've been overweight for quite some time and have heard that people with gluten intolerance are usually underweight. That's a little confusing for me, but I have lost 12 pounds in a month. I'm eating very healthily - 80% organic fruits and veggies, gluten free, dairy free, soy free, low salt, sugar free (except some cane, honey, real maple syrup as sweeteners), no crappy processed foods.

Anyway - I had been suffering for quite some time (stomach pain, digestive problems, acid reflux, etc.) All of that has just about melted away, but wondering how long it REALLY takes to heal. I was diagnosed with CFS/FM in 2003, and suffer a LOT of pain, daily. I'm hoping that this may eventually dissipate, but as yet, I don't feel any better in that department.

Just wondering if there are others like me out there who have actually reversed FM pain through gluten (and other) free diets.

Glad to have found this group and thanks for listening :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Time to heal is different for everyone. I, too, had chronic pain. Pleurisy, joint pain, muscle pain, daily for 10 years. Most of the pains went away within a month. I still have occasional joint pain, but it seems to be related to specific foods. I have been gluten free for 7 months. I still have a ways to go with healing intesinal damage, but it is so much better than it was. As long as you stick to the diet, you will continue to improve. My rheumatologist is amazed at the difference. My pain was so bad I was taking prednisone at least 3 times a month! Haven't had any steroids at all since going gluten free.

luvs2eat Collaborator

I don't have FM pain, or any pain really. My symptoms were/are all digestive. I can tell you that it took the better part of a YEAR (as I realized I was making a lot of mistakes) before I decided my bowels had returned to "normal."

sandsurfgirl Collaborator

Unfortunately for some of us celiac causes us to gain weight instead of lose it. Your body is malnourished so it slows your metabolism and hangs on for dear life to every single calorie you eat. Also it will raise your appetite so you take in too many calories to compensate for the lack of nutrition.

It's a myth that cost me 7 years of my life in illness and 2 horrific pregnancies because a GI doc told me my weight gain assured him that there was no way I could have celiac disease.

GluFREEthatsME Newbie

Thanks for your responses! OMG - I believe I may have had this all of my life! Unfortunately, I guess it CAN go undetected, depending on the severity of the symptoms. Honestly, this is the first time I am eating food that I don't get a stomach ache from. How did I get used to those stomach aches to the point where I thought they were normal after eating. If I were nauseous, I might have suspecting something, but a burning sensation and some discomfort was just annoying.

I didn't know the difference, until I cut out ALL gluten. Wow - now I know what it feels like to eat and not have that discomfort. Man - I feel pretty stupid, but I wonder how many people go through this and not realize.

Thanks Sandsurfgirl - I'm glad to hear that the weight thing is not necessarily a given. You had horrific pregnancies and I couldn't get pregnant at ALL, and had an early menopause at 41. I recently read that Celiac can cause infertility and early menopause. NOW YA TELL ME! I'm kinda angry that doctors still don't realize the kind of damage this can cause and make sure their patients are thoroughly tested for this if there are signs of any digestive problems!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.