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JenKuz

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Everything posted by JenKuz

  1. JenKuz
    Thanks so much for the extra information, Nora. Miriam--I thought I was the only one out there! Yes, it seems we both have similar manifestations; I also had a really high fat malabsorption score. I suspect it still is, since I've had a rough summer for glutening, and my responses seem to be getting stronger. I haven't quite been able to bring...
  2. JenKuz
    I had a similar experience with the falafel at a little Moroccan joint in Berlin *sigh*. Unfortunately, I picked up the fantastic foods variety at the store recently and read the ingredients, but apparently not carefully enough. I've learned that Casbah brand and Sadaf brand have wheat flour, and Near East brand has wheat germ.... and Manischewitz...
  3. JenKuz
    It's true, Hathor. Fantastic Foods falafel mix has soy sauce in it (why? I can't fathom.....it's not like soy sauce is a traditional and indispensable flavoring for falafel). I contacted Casbah and Manischewitz to find out whether theirs are gluten-free. You can make your own with garbanzo flour.
  4. JenKuz
    Yeah, usually it's something you'd do to use up old bread, right? Well, I actually had a reason to make it, which is going to sound a little strange, but if you go to the following link, you'll see what my objective is: Open Original Shared Link It will be for my (non-gluten-avoiding) boyfriend for his birthday. He adores all things red meat,...
  5. JenKuz
    I don't know many of the cookbooks, but glutenfreegirl has a marvelous blog.... Open Original Shared Link With a lot of recipes. She's coming out with a cookbook soon that I'm drooling over. Can't wait for it to come out......
  6. JenKuz
    I wanted to make a meatloaf the other day; just had a crazy craving, i dunno. So I tried to think of what would be a good binder. I did NOT want to go the Dr. Atkins pork rinds route. So I decided to try falafel mix. It worked exceptionally well. WAY better than saltines. I think this is one case where the gluten free alternative is in all respects...
  7. JenKuz
    Hi all, I made a very simple popover this morning. I haven't done much baking since being diagnosed, and so I don't have all the gluten-free flours in the pantry. This popover was inspired by a "quiche" I made last night. I did it with no crust, and then stirred some corn starch into the egg mix. The whole thing puffed up well, so I tried to...
  8. JenKuz
    Hi Horsegirl, I think what you're noticing is a thing called "selection bias." The people who come here are those who have either directly diagnosed celiac disease, or else unresolvable gi symptoms. The tests that enterolabs does are identical to the blood tests for anti-tissue transglutaminase and anti-gliadin antibodies. They use the same...
  9. JenKuz
  10. JenKuz
    I had eosinophils in the large bowel. I did some investigating and found some literature that suggested that eosinophilia can be mediated by IgA. Ordinarily, eosinophilia is associated with "genuine" allergic responses, wchich, by definition, are mediated by IgE resulting in histamine release from basophils and mast cells. Eosinophils relaease "granules...
  11. JenKuz
    I found myself hungry but nauseaus at the same time through much of the first year and a half of symptoms. I ate a lot of carbs, craving cakes and whatnot before I cut out wheat, and then potatoes, rice, etc. I think this was because of the fat malabsorption. I had a fairly high score on the fecal fat test, as well, and given that my body was not absorbing...
  12. JenKuz
    When i first started having symptoms, i had this problem. Stools were loose, mucously, fatty, full of undigested food, and I always felt very feverish and uncomfortable passing them....would sit on the toilet for long periods, not constipated, but clammy and in pain.....
  13. JenKuz
    Hi Whattodo, When I had my endoscopy, it was something similar. I already had negative blood tests for antigliading IgA and anti-tissue transglutaminase IgA. The doc took the scope through the stomach and duodenum, and then stopped. He saw inflammation of the stomach, took a biopsy of that, but no biopsy of the small bowel. There are problems: ...
  14. JenKuz
    I don't know what differences in standars there are between Germany and here....but when I was there over the holidays, I noticed that many lays brands had wheat products listed in the ingredients (!) where the same flavors...well, I can't really compare exactly. I never saw wheat in corn chips here before, but didn't really eat them that often. ...
  15. JenKuz
    It's interesting, because the immune system deals with bacteria and viruses like that too. First exposure, strong immune response, second exposure, even stronger faster immune response. Every exposure after that ever faster and stronger. BUT with chronic exposure....usually the immune system "calls a truce" and responds at some kind of equilibrium level...
  16. JenKuz
    I guess I understand it if they are outsourcing the fruit product or other flavorings.... Maybe it's more responsible for them to say they can't guarantee another company's product? I eat dannon plain a lot, and I've never had problems. I sweeten it with honey or jam, or blend it with frozen banana...
  17. JenKuz
    I've been frustrated by the number of ice creams that have brownie/cookie/cake batter etc. in them these days.... But also, I have problems with soy. Ice cream almost always has soy. I know it's controversial about the soy/celiac links...but maybe it's worth considering that. I know for a while there was concern about Bourbon Vanilla. People thought...
  18. JenKuz
    Karwei, I had gastritis as part of my initial set of lab workups. I don't have much in the way of wisdom bout it. I wouldn't say that it has made the recovery any harder in particular; in my case, it means that when I get glutened often the first symptom is a stabbing searing pain throughout my chest. That was actually one of the symptoms that drove...
  19. JenKuz
    I've found that the best way to explain it to people is, "It's like a vaccine. Once your immune system is "primed" against wheat, you'll always respond to even a little bit, and usually stronger over time, just like you would respond to a virus faster and stronger once you've been vaccinated. Except in this case, your immune system is attacking your own...
  20. JenKuz
    Thanks so much for the tips, Ariesmama! I am going to give the zinc a try. I actually have been gluten free since last November. However, I am not as careful as some are. I live alone, so CC at home is not much of an issue. But I eat out a lot, and I'm sure I get contaminated that way. I sort of hoped that my case would be a less-severe exception...
  21. JenKuz
    Boy, are you right. I'm definitely getting started on this soon. I have been trying to get myself to go back to this way of eating for a couple of weeks now. When I did it before (I was following the specific carb diet) it didn't seem that hard. I don't know what's different now, but I feel less up to discipline-wise than before...but I need to suck...
  22. JenKuz
    Yeah, I always suspect autoimmune disorders. My grandma has MS (and osteoporosis, and most likely has had celiac all along undiagnosed, because she has a lot of stomach problems since childhood). My mom has RA that expresses in her eyes (uveitis and iritis). I had a bout of hyperthyroid as an infant, of unknown etiology... But everytime I run off that...
  23. JenKuz
    Hi Andrea You remember me! I got better (very much better) after cutting out gluten. But I seem to be having a relapse now. I think it's partly because at first I was eating almost all whole, home prepared foods, and now I've gotten back into the habit of eating more packaged foods, relying on ingredients labels, and eating out, all of which are...
  24. JenKuz
    I didn't even notice how much my skin was affected when I started getting sick, until a friend pointed it out to me. I hadn't seen her in a couple months, and had been gluten free for the first time during that time. When I saw her again, she couldn't believe how good my skin looked. And then she realized it had always looked basically okay, *except* when...
  25. JenKuz
    I'm having skin stuff that seems like it could be DH (was quasi-diagnosed with Celiac, see Enterolab results below). I've this stuff on-going since about 12, with a couple of especially bad bouts. When I was younger, it was around the thighs from top to knee, intensely itchy, on both sides. Now it is not symmetric, it is only on my right thigh. ...
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