• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

Hello I'm new to the site. I haven't been diagnosed with celiac disease, but after being made aware of the disease by a friend, I find I have many of the symptoms.

After 6 months and many tests my alkaline phosphotase level had reached 1700+ and my family doctor referred me to a gastroenterologist. He determined the alka. phos. was coming from my liver verses my bones. I noticed high alka. phos. levels is one of the symptoms, but it seems the source is usually the bones not the liver. Am I correct? Or can celiac disease cause the liver to increase these levels?

The first thing the gastroenterologist did was put me on 40 mg of prednisone and within a few days I lost the blotted feeling, sever headaches, body aches, and fever. A liver biopicy indicated it could be autoimmune hepatius, but the sample wasn't large enough to be conclusive. After a a few weeks he suggested another biopicy to confirm, and it turned out negative, my liver was in good shape with no damage. The prednisone brought my alka. phos. levels down, and he started to wean me off. The first day completely off my headaches and fever returned. He checked my blood again to find the phos was rising again.

Now I'm on 20 mg a day and it seems to help some, but not as much as originally. I'm taking 600mg ibuprofen 2-3 times a day. I've been through about every test imaginable except my small intestine. I've also seen an infectious disease doctor and an alergist with no results. I see the gastroenterologist again in 2 weeks, and will ask him about celiac disease. He hasn't made any mention of it being a possible cause of my problem, he did say he thought my liver problem was a secondary problem caused by something else.

Sorry this is so long, the main question I have is has anyone know if alka. phos. elevations from the liver can be a result of celiac disease? I want to go to the doctor with as much info as I can get. Thanks for any help, Larry

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Mine is out of range as well and it is definitely my liver as a result of the celiac disease. The simplest way to determine if celiac disease is your problem is to have a celiac panel (blood work) done. It will tell you much.

Share this post

Link to post
Share on other sites


Thanks for the response, it may sound strange but this is the best news I've received since seeking medical help for my symptoms. :D

After countless tests without any answers I was finding myself wishing that the next test would find some problem just to give some direction to an end of my misery. I missed so much work the last 2 years, there was a lot of financial stress added to my already miserable list of symptoms.

My spleen is also enlarged and I see that celiac disease is said to effect among other things the spleen, liver, and gall bladder. I have beta thalassemia and I was told this anemia disease is the cause for that.

My gastroenterologist seems to be an excellent doctor. I'm pretty certain he will be more than happy to persue celiac as the problem if I bring it to his attention. From some of the posts I've read it appears many doctors are ignorant about celiac disease.

Thanks again, your confirming the possible relationship between my liver disorder and celiac disease, at least lifted my spirits and I'm looking forward to having this test and hopefully putting these symptoms behind me. :)


Share this post

Link to post
Share on other sites

Glad to be of help. I hope your gastro doc is as helpful as my first was. It is so much easier when you have support. Make sure you get any testing done prior to going gluten-free to ensure quality test results. Even then, it is possible to get a false negative just not as likely. You may be surprised at how much you will improve after being gluten-free for a while if the root of the problem is really celiac disease.

Share this post

Link to post
Share on other sites

So far I really like my gastro doc, he seems very concerned about finding the solution to my problems. In the last 4 months he has personally called me at home 11 times. I'm not used to that personal touch from a doctor. :)

That fact that he has made no mention of celiac disease as a possibility seems to be the general lack of knowledge about the disease among most doctors. That's why I want to get as good an understanding of celiac disease before disscussing it with him.

This site has a wealth of info and I'm picking up alot of it here. When the general medical industry as a whole is somewhat ignorant about such things as celiac disease, I feel there's great value in the opinions of the people who are/have gone/going through this condition.

Will be talking to the doc later today. Thanks to all for helping me get some understanding of celiac disease.


Share this post

Link to post
Share on other sites
Ads by Google:

Interesting that a high Alk Phosphatase is indicative of celiac disease. I have not been diagnosed with celiac disease but gluten-intolerance, yet my Alk-P has always been lower than the normal range.

My doctor always blows over it, saying no biggie - only worry when it's high. But I did some research and found a reference that says it could indicate pernicious anemia (deficient in B12) so I'm taking that on a regular basis now.

Thanks for the info.


Share this post

Link to post
Share on other sites

I go in for the blood test tomorrow morning. My gastro doc said he had patients with celiac disease, but didn't think I fit the profile but was happy to explore any possibilities at this point.

I'm not going to wait for the results of the test before starting the gluten-free diet, I'll start it tomorrow after the test.

I was on the atkins diet for 3 months a couple of years ago, probably wasn't completely gluten-free as I wasn't concerned with gluten and eat some processed meats and dressing that may have had gluten added. But I did feel alot better when on it than I had before and since. I figure going gluten-free will be easier than atkins cause I can still have my taters. :) Just have to watch what I put on them, and any seasoning I use on meats.

Thanks for the help, Larry

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Donna 63
  • Popular Now

  • Topics

  • Posts

    • Hi Nikkster, They often call the celiac testing a celiac panel.  There is also a celiac screening test they sometimes do first, the ttg.  You want to get the full celiac panel if possible.  Not everyone shows up on just the screening test.
    • Maybe get your vitamin D levels checked.  And take some K-2. K-2 is supposed to help vitamin D absorb into bones.  Oh, and skip the Dominos next time! We all make mistakes at times,.
    • I am actually trying to bulk up and body build with this disease. I go with a keto diet of fats and protein, I use vegan protein powders throughout the day. I used to use nutrakey V-Pro and now mostly use MRM Veggie Elite, blend, and do my own mixes with Naked Pea, Jarrow Pumpkin seed, MRM Sancha Inchi, and various blends from Julian Bakery pegan line. I use them in shakes with almond butter or sunflower butter sometimes using macadamia, pecan, etc. If I can get them and drink it throughout the day. I found large omelettes and quiche made with coconut flour and almond flour with leafy greens mixed in every day for breakfast works out great. I found some nut based breads (found online then started making my own in my bakery) and eat them toasted with avocado. And I always have 1 scoop pumpkin protein (great for recovery) and 1 scoop pea protein before bed. I sometimes take extra BCAAs from Jarrow to help prevent muscle break down Try adding a bit of coconut oil to everything to get in more fats.   <.< recently trying some T boosters but not seeming much from them.
      Keto Fat bombs...look them up made with nut butters, coconut, coconut oil, and protein powder versions great way to stack on the calories.
    • I'm from the UK so I can't help you on the recommendation, but  instead of canned chili have you tried making your own? It's super easy to do, far nicer and cheaper than any  pre-made  variety and you can make a big batch and freeze small portions so its always available if you need a quick filling meal? There's no reason a chili should include gluten btw, but if they're telling you that there's a high probability of cc its best not to eat there in any case!   Edit: checked their site:  https://www.skylinechili.com/special-dietary-options.php#glutenfree They're basically telling you there could be cc  
    • I live in Cincinnati. One thing we are known for is chili and a horrible football team. I was wondering if anyone had one of those gluten detectors and how they work because I would love to test them. They claim to be gluten-free and even state that in their restaurants there is a high probability for CC. I even wrote the company several times but no reply. I just had some earlier and am up with a reaction to something. I'm leaning towards the chili. Is there any good canned chili out there that will not make me sick?
  • Upcoming Events