Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Start A Low/no Fodmap Diet


BRUMI1968

Recommended Posts

BRUMI1968 Collaborator

Hi all. I'm about to start a low/no FODMAP diet tomorrow. (I wanted to eat up the Brussels sprouts and zucchini I had just bought first.) I am thinking of doing ZERO high fodmaps for a couple weeks, then adding each family in one at a time. Is that reasonable? I don't have the books and my library does not have them either, but I do have a list of foods that should be limited and those that are allowed.

I already don't do gluten (obviously), soy, sugar, garlic (bloats me), dried fruit (stinks me right up), dairy...and I eat very little grains. Rice makes my teeth hurt (demineralization?). Corn actually works okay for me as a grain, so I might go with that if potatoes start to make me crazy.

Symptoms are not severe, just bloating and gas. Those were always my main problems, along with C, and the bloat has only ever gone away on the body ecology diet (which is very hard to maintain) ... so I think the low sugars might be key.

Anyway, any advice would be welcomed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

I started FODMAP 2 months ago and love it. I was tested to be lactose intolerant and fructose intolerant. I was having a severe onion reaction when I saw the Dr so fructans was also dxed. I know I react to sorbitols.

Please check Sue's info re to dairy. Lactose free is re to FODMAP and this means that you can eat hard cheese, butter and cream and also may be able to tolerate small amounts of milk. A lot of people get this wrong and being able to eat cheese etc is an important thing. Dairy free may not be necessary unless you have a casein intolerance ( which is not FODMAP)

And take note of how small amounts of the intolerance may be suitable. Sue actually advises NOT to totally eliminate all intolerances but to simply learn better ways to manage them. Fructose for eg ( an apple) may be OK if combined with glucose as then the glucose molecule helps break down the fructose molecule in the gut. So apple pie may be OK ( with cream ! ) but an apple on its own may not be.

Everyone has different mileage. And in time there is some healing so the goal posts may move.

This is Sue Shepherd's page. Open Original Shared Link

BRUMI1968 Collaborator

Thanks so much. I don't do dairy now as even the smallest bit of it makes me have constipation for days. Also, I'm mostly vegan so it fits well with my other dietary philosophy. And lastly, I don't even miss cheese that much. Thanks for letting me know that though - I know lots of folks struggle with the dairy thing and wish like crazy they could eat it. Once I stabilize, I'll take note of which dairy I can eat on low FODMAP and try it out if the situation seems right.

I'll check out that website. Thanks.

-Sherri

BRUMI1968 Collaborator

Well, started out nicely. Quit all the high fodmap foods and the bloating and passing of gas did diminish greatly. Then one day I decided that salsa didn't have anything I couldn't eat (I'm having a bad case of anemia right now and its affecting my brain capacity) so I ate some. About 20 chips into it I'm like, "wait, that's onion". Next day, bloat city. Anyway, I'm still going to try to add back onion separately in a couple weeks.

On the anemia note, ate some steak today - first time in two years. At first it felt like a rock in my stomach, but I feel okay now. I need to find my digestive enzymes ... they're around here somewhere.

Anyway.....

I'll post if anything interesting happens.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.