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Extremely Confused Due To Symptoms.


ElianRiddell

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ElianRiddell Newbie

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.


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mushroom Proficient

Did you have the celiac panel blood test, or the foods intolerance testing?

ElianRiddell Newbie

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

janpell Apprentice

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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