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Kibbie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kibbie

  1. Kibbie
    My daughter was 18 months old when she was diagnosed and we were sent to a pediatric GI. We did do an endoscopy and up until recently I felt like I should have stuck to my guns and said no to that. Now I am starting to have a change of heart knowing that we have actual "gold standard" proof for when she is older is kind of comforting at this point. ...
  2. Kibbie
    I nursed my daughter for a little over a year and typically my causes for blocked ducks (the 3 times I had them) were from nursing in the same position all the time. Once I switched it up for feedings I didn't have a problem anymore. I was told the more positions you use and making sure you have nursed completely (the baby has drained you) the less likely...
  3. Kibbie
    I honestly believe that usually the parents gut feeling is the correct one. Are you dealing with your regular pediatrician or a GI Dr? That can make the difference. My pediatrician has flat out told me that she really knew nothing about Celiac disease when my daughter was diagnosed and my primary care physician was chalk full of bad and wrong information...
  4. Kibbie
    When I need a quick clear cut reason for someone like a waitress (a person I probably will never run into again) I always use the term "Sever Allergy" because that gets my point that it has to be gluten free across most effectively. For someone who would see my daughter regularly I give them this "lecture" (for lack of a better term) *most o the info...
  5. Kibbie
    My 3 year old ate a friends Macaroni and cheese after I told her not to and I made things as miserable for her as I could when she was sick. If she wanted to be held, I wouldn't, if she wanted to watch tv, I didn't let her, and I always said "No I wont let you do that because you ate gluten after mommy told you not to and it made you sick you can't do _...
  6. Kibbie
    The popcorn people Orville redinboker make rice cakes that we've had no problems with
  7. Kibbie
    I'd also try giving her some binding foods like bananas, probiotics (careful with the yogurt or pill form if you think lactose is an issue some of them contain lactose), blueberries, low fiber foods, carob flour added to applesauce, also look for pectin rich foods like pears, apples, grapefruit, carrots, potatoes, and beets, plus removing as much fat from...
  8. Kibbie
    I avoid most of them unless I have other options: (Not just for gluten reasons mainly for health reasons) I've never been to Burger King with my daughter sincd Dx but we have done McDonalds (grilled chicken breast and side of fruit) in a happy meal bag and she was fine. I use the word ALLERGY there because they seem to understand its serious when I say...
  9. Kibbie
    About 4 months after my daughter was diagnosed with celiac disease my grandfather went in for testing. He had been experiencing symptoms for about 5 years but the Dr.s always attributed it to side effects of his random assortment of medicines (he was 89 at the time) He tested positive for celiac disease My husbands side of the family has sketchy history...
  10. Kibbie
    I'm in Austin and Alamoceliac.com is a good place to start though I know there is a ROCK group in Dallas too. (my daughter is 3) There is not requirement that childcare facilities must be educated/trained on this disease it is treated much the same as a food allergy and Diabetes... it is up to the parents/student to provide the information and education...
  11. Kibbie
    I was a super active kid too, I walked or rode my bike to school, I did synchronized swimming for a jr olympic team. Practices in the morning before school, and then did weights after school, and mroe practice on the weekend. In the summer I practiced either doing laps, figures, or weight training for about 6 hours a day and was in marching band, and...
  12. Kibbie
    Open Original Shared Link That is the link (you can order the test with or with out a Dr. My insurance covers it with a Dr.s order so I'll wait for that) Basically by doing the gene test you can tell if your child has the genes that can "turn on" and become Celiac Disease. If the test comes back negative, then there is no way your child could have...
  13. Kibbie
    I can tell you that my daughter is insane when she gets glutened. I've said it before... its like she is possessed. So I see how glutening can make things worse for all kids. I found out recently that a good friend of mine in high school who suffered from bi-polar, was diagnosed with celiac disease after about a year of being gluten-free she was able...
  14. Kibbie
    As soon as I found out the gluten may be the culprit of my daughters issues I kep her gluten light (I mean super gluten light) I gave her 1 saltine cracker a day and thats it. My daughters symptoms are vomiting and insane behavior. Seriously its like she is possessed when she gets gluten its horrible. I'm currently pregnant and my pediatrician will...
  15. Kibbie
    If your daughter couldn't eat her donuts because the rest of the class didn't have them... then they shouldn't have been able to eat them because she didn't have them... end of story! If her teacher had let her eat them the day before I wouldn't have as much of an issue with it but this seems like a double standard.
  16. Kibbie
    My daughter had her 3 year old checkup yesterday her stats: 40lbs (97%) 39.5 inches (95%) Healthy, soft tummy, blood work was great... normal little girl! Back where the Dr wanted her on the charts and everything! (she was 10lbs and 22 inches when she was born so big baby) Now today we are dealing with a self glutening. She has a...
  17. Kibbie
    Cheers to you for deciding to BF your daughter. I Bf'd for a little over a year (though I do not have celiac disease). What you are explaining has happened to many moms that I know who don't have celiac disease. Have you though aobut contacting your local la leche league to see if they have any ideas of how to help you? They were a big source of help...
  18. Kibbie
    MY daughter was diagnosed at 18 months (she'll be 3 tomorrow) and it wasnt until just about a month ago that my daughter started to eat the "gluten free" substitutes. She would turn her head away from bread, waffles, cookies etc for the longest time. Half of the time I wondered if somehow she knew it made her sick before. For the longest time her daily...
  19. Kibbie
    I was actually talking about this with my pediatrician yesterday. Her son is autistic (mild form) and she is thinking about the gluten casein free diet. She asked me what happens to my daughter when she gets "glutened" and I told her that she is nearly impossible to live with. Shes defiant, violent, rude, just plane horrible when she gets gluten. And...
  20. Kibbie
    "since he was small he has had a rash common in people with allergies called keratosis pilaris otherwise known as chicken skin,,,,little red bumps all over his upper arm and thighs" My daughter and I both have this... its a separate and completely different genetic thing that is VERY common in kids. Most will grow out of it some wont. Basically our...
  21. Kibbie
    My extended family and I are taking a trip to Glacier National Park this summer. (Both of my parents grew up around there and want to show their grandchildren the beauty of it all). Anyhow, the plan is to stay at some of the old historic lodges.... Anyone have experiences with any of the lodges? (good or bad.... any info will help me plan)
  22. Kibbie
    I tried to but it was jsut way to much work. I found a family down the street who eats Quinoa pasta and we purchace it from the company in bulk (cheaper) and split the costs!
  23. Kibbie
    I don't make separate meals for my daughter... I just make our dinners gluten free (it keeps me sane this way) I have not hand to change what we eat at all.... just how I prepare it. THis week we've had: Chicken Cordon bleu Moussaka Squash soup with ham and cheese sandwiches pork chops Oven fried (and breaded) fish sandwiches Basically...
  24. Kibbie
    My daughters blood work was positive at 18 months old.... if you get a positive there is no question so I believe its worth a shot.
  25. Kibbie
    I called every day to see if they had a cancellation 2 times a day... and was able to get my daughter in for her scope in under less than 2 weeks! It's wroth a try
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