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Aerin328

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Everything posted by Aerin328

  1. Aerin328
    The gurgles are terrible!
  2. Aerin328
    Is standard ground pepper OK? If I go into a random restaraunt should I be wary of the pepper in the pepper shaker? If pepper is a concern, what type should I buy? I'm on a spice witch-hunt... Thanks!
  3. Aerin328
    I had a similar experience recently. I was at the grocery store and I saw a beautiful tray of hot yummy lemon peppercorn chicken. I asked the cook about the gluten, they said it was gluten-free. Regardless, I asked if I could check the ingredients list on the spice they used... the list looked OK to me, so I promptly purchased and consumed the chicken whole...
  4. Aerin328
    lol
  5. Aerin328
    Depression/ brain fog come and go! As the antibodies stay in the system for at least 1 year I think the body continues to react to them and it comes in waves. Hang in there!
  6. Aerin328
    Courtney, I've been gluten-free for almost 4 months and I'm still dealing with brain fog. I asked the same question on this forum and was told by several others it's the "last symptom to go away." I've read it takes 1-2 years to completely recover! I was told by one fellow celiac "6 months at the very soonest; average is 1-2 years." Don't lose heart...
  7. Aerin328
    I've been told bloodwork can show up negative and one can still have celiac's. Or it can be potentially misinterpreted: My blood work was classified as "negative" by two doctors, and then a third doctor said my elevated Antigliadin IgG (only) meant positive for celiac's. Needing a more firm result I went to Enterolab : the Enterolab testing is much more sensitive...
  8. Aerin328
    Sara, Probably best to play it safe! Perhaps just mention your gluten intolerance to him briefly during your date : he may even appreciate you're being upfront and telling him something personal on the first date . Christian
  9. Aerin328
    Laura, I'm relatively new to this celiac thing too. I had two doctors tell me that elevated Antigliadian IgG in the blood didn't mean squat; and then I went to a doc who apparently is "specialized" in celiac's and he said elevated Antigliadin IgG almost always means celiac's disease when accompanied by symptoms (even if blood IgA is not elevated). Well,...
  10. Aerin328
    Sissy, Don't worry, things get easier! After reading labels for a few months it becomes second nature. The bigger problem for me anyway was the fact that certain symptoms (especially brain fog, malaise, etc. in my case) can be quite tenacious. All symptoms definitely improve gluten-free, but it takes TIME. I've been gluten free not quite 4 months now and...
  11. Aerin328
    You said you had grilled cheese before you got sick... perhaps it is actually casein intolerance? From what I understand a lot of celiacs who are have immune reactions to gluten also have reactions to casein (the protein in dairy products). In fact Enterolab tests casein automatically when you order the celiac panel. Just a thought! Christian
  12. Aerin328
    It was only a couple weeks after I went gluten-free that I had terrible horrible intestinal pains. They occurred after every time I ate for about three weeks (even though I was gluten-free), then went away. I also think it's true the body reacts to gluten in a different way once gluten has been removed for a while: if you've removed it and then added it here...
  13. Aerin328
    Yes, first step is not to panic! Just take one step at a time. There are many great "newbie" directed posts on this forum (you can search for them) which go over all the basics of starting up in considerable detail. As you inevitably have questions you can always turn to this forum, there are so many great people here who are willing to help any time. Also...
  14. Aerin328
    I have used Stevia to cook in the past, it is doable but in my opinion it doesn't taste as good baked as it does straight. Honey is a great tasting substitute in many recipes if you can have it. I'm interested to see what you discover as I am also trying to avoid refined sugar. I seem to react to foods that have any "sugar" in it, but not so much to foods...
  15. Aerin328
    Elizabeth, Not sure about the thyroid issue but as Carla articulated an endoscopy can definitely miss celiac disease damage. Go to Enterolab if you need test results: www.enterolab.com . Otherwise try going gluten-free for a few months and the results on your health should be proof enough. Good luck! Christian
  16. Aerin328
    I think many of us celiacs are made to feel like hypochondriacs by the docs at some point. Don't let the looks the docs give you bother you too much - you are the patient, you largely know what's wrong with you. Good luck with all the crazyness!
  17. Aerin328
    I'm not a dietician, but 8 x 8 oz glasses of water is what they say normal full water intake should be which I guess is 64 oz (vs the 85 oz + 1 bottle of water you drank yesterday). But really, it shouldn't matter how much water you drink as long as you are intaking enough sodium, potassium, etc.
  18. Aerin328
    Just a comment = some soy milk has gluten in it. I believe Silk brand is safe. Also, brocolli causes lots of gas b/c it feeds the good bactery w/ all that fibre. Good luck, things will improve!
  19. Aerin328
    Enterolab is very definitive that any number at 10 or above means you are having an auto-immune reaction to gluten and it should be removed from the diet. Christian
  20. Aerin328
    Aaron, I had Celiac's disease when I was 16, but I had no idea. I didn't notice any impairing effects until I was in my early 20's. And then when I had just turned 26, I was hit with the worst illness of my life that dragged on for months and months. It is now going to take me a very long time to heal - some say 1-2 years. I have been gluten free for almost...
  21. Aerin328
    If this event prevents you from ever intentionally glutening again, then it was definitely worth it. Good luck in your speedy recovery!
  22. Aerin328
    Thank you everyone for the congratulations. We are excited! The past few weeks have been a strange mix of pain and celebration. We're looking forward to putting all this celiac and pneumothorax crazyness behind us and starting a wonderful healthy gluten free life together. It's just, again, so strange to me that within the same 6 months I would be both...
  23. Aerin328
    Just wanted to ask a quick question and wanted to comment regarding my absence on these forums lately. Three weeks ago my left lung spontaneously collapsed, caused by internal bleeding into the chest cavity. I lost one third of my blood out my chest and had to have a chest tube in for six days. I was in the hospital for eight days and have been in the care...
  24. Aerin328
    About a year ago I began dating a charming woman who had what I considered at the time to be "overly complicated" dietary requirements (due to Celiac's). 6 months ago, however, I was struck down full blast by Celiac's disease myself! We are now still together and planning for a gluten free future. I know our case is rare (we feel VERY blessed to have found...
  25. Aerin328
    I've read this so many times but once again it's so encouraging to hear again. I'm not even 3 months into it, and my digestive symptoms have mostly healed (yeah!!), but I just can't shake the malaise and fatigue. (I have to remind myself that Enterolab even says the anti-gluten antibodies stay in the system for 1-2 years after cutting out gluten, and you...
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