Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Confused Due To Symptoms.


ElianRiddell

Recommended Posts

ElianRiddell Newbie

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Did you have the celiac panel blood test, or the foods intolerance testing?

ElianRiddell Newbie

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

janpell Apprentice

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,858
    • Most Online (within 30 mins)
      7,748

    Grit
    Newest Member
    Grit
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Flash1970
      I never had bad stomach issues before I was diagnosed.  What I did have was anemia  and hashimoto's thyroid disease. The celiac was suspected because I had to keep taking higher and higher doses of synthroid just to try to get out of hypothyroidism and also the unresolved anemia.  Once I had the blood tests,  celiac was confirmed. 
    • Mari
      It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific  thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can get this into the scientific conversation about autoimmune  problems. I hope so. On a more practical level please give me the name of the thiamine that you recommend. I forgot to copy it the last time you shared it.    Thanks
    • Mari
      Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems  Celiacs face  when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals.  You seem to be coping quite well. It is not clear to me whether you are suffering because you miss the companionship of shared meals or are a little outraged by the unfairness of your situation/ It is unfair but if you managed to force the  facility to provide a gluten-free kitchen they would go bankrupt.  Just too expensive. Many of the residents would become outraged at not eating the gluten foods they love to eat. .I think you have adapted very wellIf this place does provide some foods that are gluten-free but cross contaminated you may be able to use an antigluten enzyme that you could take with meals. The one advertised here, GliadinX works well for me. Bring your own bread and pastries from your freezer. I sympathize. You could still follow through with the suggestions Scott and Trents made.
    • Rory Bokser
      Hi everyone,   I've been struggling with identifying food triggers beyond gluten — things like dairy, soy, corn, and various FODMAPs. Elimination diets are incredibly helpful but the tracking part is a real pain.   I recently came across an app called Tract (tract.health) that's specifically designed for gut health tracking with IBD, IBS, celiac, and elimination diets. It lets you log meals, symptoms, bowel movements, and stress all in one place, and uses AI to help identify patterns between what you eat and how you feel.   For those of us dealing with multiple food intolerances on top of celiac, something like this could be really useful — especially when you're doing a low-FODMAP or specific carbohydrate diet and need to see correlations over weeks of data.   Has anyone here tried it or something similar? Would love to hear what tools others are using to track food intolerances beyond just gluten.
    • HectorConvector
      I take B12 and Vitamin D (1000 I.U) as well. I can't take 500mg twice a day, only once due to cost reasons. I'm getting more than the minimum rda of Niacin in my diet but not supplementing it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.