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Latest Celiac Disease News & Research:
Everything posted by JenKuz
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ARCHIVED Do You Have Stomach Pain Because Of Gluten?
JenKuz replied to ebrbetty's topic in Coping with Celiac Disease
This may not be very helpful, since I have yet to be diagnosed, but my symptoms are a match, my doctor thinks celiac is the most likely explanation (just waiting to get in for my biopsy), and I've responded to gluten-free diets twice. The pain I get is probably intestinal, but it's severe, in the mid right quadrant. It's worst when I eat wheat, but... -
I think it used to be the case that all eggs had salmonella on the shells, and the salmonella may or may not have gotten into food when the eggs were handled and cracked. Now eggs are sanitized in-shell. However, there is one kind of salmonella that actually gets inside the egg from the momma hen while the egg is developing. That kind is found in about...
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ARCHIVED Lotions?
JenKuz replied to hez's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh, it really, really is. I'm afraid I'm down Atlanta-way. But I'm sure you can find some resources around Cincinnati, too. I buy the hard-to-find stuff online. If you're looking for recipes, I go these sites: Open Original Shared Link Open Original Shared Link Open Original Shared Link The last one is also an online store. It's just... -
I mentioned it to the nurse at student health and also my GI doc, as one of the several symptoms I have. Neither of them seemed too concerned; I guess they both figured all the symptoms have the same source, and when they figure out what it is, they'll know what to do. Controlling the symptoms is all I can do until the test results from enterolab come back...
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ARCHIVED Response From Enterolab
JenKuz replied to JenKuz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Me, too! -
ARCHIVED Response From Enterolab
JenKuz posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So I sent a few questions to Enterolabs, and they sent me the following reply: Dear Jennifer, Thank you for your correspondence. The normal range for our tests was determined during the research process when Dr. Fine originally used the normal range for blood tests as his starting point. When he discovered that many individuals scoring between 1... -
ARCHIVED Igg Testing For Food Intolerances
JenKuz replied to covsooze's topic in Food Intolerance & Leaky Gut
I think it's so important to contact the lab directly, ask them a lot of questions. The manner of their response is just as important as what they actually say. I decided to trust enterolab, because I sent them a bunch of questions and they gave me straightforward and sensible answers. When I contacted a "nutritionist" in Atlanta, she obfuscated about... -
I sure hope so I'm pretty badly off. Nothing helps. I can't even go on dates anymore. It's impossible to be charming with heartburn, I've discovered. And the guy I've gone out with a couple times took me to a Malaysian restaurant last night! Cripes. And I had even mentioned to him that my stomach was awful, I'd been avoiding spicy foods, and was swearing...
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ARCHIVED Arguing With One Another On Posts!?
JenKuz replied to chgomom's topic in Introduce Yourself / Share Stuff
But you seem to be saying that you think some people shouldn't speak at all. -
ARCHIVED Arguing With One Another On Posts!?
JenKuz replied to chgomom's topic in Introduce Yourself / Share Stuff
Well, I guess I must be one of the people you're talking about. I was going to ignore this post, but this is very personal and I feel compelled to comment. I thought you had just been referring to the folks in the cold thread who called each other rude, but apparently I'm included in your bickering for having posted sections of articles as documentation... -
That's really interesting. I've only been taking the antiacids for a couple weeks, though, and I took pepcid for two weeks about six months ago. When I was on a gluten-free diet before, I was practically living on yogurt, which has a lot of B-12, and I felt really good. Now, everything I eat makes me sick. I think the damage has gotten worse. I don't...
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Yeah, I know they can. I put off taking antacids regularly for *so* long. But finally I just broke down. I was in too much pain, not sleeping, it was awful. As for getting my levels checked, it takes me weeks to get in to see any doctor, so I don't bother with getting anything checked unless I need a prescription to fix it. Sad, potentially bad for...
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The brand I have is Sundown. It's "guaranteed free of: yeast, wheat, gluten, milk or milk derivatives, lactose, sugar, soy and artificial coloring." It does contain sorbitol. I don't think it's very much, though, because I'm pretty sensitive to sorbitol's negative effects, and I haven't had any from this. This one contains, well, no less than 20,...
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I just went gluten free a few days ago. I've been suffering for months with lethargy and sleepiness, and I'm not digesting my food very well at all at the moment (the nurse freaked out when I brought in my last stool sample...Her: Is this blood!? Me: No, I had tomato salad yesterday.... ) Vitamin pills have been doing no good. My friend who has suffered...
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ARCHIVED Immumoglobin A
JenKuz replied to wonkabar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
IgA is simply one of several kinds of antibody produced by the body. It is the kind produced by the intestinal lining, along with some other mucosal surfaces (the sinuses, for example), and it is the antibody in breast milk. 1 in 500 or so people have a genetic deficiency in IgA, and as other posters said, when testing for levels of specific IgA, many doctors... -
ARCHIVED Hello Everyone I Have A Cold.....*sniffles*
JenKuz replied to chgomom's topic in Coping with Celiac Disease
Well, the problem with the zycam is that it only works for rhinoviruses. Colds can also be caused by echoviruses, coxsackieviruses, and paramyxoviruses and a couple others. Rhinoviruses cause about a third of colds, so for any given cold I guess you have a 33% chance of zycam working. Empirically, most people would probably think it didn't work, if they... -
ARCHIVED Hello Everyone I Have A Cold.....*sniffles*
JenKuz replied to chgomom's topic in Coping with Celiac Disease
Just looking at the Elderberry stuff now. There's an interesting study in the Journal of Alternative and Complementary Medicine. They say: "A significant improvement of the symptoms, including fever, was seen in 93.3% of the cases in the SAM-treated group within 2 days, whereas in the control group 91.7% of the patients showed an improvement within... -
ARCHIVED Hello Everyone I Have A Cold.....*sniffles*
JenKuz replied to chgomom's topic in Coping with Celiac Disease
I highly recommend zycam. Zinc is the way forward when it comes to colds. I haven't investigated the elderberry angle, though I'm heading to pubmed as soon as I'm done here. But zinc gluconate has been shown in clinical studies to reduce the duration of colds, and to prevent them from forming if you think you've been exposed. The lozenges are okay, but... -
ARCHIVED Lotions?
JenKuz replied to hez's topic in Gluten-Free Foods, Products, Shopping & Medications
Have you considered making your own lotions and creams? It's actually not that hard. You need to buy a few specialty ingredients, like stearic acid (a type of wax used as an emulsifier). The rest is whatever oils you want to add. You can control the amount of things like Vitamin E, lanolin, you can use primrose oil and coconut oil. With a bit of research... -
ARCHIVED Dairy Free Acidopholis Pills?
JenKuz replied to CantEvenEatRice's topic in Gluten-Free Foods, Products, Shopping & Medications
Whatever brand you choose, many of them make enteric coated varieties. Those have always had a much greater efficacy for me. They cost a lot more, but I consider them worth it. Logically, lactobacillus shouldn't be super resistant to stomach acid, so getting em past the stomach is a good thing. I found a study from 1987 that said acidophilous was better... -
ARCHIVED Peanuts, Beans And Sugar Alcohols
JenKuz replied to arc's topic in Food Intolerance & Leaky Gut
I had the same experience. I was glutening up prior to testing, so I got an angel food cake from Publix. The part of the label that read "No Sugar Added" was partially obscured. I had two very generous slices. An hour later, all h*ll broke loose. If I understand right, it's not just that bacteria have to break them down. There's something else about... -
ARCHIVED Is It Insomnia?
JenKuz replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jules, I'm so sorry for your troubles, and I hope they're improving. In the meantime, I, too, have gone through some crazy times, and have had periodic insomnia ever since. It seems like it can be sparked by any change in diet, any change in my daily habits, anything at all, really. I'm having one now, that started when I went gluten-free three... -
ARCHIVED Need Help With Party Food
JenKuz replied to snapple's topic in Gluten-Free Recipes & Cooking Tips
You can make delicious goat-cheese appetizers by beating together goat chevre and a touch of cream cheese, with a dash of heavy cream. Roll the stuff into balls, and then roll in a variety of chopped herbs or nuts. I've found that basil, mint and thyme mixed together are wonderful with this, as are fine-chopped pistachios. Do some rolled in crushed mixed... -
ARCHIVED La Choy Soy Sauce?
JenKuz replied to mn farm gal's topic in Gluten-Free Foods, Products, Shopping & Medications
All soy sauce has wheat, unless it says gluten-free, as near as I can tell. There are a couple manufacturers that make it gluten-free, though. San-J makes a wheat-free organic tamari. -
ARCHIVED Omg- I'm A Phd Candidate!
JenKuz replied to Mtndog's topic in Introduce Yourself / Share Stuff
Thanks!