Jump to content

JenKuz

Advanced Members
 View Profile  See their activity

  • Posts

    178

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by JenKuz

  1. JenKuz
    Hey there, I was only mildly allergic to hazelnut, nothing else. The doc said that could well be a false positive because the test is very sensitive and the wheal was small. I'm sorry for your son! That sounds awful. I hope it goes better for your dd
  2. JenKuz
    I don't know. I think, immunologically, the IgG tests are unreliable, in that they return a lot of false positives. We make IgG to anything we eat a lot of (or any of). Since gliadin is a protein in wheat itself, it's not surprising to have a high IgG to wheat if you've been eating plenty of it. It might be more of a concern if you also had high AGA IgA...
  3. JenKuz
    Hi all, So in my never-ending quest to rule things in and out, I took a food allergy skin-prick test on Friday afternoon. That evening, I had one of the worst cases of the itchies ever. It was localized to my inner thigh, a site where I've often had eczema. Today I itch all over. Like chicken pox all over again. It's terrible. Even the pads of my...
  4. JenKuz
    Yeah, I understand why he does that...he's trying to redefine the disease conditions. But it seems a bit like splitting hairs, because he says that celiac itself can only be diagnosed through biopsy, and he advocates foregoing biopsy altogether. So he can't diagnose it, but he will diagnose every symptom and marker for it outside the biopsy, so in lay terms...
  5. JenKuz
    Huh. I've been a terrible toothgrinder since I was a baby. I live alone, so I only know when I've been doing it from the fact that my teeth ache. But I've only recently begun to notice that my teeth seem to ache more when I've eaten a lot of gluten (before I gave it up), or been careless (now that I've given it up) and eaten, say, the soy sauce at a sushi...
  6. JenKuz
    Others around here will be able to say more about how Enterolab influenced their diagnosis, but what I do know is that they test for both gluten sensitivity and celiacs. Gluten sensitivity is measured by antibodies to gliadin, one of the components of gluten. Autoimmune celiac sprue is measured by testing for antibodies to tissue transglutaminase, which...
  7. JenKuz
    I know lots of people on here have relied on the IgG tests for identifying food allergies, but I have to say, I think the immunologic basis for such tests is pretty poor. We make IgG to basically every food we've ever eaten. The foods we eat most of show up most, which is why so many people have high IgG for dairy, soy, corn and wheat. But IgG is a general...
  8. JenKuz

    ARCHIVED Help!

    JenKuz replied to a topic in Introduce Yourself / Share Stuff

    I don't know if you can download it from ABC's website, but I know for absolute FACT that you can get it for the low, low price of $1.99 from iTunes. I don't think you can transfer it to another account if you buy it through your own, but maybe iTunes videos can be dvd written to blank dvds. I don't know, cause my computer doesn't have a dvd writer, but...
  9. JenKuz
    I don't know why it would be more common with a gluten free diet (not that it might not be, I just don't know anything about that). What I do know is that the same beneficial bacteria populate the vagina as the gut. So a good way to keep yeast at bay is to sprinkle a little probiotic powder from a capsule onto a tampon and wear it for a while. Or you can...
  10. JenKuz
    The problem with lunchmeat for pregnant women is that it can harbor listeria. It's one of the only bacteria that can survive at refrigerator temperatures. It's not (usually) that harmful to healthy adults, but can be bad for the developing fetus, I think. It's killed by heat, so any meat that you can cook, you can eat. If you don't mind eating lots of...
  11. JenKuz
    Yes, I realize that Whipple's disease is rare, I think I mentioned that in the thread above. It is still part of a differential diagnosis, especially for someone like myself with a rate of malaborption that is not reasonably explained by gluten sensivity alone. That was the point of the above thread, actually. Better to investigate all angles. Since Whipple...
  12. JenKuz
    Wow, that's a lot of testing. Have you ever looked into Whipple's Disease? It's a progressive bacterial infection that can apprently cause the same kind of damage as celiac, but it's systemic, so it can harm other organ systems too. I'm going to start a new thread about it, I think, to see if anyone has been tested/treated for it. It should show up in...
  13. JenKuz
    Thanks sooo much for all the advice. I've never been to Umbria; spent a month near Milan once upon a time, and got to see Venice and Tuscany then, but this will be new. Also, I didn't get to Rome last time so it is a MUST for a weekend. I'm actually flying into and out of Milan, both from the US, and on to Berlin at the end of the trip. So if you...
  14. JenKuz
    Wow, this is fantastic! I had no idea. I guess they're alot more advanced than the US on this front, huh? Now I really can't wait!
  15. JenKuz
    I decided to cut out wheat a week and a half ago, rather than to wait for the biopsy. Enterlabs are in my signature. Africa is going to be easier, cause the staple food is corn, but all the restaurants serve bread, wraps and fried breaded things.
  16. JenKuz
    Hey all, I'm hoping you can help me with this. I will be travelling to Italy for a training program through most of November. I'll be staying in Orvieto for three weeks, then going on to Berlin for a short break. I'm new at gluten-free, and am realizing fast that it takes practice. I guess if anyplace will test my mettle, Italy will. In Orvieto I...
  17. JenKuz
    Thanks so much for all the helpful info, guys. I have to admit, I was really alarmed when I got that score. I almost cried. What's so weird about it is that I haven't lost any weight. I guess I eat pretty well, and also my body has always been extroardinarily good at keeping it's "set point," which happens to be almost exactly the "ideal" for my height...
  18. JenKuz
    I think I'm going to email enterolab when I get a chance to see whether there are things that could make a number artificially high. Like anything I might have eaten beforehand. And I might ask my regular doc to do the 72 hour test to double-check. Anyhoo. You're right on the diet. I'm going to do my best at reforming The sub-lingual B vitamins...
  19. JenKuz
    So here they are. I guess the antigliadin makes sense in light of everything. The malabsorbtion score floored me, however. I knew it was bad, but this bad? No wonder I've been such a wreck lately. So I need advice on vitamins, keeping replenished, etc. I guess. And will also be avoiding wheat, although it's nice to know that I don't have the...
  20. JenKuz
    I think it depends on the doctor. I was a bit skeptical of the tests, but I asked them some questions and I think they're very reliable. The medical explanation makes sense--IgA is produced in the gut, especially this one, so it makes more sense to test it in the stool than the blood. The assay uses the same substrate as the blood tests use, so it's tried...
  21. JenKuz
    I had the funniest dream last night. I dreamt that I got my enterolab test results back, but they were very confusing, and I didn't know what to do, so I posted them right away for ya'll to comment. They were Gliadin 4; ttg 10; and malapsorbtion 449 (!). I'll get the results in another week or two. We'll see if I'm clairvoyant but I really hope not,...
  22. JenKuz
    My impression is that the blood test is very specific and not very sensitive at all, meaning there are very few false positives but plenty of false negatives. So for these, negative may be more or less the same thing as inconclusive. Now if you have a person whose symptoms aren't a very good match for celiac, but they're testing for it just in case, and...
  23. JenKuz
    What did he have to say for himself?
  24. JenKuz
    Off topic, but check out www.craftster.org They have a thousand and one amazing bag patterns. And millions of other fantastic ideas for things to make. My user name is craft-matic, so watch for me Or ebay "vintage airline bag" for some really cool large totes. Some are overpriced, but others are dirt cheap, thrift store prices. But that's coming...
  25. JenKuz
    Oh. My. God. I saw someone mentioned in some other thread about people sabotaging food with wheat to see if people are "faking it." But seriously, I thought that must be a joke or something. That's just about the worst thing I've ever heard. That ought to be a criminal offense. It's the same as trying to poison someone! Ugh. How disgusting, I...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.