Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Confused Due To Symptoms.


ElianRiddell

Recommended Posts

ElianRiddell Newbie

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Did you have the celiac panel blood test, or the foods intolerance testing?

ElianRiddell Newbie

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

janpell Apprentice

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      8

      Feel like I’m starting over

    2. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      8

      Feel like I’m starting over

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Iam replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,308
    • Most Online (within 30 mins)
      7,748

    somersgoldens
    Newest Member
    somersgoldens
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.