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Kate333

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kate333

  1. Like you, I dropped weight (always was in the normal BMI range). But with time and healing, my weight has crept back up. Give it time. Thanks for the kind encouragement CL!! I have only been on this gluten-free diet "adventure" for 6 months...so I will try to be patient and let my body take the time it needs to heal, regain some weight. Thinking...
  2. I would not trust ANY packaged/processed food, esp. Cheerios which, is packed full of garbage like most commercially-made cereals (additives, artificial flavors/colors, high fructose corn syrup)--much of it hidden by use of exotic, confusing content names, designed to fool even the most educated, careful label-reading shoppers). Gluten issue aside,...
  3. Thanks for everyone's great comments, links, and insight!!.... But could we PLEASE close this thread now?? I am pretty overwhelmed by all the back and forth comments/discussions, info, tons of emails showing up in my inbox. It will take me DAYS to read through it all!!😵 Thanks, Kate
  4. Wow!! Thanks for sharing, KK. That gives me HOPE. I would be ETERNALLY GRATEFUL if my even some of my physical/mental symptoms improve that quickly with extra B/magnesium!!😁 I try not to blame my docs for not FIRST recommending a course of extra vitamins etc. They weren't taught about it in med. school. They (esp. GI docs, endocrinologists) also we...
  5. Hi again. KK. How many days/weeks/months??? before you noticed an improvement in how you felt after beginning all those supplements? I asked that Q in my earlier note... Apologies for such a long-winded earlier note.😉
  6. If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ Thanks for the comments, PB. But, good God no! I am NOWHERE as sick as the person...
  7. Hi again KK. Thanks for your great words of reassurance, wisdom, and experience. I will definitely give that higher B1 dose a try, esp. knowing small risk of damage due to overdose (as can happen with other vitamins). Did you really notice an improvement after ONLY 3 days on B1?! Awesome! Could you pls. share the gluten-free brand name you take? Did...
  8. KK...I also forgot to mention that I take both daily multivitamin and B complex supplements. B complex pill includes 3 mg. of B1 and I also try to eat foods high in Bs every day. What triggered your "CC"?? Did you experience that rapid weight loss (and digestion issues) BEFORE you were dx with celiac disease? And how long did it take for you to regain...
  9. Thanks KK for reading/commenting/posting these article links! I know TD is a popular issue of discussion among holistic med community folks...However, my labs all show normal vit./mineral levels--including all the "B"s. I also have really IBS/stress/sleep issues, esp. bad since this pandemic/quarantine began...EVERYDAY loose BMs no matter what the...
  10. Hi Tamin8, I use "Minute Rice" (both brown and white, widely available in the USA where I live) because it is clearly labeled "CERTIFIED Gluten Free" which means (I think?...feel free to chime in here Cycling Lady) it has undergone a higher safety standard of review than packaged products only labeled "gluten-free" or worse "labeled gluten-free" with...
  11. Not much fat at all. For breakfast, I usually have eggs, some potatoes (plain or sweet), a veggie. Use to include processed lunchmeat but stopped that after I read about all the "fillers"/additives in them. For lunch I have one piece of freshly-cooked meat (chicken, salmon, or steak), rice (or another potato), salad, veggies. For dinner a few pieces of...
  12. Hi NGT...I share your symptoms and experience (celiac disease + IBS symptoms). I was dx with "possible" celiac disease (blood test elevated but biopsy normal) last year. Doc recommended I try gluten-free diet. I did. Despite the gluten-free diet my gut--esp. BMs--has been on a wild, IBS-like roller coaster ride (alternate D, C, with cramps, gas--apologies...
  13. Did anyone here suffer noticeable weight loss either BEFORE or esp. AFTER your celiac disease diagnosis and beginning gluten-free diet? That has become a BIG issue for me, despite being strictly gluten-free for 6 months. Yesterday, I had 2 small sirloin steaks, potatoes and veggies yet STILL LOST a pound! I am really struggling with this and esp. the...
  14. Thanks CL. Did you suffer noticeable weight loss before or esp. after your celiac disease diagnosis and beginning gluten-free diet? That has become a BIG issue for me despite being strictly gluten-free for 6 months. Yesterday, I had 2 small sirloin steaks, potatoes and veggies yet STILL lost a pound! I am really struggling with this and esp. the...
  15. Interesting NIH study...but I noticed it says she was using oral and topical steroids and, later, a gluten-free diet at the SAME time she had acupuncture...So perhaps not quite accurate for study authors to imply acupuncture was the definitive reason for her symptom resolution. Mind you, not slamming AP a bit (it has helped me immensely with pain issues...
  16. I have been struggling with chronic...ummm.. ahem..."digestion/BM" issues. (D every morning and C every evening--sincere apologies for graphic description). Doc thinks it may be IBS/anxiety (on top of celiac disease). I have also been on a "low fodmap" gluten-free/dairy-free, soy-free diet for quite awhile, hoping that would help heal my gut. And, like...
  17. I have also used acupuncture in the past with great success but primarily for physical pain issues. GDH is different than acupuncture: more like deep meditation/relaxation protocol. That seems pretty logical as the gut is frequently called "our second brain". I notice in times of great stress/anxiety my gut often intuitively "feels" something wrong even...
  18. Thanks, Awol!! Esp. for your kind encouragement! I live alone, so it is very comforting knowing others here are rooting for me, have been down that same rocky path and recovered. Happy 4th!
  19. Thanks, CL for your detailed, thoughtful response (as always). My gastro doc thinks I may have "possibly" IBS or SIBO in addition to gluten probs. But I can tell he's not really sure. I req. a breath test but he declined because he doubts their accuracy and because insurance co. will not cover them. I am currently UE, so limited budget to pay for second...
  20. Has anyone tried these? I know many either have dairy intolerance in general or related to onset of celiac disease. Am wondering if anyone finds these "products" helpful? I also saw a story on CBS' "60 Minutes" last week which implied ALL probiotics are essentially "snake oil". Yet my gastro doc recommended them...So hard to know WHAT to think these days...
  21. Effective or just "woo woo"? I found a study that indicates it might be helpful in reducing some symptoms. Perhaps worth trying.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1828217/
  22. FYI, This commonly-used supplement/food additive has been linked to digestion issues, gut bacteria imbalance, and other symptoms, which I continue struggling with daily despite 6 months of gluten-free diet. Also, it contains GM cornstarch or potato starch, a trigger for some folks. Just thought I would pass this on to those who have the same probs...
  23. Hi Bonbena. Welcome to the "club no one wanted to join".😉 The good news is this is a great emotional support group and source of information. The other good news is you discovered it very early in life so you will likely quickly recover, have minimal damage, and learn early in life how to take care of yourself and listen to your body. So many people wi...
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