Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Glutening?


kitgordon

Recommended Posts

kitgordon Explorer

I got glutened by some sweetened nuts at a friend's house (didn't look at the label - duh! smacks self in head!) nearly 3 weeks ago. Next day started with my usual GI symptoms, then a few days later I started getting what I thought were mosquito bites on my feet, but as new ones kept arriving around my elbows and knees and on my hands, I realized it is probably DH, which I've never had before. New blisters are still popping up 3 weeks later. Is it likely this is still a reaction to the nuts, or should I suspect something else I am eating? Any guesses on how long it is likely to last? And any suggestions on home remedies that help? The itching is miserable, but I don't want to go deal with incompetent doctors or take potent medications with possible side effects if I can help it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

The reaction can last anywhere from a few days, to a few weeks, to a few months. DH can be sensitive to iodine which can cause the antibodies to remain active in the skin. you may have to limit iodine in order to heal. If you find that you do have to limit iodine, Thyca.com is the low iodine diet. You can use regular salt and stop using iodized salt to see if that helps some.

For relief of pain and itching you can get Walgreens brand of Pain Relieving Ointment that has Benzocaine in it. Solarcaine or Bactine also work. It is only temporary relief though, and you have to reapply often, but it can get you through the bad nights.

DH is very sensitive to cross contamination. Be sure you are very careful now and if you haven't already you will want to check your personal products too.

Your description of this is very much in line with DH.

Limit iodine, get super strict on gluten free, apply pain relieving ointment.

It took me two years to heal my DH, but the reactions from a glutening only last a few weeks now, and they are not nearly as bad as they were. It usually occurs within one week of an accidental glutening. I have had to limit iodine to heal DH.

I hope you feel better soon.

squirmingitch Veteran

What eatmeat said!

kitgordon Explorer

Thank you for the suggestions and well-wishes :) . I did get a benzocaine cream, and it is more helpful than the hydrocortisone I had been using. I also am switching to non-iodized salt, to see if that helps. I hope I don't need to go as far as the low iodine diet; it looks awfully restrictive (as if gluten free isn't tough enough, right?). I am normally very careful about my food, but I guess I'd better rethink my personal products. That hasn't been in issue for me in the past, but maybe it is going to be now.

squirmingitch Veteran

It's possible that you could just do low iodine diet for 2 weeks & that will be enough to make it lay down for you. But you may want to use non iodized salt from here on out. And sea salt has iodine so just get the plain old non iodized salt.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,347
    • Most Online (within 30 mins)
      7,748

    Emhope1107
    Newest Member
    Emhope1107
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.