gfpaperdoll
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Latest Celiac Disease News & Research:
Everything posted by gfpaperdoll
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ARCHIVED Roommate Troubles Advice
gfpaperdoll replied to efriedm2's topic in Coping with Celiac Disease
I would talk to the personnel person at your summer job or to your supervisor or whoever your mentor there is. They should move you. Yes, it is your problem, but you cannot be breathing in flour and getting sick from cross contamination. I do not know how you would be expected to avoid that, on your own. It is not your fault she is a ...(fill in the... -
ARCHIVED How Quickly Do You React To Gluten?
gfpaperdoll replied to splash's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am just double DQ1 & it takes 15 to 20 minutes. If it was wheat gluten I get the immediate stomach pain. no mistaking that pain. I get a different reaction from oats & barley, both of which I tested allergic to 35 years ago. barley makes me the sickest & causes vomitting & a broader stomach ache than wheat. I have almost forgotten... -
ARCHIVED Gluten Free In Houston, Tx?
gfpaperdoll replied to Live2BWell's topic in Introduce Yourself / Share Stuff
I do not personally know any, but our director might, you can email her with info from the link above. Sometimes people from Louisiana attend our meetings. You can always just pay the new member fee & that will get you all the newsletters with the restaurant reviews, recipes, articles that type of thing. very worth the money in my opinion. She mails... -
ARCHIVED Gluten Free In Houston, Tx?
gfpaperdoll replied to Live2BWell's topic in Introduce Yourself / Share Stuff
Hi Jessica, there are a lot of celiacs in Houston. Here is the link to the celiac support group. Open Original Shared Link We have a lot of great restaurant information. Please contact Janet & get the new member packet. Hope to see you at a meeting. We also have a dining out group. Depending on where you live, you might want to also attend... -
ARCHIVED Feedback On My Sons Lab Results
gfpaperdoll replied to bec's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
re numbers, well it is like being pregnant, you are or you are not. Your son is positive for gluten intolerance. re the genes, he is double DQ3, which is considered, in the U.S. anyway, a gluten intolerant gene. (Or at least that is what I think I remember, but I am not looking at the gene chart so I could be wrong) But, having two copies of the same... -
ARCHIVED Morning Digestion
gfpaperdoll replied to celiacyak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
IMO you should not eat any grains in the morning. Heck I think grains are not good for you anytime. First thing in the morning I would have fresh fruit & water only. maybe watered down 100% welch's grape juice. If you can handle it, eggs, & ham or bacon or last nights left overs. I personally gave up on breakfast, when I realized that for... -
ARCHIVED Gastric Bypass Surgery And Celiac
gfpaperdoll replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My sister is an obese non gluten-free gluten intolerant person, she also has seizures, RA, eczema, depression, IBS, bad teeth, migrains, on & on. My son is also overweight & has the, uh sure, idopathic liver problem. But he does not tell his doctors that he has a failure to thrive son or that gluten intolerance is rapant in his family nor that... -
ARCHIVED Cannot Control My Cheating...please Help.
gfpaperdoll replied to LadyCyclist87's topic in Coping with Celiac Disease
I agree with Tom, I have an aversion to the stuff. Not helping the original poster, but I am never tempted by anything gluteny, but I am also not 22. I think when you are 22 the whole world is full of tempting things. At my age, I know what is best for me. I have filled my life full of things that make me happy & healthy & try to contribute, in... -
ARCHIVED Cannot Control My Cheating...please Help.
gfpaperdoll replied to LadyCyclist87's topic in Coping with Celiac Disease
I can relate to Takala's post. Please get some blood work done to check all your vitamin & mineral levels. & a lot of us take B12 regardless of our tested levels - & a lot of us are low in D... I think that if you take B12 that you will not have so much stress. please do not forget that gluten is addictive. So not all your doing... once... -
ARCHIVED I Need A Thorough List For Mil
gfpaperdoll replied to celiac-mommy's topic in Parents, Friends and Loved Ones of Celiacs
Hand washing when taking child to public places cleaning out their car what are they going to say when other relatives & friends visit & want to bring in wheaty foods? games & toys should be washed/wiped clean If grandmother uses one of those wooden blocks to store butcher knives - the crevises will have gluten crumbs & you cannot... -
ARCHIVED Hla-dq 1,1 (subtype 6,6)
gfpaperdoll replied to trcn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
trcn, you have two copies of the exact same gene - not good. Your father had at least one & your mother had at least one that they passed to you. They could also have another gene each. If they only have one gene they have a 50% chance of passing that gene to you. If they have two genes each they will pass one of those genes to each child. If I... -
ARCHIVED Depression Post gluten-free Diet?
gfpaperdoll replied to flutterby's topic in Coping with Celiac Disease
you have not been gluten-free that long & you might still be getting some gluten... a few ideas - did you replace all your gluten food items with a gluten free substitute? If you did that is really not a good idea. You might want to look at your diet to see how much nutrition you are getting each day. get your vitamin & mineral levels checked... -
If your husband is eating low sodium & low fat because of blood pressure, cholesteral, heart disease, if he will cut out grains that will get a lot better... re "good calories bad caloies" by Gary Taubes. I am also in the South, & an electric skillet & a crockpot are your friends in the summer. I bake my sweet potatoes in the microwave. I...
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ARCHIVED Did I Do The Right Thing?
gfpaperdoll replied to onelildream's topic in Parents, Friends and Loved Ones of Celiacs
double yes to what shayesmom wrote... worrying about what you are going to do in the future is just wasted energy - things change everyday & you deal with today what you have to do to be healthy. really, kids that grow up eating a healthy diet are going to want to continue to eat that way. I would stay away from the doctor as much as possible... -
ARCHIVED Packing Gluten-free Lunches Wearing Me Down
gfpaperdoll replied to dbmamaz's topic in Parents, Friends and Loved Ones of Celiacs
Here in Texas we can also get the rice paper wrappers at the regular grocery like HEB, & Kroger - just look in the Asian section - my favorite one has a red rose on the front of the container - that is round!! I think you will like them. It sounds like it is just a salad with meat - but when rolled up & refrigerated overnight they have a completely... -
re 83 year old grandmother that has alzheimers. Untreated celiac leads to alzheimers, she is lucky that she did not have alzheimers in her 60's. I am helping a friend of mine that is 83, lives alone & she has been gluten-free 9 days now, well except that a friend brought her some food & she got glutened & has had the usual problems, I do not...
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ARCHIVED Packing Gluten-free Lunches Wearing Me Down
gfpaperdoll replied to dbmamaz's topic in Parents, Friends and Loved Ones of Celiacs
I just taught my support group how to make spring rolls & everyone loved them & I heard back that several had already made them. Just wrap whatever filling in a round rice paper wrapper that you have dipped briefly in a bowl of water - lay out on a cotton dish cloth - place filling on on "side" using both hands tuck in filling & wrap over top... -
ARCHIVED Packing Gluten-free Lunches Wearing Me Down
gfpaperdoll replied to dbmamaz's topic in Parents, Friends and Loved Ones of Celiacs
Just my opinion but I notice that children today do not have enough chores. I think they need to do chores so they can contribute to the family & have pride in a job well done. I would delegate, delegate, delegate & teach each child a specialty meal that they can cook. Meal time is family time & no one leaves the kitchen till the kitchen is... -
vinegar some
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ARCHIVED Update And Venting
gfpaperdoll replied to SunnyDyRain's topic in Coping with Celiac Disease
yes, be careful about getting labeled with something like Crohn's. A friend of mine was misdiagnosed with Crohn's for years - she really had celiac disease - DQ8 & DQ2 & positive thru Enterolab. she said her "Crohn's" was gone at day 5 of the gluten-free diet... Are you eating any gluten-free grains? That could be a problem for you, also dairy... -
ARCHIVED Help-any Suggestions?
gfpaperdoll replied to linsmad's topic in Parents, Friends and Loved Ones of Celiacs
Denise61, I hope you do some research & find out that the other "marker" that your son has might be a gluten intolerance gene & he could get brain damage, organ damage, arthritis, osteo, tooth enamel defects, cancer or other auto-immune illnesses before his villi are damaged. & IBS is not a disease, just like vomiting is not a disease. It... -
ARCHIVED Food Labelling And Poor Eyesight
gfpaperdoll replied to brainfood's topic in Coping with Celiac Disease
All good suggetions from previous posters, another option is to get yourself a small Surefire flashlight. They fit in pocket or purse & once you shine that little baby on something - you can see!!!! Also good for menus in dark restaurants. -
ARCHIVED Getting Confused And Worried...
gfpaperdoll replied to Pyro's topic in Coping with Celiac Disease
Please remember that gluten is VERY addictive. Re-occuring doubt is the addiction talking. Think what people tell themselves that are on illegal drugs & it is about the same thing. That is why more people are not gluten-free - they can take a med & be okay - They are SURE that gluten is not their problem. Bottom line is they cannot or will not... -
ARCHIVED Food Attachment Issue
gfpaperdoll replied to Jazzanova's topic in Coping with Celiac Disease
No worries about food here. As long as you have access to a grocery store you are not going to starve. I keep food in the freezer for the times when I get home & need a meal - pop it in the microwave & by the time I have put away my briefcase - dinner is ready. I do not keep food at the office. I do not eat energy bars. I mostly bring my... -
ARCHIVED It's Official
gfpaperdoll replied to bakinghomesteader's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
well, maybe the reason God has not provided you with any rice flour is that you really do not need any rice flour right now. It is better if you do not eat any of those gluten-free grains for a bit - to give your insides a chance to heal up. as a side note, phewy, who can stand rice flour? - I hate the stuff... Whenever you can eat some of the...