Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eye Doctor Says It's Not Night Blindness


brendygirl

Recommended Posts

brendygirl Community Regular

We moved, so I went to a new eye doctor to replace my eyeglasses. I only have difficulty seeing at night or in the dark or when small writing is backlit, like on a projector. My other eye doctor called it night blindness, about 10 yrs. ago. I don't wear glasses on a daily basis, at work, reading, or in most activities. Just in the dark. If you read about celiac, a possible side effect is vitamin A deficiency (among many vitamin deficiencies, due to malabsorption), which causes night blindness. I was a health-conscious vegetarian before my celiac dx, so I ate TONS of veggies and vitamins.

Anyway, when I mentioned the words night blindness to this eye doctor, she said people like me with light colored eyes can have pain from bright light. She repeatedly told me that if I had dark eyes like her (and she pointed to her own eyes) that I wouldn't have the pain. Astonishing, how everyone in my famiy has light colored eyes, green or blue, and nobody else has this pain.

I am aware that there are many things that affect the eyes, like my great grandfather who has that white ring around the iris from high cholesterol, or diabetics who can lose their eyesight. How she cannot be aware of celiac, or its effects on her area of expertise, is beyond me. I told her I have celiac and she said, "What? Shell-ee-ac?" Then, instead of saying that she needed to look it up, she said no, that's not the reason, and you do not have night blindness.

Above all, my b.s. detector went off. She didn't have a clue, and the worst part about ignorance, is not having the integrity to say, I'm not aware of that, I should research it. Anyway, she tested me with lenses, in the dark, with the backlit letters, and I got my new glasses. That are for bad eyesight, but the kind that is only bad in the dark, I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I have light colored eyes. Green, the color of split pea soup. I don't have eye pain on a regular basis, although at times I get blepharitis and that can cause pain. I do have something like night blindness. One eye Dr. said my eyes do not adjust to the light nearly as quickly as normal eyes would. For me the worst situation is going from bright light into darkness.

If I go to the movies, I need to get there early and get seated before the movie starts while there is still some light. My friend did not believe me and insisted that we go just minutes after the movie started. She wound up yanking me out of there after I stepped on and felt up people in an attempt to find an empty seat. That was an old theater that had a balcony. She wound up taking me up there where there were available seats. And she never questioned what I said again!

Another time, I went to the movies with my husband who also didn't believe me about the light. I had to leave for some reason. I can't remember now. I knew he was sitting near the back on the side. I patted some guy on the head, felt his curly hair and said, "Oh! You're not my husband!" My husband was not amused.

I also have extreme trouble walking outside at night time. I also have neuropathy in my feet and legs. The Dr. said I need visual cues to help me with my balance. And in the dark I don't have those things.

I remember going to some event at my daughter's school. The sidewalk was lit but i had to step from there into the shadow of my van. It was like stepping off into outer space. I had no idea where the ground was. I had to grab onto the van and feel my way around it. People were staring.

My brother also has light eyes. His are more of a greenish/light brown. He has pain in his eyes when he goes into the sunlight. I am not sure why. He has a lot of problems with his eyes. Used to be cross eyed but had an operation to correct it. But now when he gets sleepy, one eye will turn up. He is also farsighted in one eye and nearsighted in the other. So he has no depth perception.

tarnalberry Community Regular

I have light eyes and am rather light sensitive, but it's not just at night. I see no reason why you can't have light eyes and be night blind, even if it's more common for lighter eyed people to be more light sensitive.

wheeleezdryver Community Regular

my eyes are hazel, and i've had light sensitivity (but no nightblindness) since i was a teenager (if not longer). Sunglasses never worked well for me... yes, they protected my eyes from the sun, but could still feel the sharp glare of bright things.

i hate driving at night when it's raining... everything reflects off the wet pavement & it makes it hard to see.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,755
    • Most Online (within 30 mins)
      7,748

    vickie343
    Newest Member
    vickie343
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.